Prolia treatment for osteoporosis: What is your experience?

@jmweissler eventhough I am seriously considering not having anymore Prolia injections due to side effects, I do not regret giving it a go. My fear of fractures is still stronger than my fear of the drugs. I have a feeling Forteo will be the next one for me. I like the fact that its daily so if the side effects are intolerable you can just stop.

@jmweissler eventhough I am seriously considering not having anymore Prolia injections due to side effects, I do not regret giving it a go. My fear of fractures is still stronger than my fear of the drugs. I have a feeling Forteo will be the next one for me. I like the fact that its daily so if the side effects are intolerable you can just stop.

@jmweissler Sounds like you have been battling osteoporosis for quite a while now. What treatments have you been on prior to Prolia, and did you have any disagreeable side-effects? There are many here, myself included, who are struggling with the question of what to do. I am 95% certain that I will go one of these drugs but I need to do more research to decide which. My endo suggested Reclast. I won't do anything until after April because I have a couple of other things I want out of the way first.
I, and I am sure many others, would really love to hear side-effects and also what if any positive effects you got from the various treatments. Osteoporosis is so much more threatening than I ever realized before. ☹️
JK

My understanding is that Prolia is the “latest & greatest”. I have been on Forteo (daily injections into abdomen), Reclast (~1hr infusion once a year) & now Prolia (injection into abdomen 2x a year). It’s impossible for me to tell if I have pain side effects due to all my “normal” pain. I have NOT had any bone cancer related issues. BTW - since osteoporosis was discovered in 2008, my score has gone from -3.1 to -4.4. None of these treatments are a miracle drug but I will continue to try every Medically approved treatment available.

If anyone believes it is better to have a fracture then to take a medication that will hopefully keep you from fracturing a bone bc of a minimal risk of side effects, my opinion is that U really need to sit down and think about it. Fractures can lead to surgery, which may lead to infection & pain. That’s a certainty. Hope this helps in any way & that I did not offend anyone. 🙂

My understanding is that Prolia is the “latest & greatest”. I have been on Forteo (daily injections into abdomen), Reclast (~1hr infusion once a year) & now Prolia (injection into abdomen 2x a year). It’s impossible for me to tell if I have pain side effects due to all my “normal” pain. I have NOT had any bone cancer related issues. BTW - since osteoporosis was discovered in 2008, my score has gone from -3.1 to -4.4. None of these treatments are a miracle drug but I will continue to try every Medically approved treatment available.

If anyone believes it is better to have a fracture then to take a medication that will hopefully keep you from fracturing a bone bc of a minimal risk of side effects, my opinion is that U really need to sit down and think about it. Fractures can lead to surgery, which may lead to infection & pain. That’s a certainty. Hope this helps in any way & that I did not offend anyone. 🙂

My understanding is that Prolia is the “latest & greatest”. I have been on Forteo (daily injections into abdomen), Reclast (~1hr infusion once a year) & now Prolia (injection into abdomen 2x a year). It’s impossible for me to tell if I have pain side effects due to all my “normal” pain. I have NOT had any bone cancer related issues. BTW - since osteoporosis was discovered in 2008, my score has gone from -3.1 to -4.4. None of these treatments are a miracle drug but I will continue to try every Medically approved treatment available.

If anyone believes it is better to have a fracture then to take a medication that will hopefully keep you from fracturing a bone bc of a minimal risk of side effects, my opinion is that U really need to sit down and think about it. Fractures can lead to surgery, which may lead to infection & pain. That’s a certainty. Hope this helps in any way & that I did not offend anyone. 🙂

We’re the Forteo injections hard to give yourself? Just not sure I could do it every day. Painful?

@jmweissler You most definitely did not offend. Your comment about fractures needs to be out there. It is my biggest fear to fracture a hip and lose my independence. Prolia has been around since 2010 and Forteo since 2009.
Since being on Prolia, my bone density has improved significantly in a short period of time. What I find weird about this drug is the fact that should you stop using it , you lose everything you gain quickly and unless you replace with another med you risk having those rebound fractures.
If I didn't have the side effects I'd still stay on it. Forteo has that 18month limit, but who knows maybe there will be something else in the pipeline soon.

@jmweissler Sounds like you have been battling osteoporosis for quite a while now. What treatments have you been on prior to Prolia, and did you have any disagreeable side-effects? There are many here, myself included, who are struggling with the question of what to do. I am 95% certain that I will go one of these drugs but I need to do more research to decide which. My endo suggested Reclast. I won't do anything until after April because I have a couple of other things I want out of the way first.
I, and I am sure many others, would really love to hear side-effects and also what if any positive effects you got from the various treatments. Osteoporosis is so much more threatening than I ever realized before. ☹️
JK