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Anyone had Proton Beam Therapy for Meningioma?

Posted by deblee @deblee, May 10, 2020

Has anyone received Proton Therapy for their meningioma? If so, was it successful in reducing the size without surgery? Thank you.

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jimmye | @jimmye | Jan 27 9:53am
In reply to @colom22 "Proton Beam disrupts the DNA activity, so the goal of this radiation is to put the..." + (show)
@colom22

Proton Beam disrupts the DNA activity, so the goal of this radiation is to put the tumor in remission. It does not remove it and it does not shrink it is what I understand. I have read that for most meningiomas the first line of treatment is surgery followed by radiation, but that also depends on the location of the tumor. I had surgery twice and then radiation. Hope you do well with whatever option is the best for you.

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Thank you. I am scheduled for surgery on 2/14/24.
I am going to radiation for a follow up discussion Monday.
I have a level 1 meningioma. I am very anxious at this time.

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3 replies
patbaret | @patbaret | Jan 28 7:07am

Please keep us updated. I heard it is more precise than gamma knife.
I am sure you will be fine.

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bevpac | @bevpac | Jan 29 5:20pm
In reply to @jimmye "Thank you. I am scheduled for surgery on 2/14/24. I am going to radiation for a..." + (show)
@jimmye

Thank you. I am scheduled for surgery on 2/14/24.
I am going to radiation for a follow up discussion Monday.
I have a level 1 meningioma. I am very anxious at this time.

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I understand the anxiousness - but try to relax - knowing that your medical team do this every day and will take care of you. This is what they do and they are good at it!

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Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 7 9:13pm
In reply to @jimmye "Thank you. I am scheduled for surgery on 2/14/24. I am going to radiation for a..." + (show)
@jimmye

Thank you. I am scheduled for surgery on 2/14/24.
I am going to radiation for a follow up discussion Monday.
I have a level 1 meningioma. I am very anxious at this time.

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How are you doing, @jimmye?

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jimmye | @jimmye | Feb 8 8:23am

I went to Radiology last week and she recommended that we do another MRI asap. I did the MRI Monday, and it has not changed. She said we could monitor it and that there was no Urgency. I asked if Radiology could contact Neurosurgery so they could all be singing out of the same Hymnal. A message was sent on Monday and no reply.
I have called twice. I am very anxious about this because surgery is on 2-14-24. Can you give me any thoughts? Thank you.

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mamaseta | @mamaseta | Feb 8 8:30am
In reply to @jimmye "Thank you. I am scheduled for surgery on 2/14/24. I am going to radiation for a..." + (show)
@jimmye

Thank you. I am scheduled for surgery on 2/14/24.
I am going to radiation for a follow up discussion Monday.
I have a level 1 meningioma. I am very anxious at this time.

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I had surgery on 9/13/23 to remove a very large grade 1 left side meningioma. I was very anxious too but everything went very smoothly and they got it all. I had my three month follow-up MRI and everything is healing well. I’ll pray for you and giving you virtual hugs!

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2 replies
jimmye | @jimmye | Feb 8 9:03am
In reply to @mamaseta "I had surgery on 9/13/23 to remove a very large grade 1 left side meningioma. I..." + (show)
@mamaseta

I had surgery on 9/13/23 to remove a very large grade 1 left side meningioma. I was very anxious too but everything went very smoothly and they got it all. I had my three month follow-up MRI and everything is healing well. I’ll pray for you and giving you virtual hugs!

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Thank you for your reply. This helps me.

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birdie1234 | @birdie1234 | Feb 8 11:29am
In reply to @mamaseta "I had surgery on 9/13/23 to remove a very large grade 1 left side meningioma. I..." + (show)
@mamaseta

I had surgery on 9/13/23 to remove a very large grade 1 left side meningioma. I was very anxious too but everything went very smoothly and they got it all. I had my three month follow-up MRI and everything is healing well. I’ll pray for you and giving you virtual hugs!

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to Mamaseta.........did you have your surgery at Mayo and if so which one?

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1 reply
mamaseta | @mamaseta | Feb 9 5:47am
In reply to @birdie1234 "to Mamaseta.........did you have your surgery at Mayo and if so which one?" + (show)
@birdie1234

to Mamaseta.........did you have your surgery at Mayo and if so which one?

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Yes, at Mayo Clinic in Rochester.

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1 reply
birdie1234 | @birdie1234 | Feb 9 10:00am
In reply to @mamaseta "Yes, at Mayo Clinic in Rochester." + (show)
@mamaseta

Yes, at Mayo Clinic in Rochester.

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Thank-you!!

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