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Cerebral Small Vessel Disease - How are you coping?

Posted by sue60 @sue60, Apr 11, 2016

I have vascular small vessel disease that so far just has caused a severe loss of balance. I walk with a cane, but it is getting harder. Likewise exercise is not easy. I still drive short distances. I feel perfectly normal lying down and it is so much easier to do that. The sad part is I don't really see anything that is going to end this as otherwise I am healthy. I know there are many worse things. Does anyone else have this and how are you coping?

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4leigh | @4leigh | Oct 20 8:11am

I’ve just learned I had this diagnosis a week ago. I’ve been short of breath and my walking distance has been where I have to stop to regather myself if winded, then suddenly my gait is becoming notably different. I’m slower and seemingly more likely to become imbalanced. Feels really odd but at times I feel like I need a walking stick or something for balance

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tc1945 | @tcainaru | Oct 20 1:21pm
In reply to @4leigh "@tcainaru this is all new to me.. but yes I have been light headed, short of..." + (show)
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@tcainaru this is all new to me.. but yes I have been light headed, short of breath and my walking seems to has become more difficult..

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@4leigh what did your Dr tell you to do with this disease or diagnosis? This weakness, lightheadedness and physically i have lost strength also from this disease

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