Third month of Camzyos my ef dropped to 30-35. At what point do they

@mbi Hi, good info to know! Did you start out at Mayo in Rochester? Or transfer there? I live near Tucson and am trying to decide what to do. My cardiologist wants me to try Camzyos first, but it's been a battle to get everything approved. Surgery option would have been done by now!

@elaine6415
I got a second opinion after my first Cardiologist recommended
Camzyos. The warning about heart failure scared me. So I went to Mayo in Phoenix for second opinion. His name was Dr. Cannon. He referred me to Mayo in Rochester, Minnesota. And wanted me to see Dr. Dearani.
So thankful to have the extra heart muscle removed. I’m hoping it makes a huge difference this summer when I go hiking with my friends. Maybe they won’t need to stop with me every 5 minutes going up hill.
Dr Dearani said I should be fine next summer.
Good luck in whatever you choose to do. The whole process is scary.

@pga17 So will you be getting the septal myectomy surgery?

@elaine6415
I got a second opinion after my first Cardiologist recommended
Camzyos. The warning about heart failure scared me. So I went to Mayo in Phoenix for second opinion. His name was Dr. Cannon. He referred me to Mayo in Rochester, Minnesota. And wanted me to see Dr. Dearani.
So thankful to have the extra heart muscle removed. I’m hoping it makes a huge difference this summer when I go hiking with my friends. Maybe they won’t need to stop with me every 5 minutes going up hill.
Dr Dearani said I should be fine next summer.
Good luck in whatever you choose to do. The whole process is scary.

@mbi I am not able to hike any more unless it's on flat level ground. Any bit of an incline and I have to frequently stop to catch my breath. I hate it. Going up stairs is no fun. Thanks for the info; Mayo in Phoenix is my next step!

I’m not sure at what point they do surgery, but I decided to skip everything and go right to a septal myectomy. I just wanted to be done with everything and avoid all the monitoring that came with Camzyos.
I had my surgery on September 26th at Mayo in Rochester, Minnesota. My surgeon was Dr. Dearani and he was amazing. Was out of the hospital in four days. I’m supposed to walk every day to build up my strength, as Medicare wouldn’t cover Cardiac Rehab. So I walk 4x a day and add a bit more every 3-4 days. Yesterday I had 6500 steps.
Today, I’m a bit tired today, so will only go 3x. I pace myself, as my heart is healing and I listen to my body.
If you ever need surgery, it’s not as bad as it sounds. Not so much pain, but lots of fatigue the first week.
I hope this helps. God Bless.

@mbi thank you for your response. My Basel septum is 1.8 how did yours measure?