Hippocampus tumor

Posted by pattiboatwright @pattiboatwright, Mar 17, 2017

My 31 year old son was diagnosed Nov. '16 with a temporal lobe tumor by MRI. Further testing shows it is also in his hippocampus. He has had neuropsych testing and WADA test at UCLA Brain Tumor Center. He has been told the location makes it too dangerous to biopsy so we don't know if it's benign or malignant. He suffers seizures and is taking Aptiom in an effort to control them. He also has major depression, anxiety and headaches. His team says any procedure including LITT would present more collateral damage than value to his life. Can anyone here comment? Do we need to be doing anything else? They want him to "watch and wait" and return for an MRI in June to see if it's growing. I'm just terribly uneasy about this whole situation. Perhaps this is the best approach but I'm 3000 miles away from him and struggling with "doing nothing". Thank you for any replies.

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@jessoneill

I know I’m very late, but I have the same thing going on- sort of. I’ve had two brain tumours in the past that were removed along with a partial lobectomy for seizures, but now after 5 years they found a tumour in my hippocampus. They can’t biopsy it and they can’t do the LiTT because it’s too dangerous. They said much can’t be done because I’ve already had a lot of surgery- and having my amygdala removed would make it harder to touch my hippocampus. I’m heart broken because this started when I was 12 and I’m 25 now. Do you think this surgeon would help me? (I’m from Canada)

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Welcome, @jessoneill. I'm tagging @jkenser to make sure she sees your post and question.

Jessoneill, that is hard news to hear from your specialists that not much can be done. If you would like to get a second opinion with Mayo Clinic experts, you can submit a self-referral (even as a Canadian). To submit a request, start here: http://mayocl.in/1mtmR63 Be sure to mention the Brain Tumor 48-hour Access program.

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