Family and friends deny long covid
Most of my family and a few friends, including a couple of MD’s, think that I either don’t have long covid or that I have a serious issue (such as dementia) also. I have had this for more than a year and have many signs: brain fog (worst), headaches, sinus congestion, sleepiness inappropriately, weird repeated dreams, and more. There are no significant clinics within a two hour drive. Can anyone name a place where I can at least get a diagnosis? The neurologist where I live blew me off. I’m in the old range but relatively in pretty good shape except for LC. Thanks to all of you who are presenting this opportunity to get help and information. @suefish
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@pdoubrava @suefish here. I feel and have felt your pain. Thanks for sharing.
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1 Reaction@suefish right back atcha my fellow LC warrior xxxooo
@pdoubrava @suefishalow hanging in, despite those who think I’m just crazy.
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2 ReactionsI have had Long Covid for 5 years. My Internal Physician, my Gastrologist, my Cardiologist all ignored me. My daughter and Sister think I am faking it. Everytime I asked them about LC they brushed my concerns aside saying that I was just aging badly. I researched online and found a Covid Recovery Clinc and insisted my Physician write a referral. That's why I love this group.
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3 Reactions@dfranzen @suefish I’m about in your same place — just somewhat fewer years on Long Covid. My husband tells me I’m getting dementia and that just makes it worse. Where’s your Recovery Clinic?
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1 Reaction@suefish There are two here in Cleveland - Cleveland Clinic and University Hospitals. I got a referral to UH but I had to fight for it. A big symptom of Long Covid is brain fog. Hang in there !
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1 Reaction@suefish I refuse to give up.
@dfranzen I’m ready to hang from a tree branch by this time!! Good wishes to you!!
@suefish Thanks to all of you who write here for helping me understand it all. 🙂
@dfranzen sending u tons of love and good healing energy. Advocating for urself is the only way to get help. There is help out there but u have to seek it. If the Bateman Horne Center guide for medical professionals was distributed as a national initiative and each state had a task force with the power to educate about LC and set up just one center for LC where everyone that is diagnosed can get the same testing and analysis, an awesome database would be created. Let AI look for the biomarkers that they have insisted they needed to even start to care. Lol i doubt there is just one biomarker since there are 4 subtypes of LC. Interesting fact though, dogs have proven to be able to detect LC in humans. Does that keep open the possibility that there is one biomarker? Dogs can smell cancer no matter what type it is. I had a dog named Bentley earlier in my LC when i was literally at heavens gate with the vibrating in abdomen at a nightmare level. I kept saying to the ER drs, why cant u hear it, my dog can hear it. Lol my dog never left my side and he was obsessed with my abdomen. His head was always rested on it and he would sniff and look at the area suspiciously. I wish i had him still.