How do you manage neuropathy and loss of balance and walking ability?

@suetex Water aerobics aka water physical therapy. Find a physical therapy place that has a pool. They do exist. I did a year and a half of water physical therapy. They have a tread mill and a camera where there can watch you walk under water and make adjustments to how you walk. Plus if you fall less likely to fall. The water helps with the balance and dizziness. I also Amon panzyga IVIG. It makes a huge difference in balance. I have a son in a motor cycle accident. And about the third week I start loosing my balance in trying to help get him dressed fed and up. I am asking my doctor to change it from every four weeks to every three weeks.
I noticed yesterday that I was having problems with my feet and hands swelling and hurting to walk.

@artemis1886 Please tell me what is Amon panzyga IVIG? Is it a treatment or a prescription? I have PN with major issue as loss of balance with minimal pain flashes, but definitely foot issues and some finger issues just starting.my neurologist who diagnosed me a few years ago has said that she can do nothing for me. Comments welcome. Pam Manson

Panzyga IVIG - Intravenous Immunoglobulin Infusion
Therapy- It is an iv medication for neuropathy.
PANZYGA (Immune Globulin Intravenous [Human] - ifas) is indicated for the treatment of primary humoral immunodeficiency (PI) in patients 2 years of age and older; this includes, but is not limited to, congenital agammaglobulinemia, common variable immunodeficiency, X-linked agammaglobulinemia, Wiskott-Aldrich syndrome, and severe combined immunodeficiencies; chronic immune thrombocytopenia (cITP) in adults to raise platelet counts to control or prevent bleeding; and chronic inflammatory demyelinating polyneuropathy (CIDP) in adults to improve neuromuscular disability and impairment.
https://panzyga.pfizerpro.com/?cmp=141595786018&utm_source=GOOGLE&utm_medium=paidsearch&pid=Brand&utm_term=ivig%20panzyga&network=g&gclsrc=aw.ds&gad_source=1&gad_campaignid=18142570265&gbraid=0AAAAAozxy1vRobL1EiUt1Ai0gUEeV-5rB&gclid=EAIaIQobChMI8pivi73UkAMV5W9_AB022zVeEAAYASAAEgJxyfD_BwE

@artemis1886 Do you know if your problem is autonomic in nature? Your situation must be very frustrating, to say the least.

Exercising & working on leg strength helped me a huge amount. Before I started hitting the gym 5 days a week. I fell quite a few times. I do weights Monday, Wednesday & Friday. Tuesday & Thursday are Cardio. I started last November & have missed very few days. I have not fell down this year. Our yard is on a pretty steep ground & uneven working on is a challenge.
You have to put in the sweat time to make it work for you.
I hope this help anyone that try’s this.

@suetex I was on IVIG from age 10-18 until I fell off my parents insurance. I quit getting sick all the time. I have asthma and kept ending up in the hospital with pneumonia. I had to repeat second grade.
My immune system has always been impaired. In 2005 hospitalized four times with pneumonia. I was told by Dr Oaklander (a research neurologist in Boston) that I would not be in as bad shape as I am if I would have remained on IVIG. I have Lupus, Sojourn, Hashimotos, and connective tissue disease as far as neuropathy I have small fiber neuropathy, disautonomia, severe axonal sensorimotor peripheral poly neuropathy along with cardiac autonomic neuropathy my heart beats too fast (tachycardia)or too slow (bradycardia). I also have problems with arrhythmias. My BP will be high or low which ever it wants to be. I also have pericardial effusion. Mine could very well be autonomic by nature. I found out by a neurophysiologist that my lupus, sojourn, Hashimotos and connective tissue disease could be linked to my mrsa bacterial spinal meningitis I had in 2002. My bacterial spinal meningitis was a staph infection. The only problem with that theory was why was my immune system so low when I was young that I was on IVIG.

@holdrege I love doing water aerobics and I do wear water shoes. It is great input for your feet.

@frankmoore Great routine. I do about ten classes a week; a variety of cardio and strengthening. In your yard, you could use walking sticks.

@pnpam75 Panzyga IVIG is usually for CDIP. Most of us don't have this type of neuropathy. There is also Hytrulo by VyVygart, a new drug recently approved by FDA for CDIP. Unfortunately there are no similar drugs for the rest of us.

This scares me because my equilibrium has been off lately. Constant pins n needles in 2 of my left hand fingers. Sometimes wind can be painful to my skin.