Hippocampus tumor

I purchased Tyler CBD oil and sent it to him. He says it has not helped with pain or seizures. He is now using morphine but going off it one week each month as advised by his healthcare professional to give his body "a rest". There must be something else we can try! I can't bear to hear him in pain and he still refuses to see me. I have asked him for a photograph- maybe one with some of the Christmas gifts I sent- but he says no. I think his appearance must be changing and he just doesn't want me to know.

Patti, this must be so difficult for you to not be able to help your son. My heart goes out to you and I wish you strength.

Hi patti my name is chris . I too have a benign tumor/ whatever it is .. in the middle of my right hippocampus. They first found it in 2007. I also have epilepsy. The doctor said it might be because of this benign tumor. same thing here they told me that they couldn't get a biopsy cuz it's too dangerous. I'm also in watch you wait. The size of 5mm. I get a M r i every 6 months. the biggest thing is I have short term memory problems. I learn to live with it. that's about all I can do.

Chris, thank you for your reply. I'm sorry to hear of your tumor. I will be thinking of you and will always appreciate anything you can share. Tyler recently totaled his car- he shouldn't have been driving anyway. He had a new MRI on Friday and should hear the results on Tuesday. He refuses to apply for SS Disability so I'm very concerned with how he will live when his short term expires. Maybe that will be what it takes to bring him home.
I pray for your health and happiness. Patti

So sorry to hear the news. I hope hes alright.

Chris, how are you doing? It's been a while since I've heard from you. My son has moved home to live with me.

Sorry I haven't been to this site in a while. I think it's great to be able to be with your son. Lifes been the same for me. As long as I can remember how to get dressed for work in the morning. I'm still able to drive. I Haven't had any major seizures since my dr. Uped my med by 50mg. I hope your son stays strong. He sounds like a real nice person.

Hello, @pattiboatwright - thinking of you. How is you son doing?

@chris70l - how are you doing? Have you had any additional seizures?

He has done better since being prescribed Lamictal ER. We are so grateful for this. He was also finally approved for disability after 3 years. It began in March and his Medicare will begin July 1. Sadly, here in AL, the only supplemental policy available to residents under the age of 65 (he's 35) is a BCBS policy that doesn't cover this med. We can file for an exception in July and pray it is approved so it's affordable.

I know I’m very late, but I have the same thing going on- sort of. I’ve had two brain tumours in the past that were removed along with a partial lobectomy for seizures, but now after 5 years they found a tumour in my hippocampus. They can’t biopsy it and they can’t do the LiTT because it’s too dangerous. They said much can’t be done because I’ve already had a lot of surgery- and having my amygdala removed would make it harder to touch my hippocampus. I’m heart broken because this started when I was 12 and I’m 25 now. Do you think this surgeon would help me? (I’m from Canada)