Prolia treatment for osteoporosis: What is your experience?

@lexusgs300 Osteostrong sounds potentially interesting but there are none anywhere close to me. If there was one I would consider using it along with one of the drugs. I have two excellent endocrinologists and I trust them, along with a good friend who is a retired gynecologist who has his wife on Reclast, and my PCP, whose mother is on Reclast. I think for most people the drugs along with exercise and diet provide the best results. I have had a fracture and do not want a second one.
JK

@contentandwell It makes me feel a little better to see these comments about Reclast as I may be getting an infusion in the summer.

@sue225 I am waiting until I am beyond an MRI I have to have in April for something else. If all goes well with that I will do Reclast. The problems with it are far fewer than the potential of a broken bone, but even so, it is unnerving knowing it can cause other problems. Almost every drug can cause other problems too though. For instance, the darned prednisone I have to take has caused osteoporosis. Am I nervous about it? Of course.
JK

I've just joined and appreciate reading through some of these posts. A few people have indicated they have decided to stop taking any meds. That's what I'm planning to do. I'm glad to hear there are others! I'm stopping fosamax. (I have only taken it for a few months.) I've done more reading about how it affects bones. Some of you have mentioned these issues. I have celiac disease, dx 15 years ago, that's why I have the osteoporosis. I exercise 5x a week and beginning to finally do strength training. I take calcium, magnesium and Vitamin D3. When I first saw my doctor to decide what I should take she told me, 'the most important thing is to see that you don't fall, more important than taking the medicine'. I take that to be aware, keep up with exercise, work on balance, etc.

Welcome @joy4trees, to Connect and to this timely, complex and important discussion of bones and how they need some help as they grow old with us. Our mission is to improve the quality of all of our members' lives. Since you have been reading posts on this issue, do you have a sense of what all of your options are and where they might fall on a risk analysis chart?

Your plan is to avoid medication. If that is your choice may I introduce you to my friend Debra Rose, the author of "Fallproof". You can find the book on Amazon. Debra is a professor of kinesiology and a noted trainer of physical therapists in how to help us learn how not to fall. ( She actually is a friend.)

And I remember that the surgeon who performed my reverse shoulder replacement told me as I walked out the door....."don't fall, Chris, I can't fix you."

Please let us know of findings and thoughts that might help others.
Be safe and protected.
Chris

Thanks, I've not heard of 'Fallproof'. Sounds like a good resource.

Good evening. I wanted to make sure that you all had this information. Connect has a new group: COVID-19. The information is timely and reputable. There are some amazing exchanges of things to do to fill the hours, and the medical issues are well covered. Here is the link.

https://connect.mayoclinic.org/group/covid-19/
May you be safe and protected from inner and outer harm.
Chris

@jaleen I had 6% improvement in my hip and 11% in my spine with Prolia after a little over one year. Apparently reason for big difference is one type of bone is trabecular and other is cortical. According to the endocrinologist, that was an excellent result.

Wonderful news. Was that after 2 injections for the 1 year ? What else were you doing along with the Prolia....type of supplements. Please advise what your endocrinologist directed you to do. I'm about to get my 3rd prolia in April 2020.

@jaleen My endocrinologist told me to take 2000i.u. of Vitamin D per day and to try to get my daily calcium requirements from food (I know I don't so have started to take small amounts of calcium supplements). She also recommended exercise ( failing in that regard). I should point out that I am now 65, and had not had any fractures prior to starting medication and I believe my numbers were a little worse than yours. And, yes, that improvement was after two injections.