If get MAC a second time, how is it treated? What did you do?
Hello - this is Pam in Sudbury, MA. This group has been very helpful to me over the years since I joined and I now have a question which someone out there might be able to help me with:
I was diagnosed with MAC in 2015 and went on the 18 month regimen of the Big 3 antibiotics. It did clear up the MAC but ever since I have regular episodes of Pseudomonas which I knock back with Levofloaxin for two weeks. I was just told that a sputum sample sent off some months ago has come back with a positive for MAC again. Of course this is very discouraging though I was told we never really get rid of MAC; it is always there, waiting to come back at some point. Has anyone in the group had this experience of getting it a second time? The odd thing is has to do with coughing. I am not coughing at all. When I was diagnosed in 2015 I was coughing my lungs out, and had been for several years. So now they say the MAC showed up in the sputum sample but I am not coughing. Is this typical? If you did get MAC a second time, how was yours treated? I have made an appt to see an infectious disease specialist for MAC but could not get an appt until January. My lung doctor wants her to decide how to best treat me. In the meantime, I wonder about others who may have contracted MAC for a second time and how they dealt with it. Thank you, Pam
Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
Pam, I'm very sorry you have become positive again. Would it be possible for you to copy this and put it in a new thread with "recurrent MAC" or "MAC for second time" in heading. I'm afraid you won't get responses in this thread about the ABC's which will be heading members will see. I know it has happened to members and think they'd be happy to help, but I can't move it.
@colleenyoung, can you?
@pamelasc1, as @pacathy suggested, I moved your question about dealing with MAC a second time into a new discussion. You may also be interested in these related discussions:
- Bronchiectasis and staving off recurrent infections https://connect.mayoclinic.org/discussion/bronchiectasis-and-staving-off-recurrent-infections/
- MAC again https://connect.mayoclinic.org/discussion/mac-again/
- Second time treating and second time losing hair! https://connect.mayoclinic.org/discussion/second-time-treating-and-second-time-losing-hair/
Thank you Colleen for moving my questions to the right spot. Hopefully I will get some helpful responses. And thank you for the links too! Pam
Hello Pam. I live is southern NH and am wondering if you would share the name of your ID doc who has experience with MAC. I am on the schedule to be seen at the BE/ MAC program at MGH but not until May.
Thank you and all the best going forward.
Kris