Oral Lichen Planus, how are you coping?

Posted by zinnia55 @zinnia55, Oct 19 6:43pm

I was diagnosed with erosive OLP in May. I have drastically changed my diet and bevergaes. What happens when you get sick like a cold or flu does it cause a flare? How do you keep a strong immune system when its attacking you? Any coping mechanisms, tips , tricks or advise welcome. Also is anyone in a clinical trial?

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Hi the biopsy was at an oral surgeon's office On the bottom lower outer cheek next to gum 2 stiches that were dissolvable. It took about 7 days for them to get out of my mouth. The doctor was very good and they numbed the area and it was quick. It was more painful the 2nd day, mostly just sore. It did not cause an OLP eruption of any kind which was great and surprising. Let me know if you have any other questions. Have a good day!

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Hi all, just checking in to give an update on this hateful disease. I found a great dermatologist who put me on liquid dexamethasone (swish and spit) and tacrolimus ointment 2 x a day. My mouth has really cleared up except for a few stuborn spots. It has been exactly 3 weeks. I am really happy with the results and scared to death about when I stop using these meds. The dermatologist said the idea is to put it to sleep and not wake it up. My GP suggested looking into a very low dose of naltrexone, it would be an off lable use based on its antiinflammatoey properties. Anyway has anyone heard of this or tried it?

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