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How do you manage neuropathy and loss of balance and walking ability?
Neuropathy | Last Active: Feb 28 2:18pm | Replies (297)Comment receiving replies
@pnpam75 Panzyga IVIG is usually for CDIP. Most of us don't have this type of neuropathy. There is also Hytrulo by VyVygart, a new drug recently approved by FDA for CDIP. Unfortunately there are no similar drugs for the rest of us.
Replies to "@pnpam75 Panzyga IVIG is usually for CDIP. Most of us don't have this type of neuropathy...."
@moorethrpy IVIG can also be used off label. For example I have lupus and IVIG is used for lupus. It can be used for motor neuropathy which I have. IVIG can be used for peripheral neuropathy the like is below
Severe axonal sensorimotor peripheral polyneuropathy
Small fiber neuropathy
Dysautonomia
Cardiac autonomic neuropathy- electrophysiologist said it Could be used to that.
My neuropathy is autoimmune caused by lupus, Sjogrens, Hashimotos and connective tissues disease.
https://www.foundationforpn.org/treatments/
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@moorethrpy Sorry- I still don’t understand what Panzyga IVIG is. My major effect from PN is severe imbalance. Also what is Hytrulo by VyVygart. I am in Canada.
I also do not know what the abbreviation CDIP means. Please help. I do not know anyone else who has PN who could answer these questions that I have. Thank you. Pam Manson