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Autoimmune hepatitis.

Posted by chopin002 @chopin002, May 23 3:16pm

Diagnosed with autoimmune hepatitis .
Already have PMR , GCA, and Graves’ disease.
Taking a pass on treatment. The drugs sound worse than the condition and I am 71 years old. I believe 5-10 good years better than 10-20 poor, sickly years. Any try AZA without side effects. Already taken prednisone for 7 years and finally down to one mg. Staying there.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

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maize | @maize | Nov 9 12:25pm
In reply to @maize "I was also diagnosed autoimmune hepatitis Jan 2024. I'm on Cellcept. From what I've been told..." + (show)
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I was also diagnosed autoimmune hepatitis Jan 2024. I'm on Cellcept. From what I've been told Cellcept is one of the better meds without TOO many side effects. I did go through several months of migraines, which did subside, and my hair is thinning. My feet, ankles do swell, and I get bloated, although I think that has to do with the liver, like severe itching (only at night). In spite of side effects, I have to say my blood work has been good so I work through it. The dark urine and jaundice is gone. The pharmacist said a lot of these side effects lessen as your body adjusts to meds. I hope so.

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@maize I was diagnosed November 2023. I had and have the same side effects/symptoms. The migraines did finally subside, dark urine and jaundice gone. My dosage was reduced from 360 2x daily to 180 2x. Still get swollen ankles and bloated and itching, oh the itching at night. I think my hair thinning almost bothers me the most. I'm having less side effects on lower dosage especially not nauseas all the time. My levels are good, but if my blood work goes up then I'll have to go back to higher dose. As my dad used to say, "you have to live with acceptance." I'm trying.

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steph740 | @steph740 | 3 days ago

I have Autoimmune hep since 2006, been on azathioprine since then. Never had any side effects. I'm currently on 200mg daily. I usually do no have side effects from any drugs. Sorry your going thru that.

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Becky, Volunteer Mentor | @becsbuddy | 2 days ago
In reply to @steph740 "I have Autoimmune hep since 2006, been on azathioprine since then. Never had any side effects...." + (show)
Profile picture for steph740 @steph740

I have Autoimmune hep since 2006, been on azathioprine since then. Never had any side effects. I'm currently on 200mg daily. I usually do no have side effects from any drugs. Sorry your going thru that.

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@steph740 Welcome to Mayo Clinic Connect. I’m glad that you found this site! You say that you have autoimmune hepatitis and have had it since 2006. Several discussions are currently
https://connect.mayoclinic.org/discussion/autoimmune-hepatitis-10/
Taking place on Connect. The above is current now and I’m sure they would love your joining them.

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