1. < Osteoporosis & Bone Health

Prolia treatment for osteoporosis: What is your experience?

Posted by Veruska @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

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lioness | @lioness | Feb 24, 2019
In reply to @susan30 "Thx for your comments ..... Diagnosed 2 mos ago with Osteoporosis. GP dr suggested Prolia. Have..." + (show)
@susan30

Thx for your comments ..... Diagnosed 2 mos ago with Osteoporosis. GP dr suggested Prolia.
Have taken calcium w mag / zinc/ D3 for years. I started taking Algae Cal (4 gel caps a day) ordered out of Vanc BC (has boron & K2 in it). Has good reviews re helping building bone density.
I also have microscopic lymphocytic colitis diagnosed 1 yr ago - gastro doc put me on Budesonide 8 wks on / 8 off. Then switched me to Azathioprine at the lowest dose. In my research I read those RXs thin bone density. I'm off the Azathioprine by choice. Those 2 RX's calm the bad diarrhea that comes with Colitis. Up until taking those RXs I had pretty strong bones. I'm in ND so only 2 Endocrinologists are in the state 400 miles away from me so I'm looking to go to Billings MT to meet with an Endo dr there & get their opinion how to cope with Colitis & my diagnosis of Osteoporosis. They fight against each other if I stay on Budesonide & try to build bone density at the same time....grrrr

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@susan30 Sounds like a smart move . You are your own advocate and sounds like you are good . We know our bodies better then anyone so keep advocating. Going to the endo is a good choice.

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TERESA LOGAN | @quiteachiver75 | Feb 24, 2019
In reply to @susan30 "What was your T-score when you had your 1st Prolia ?....and T-score after 6 yrs ?..." + (show)
@susan30

What was your T-score when you had your 1st Prolia ?....and T-score after 6 yrs ?
I'm troubled about taking Prolia....so many have had problems & yet many claim its helped their bone density.
My hip is -2.9

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I have had three injections of Prolia with no side effects my bones are very good. Good luck

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Feb 24, 2019
In reply to @user_chf56161a "I had no side effects. I got a shot every six months. It did me no..." + (show)
@user_chf56161a

I had no side effects. I got a shot every six months.
It did me no good. My Dexascan is worse. 6 years on Prolia. The Drs are testing me to why I don’t absorb vitamin D. Best of luck.

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@user_chf56161a
I am interested in knowing what types of tests are being done to determine why you don't absorb Vitamin D?

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lippemouse | @lippemouse | Feb 27, 2019

I am taking Fosimax. Is anyone taking this?

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1 reply
susan30 | @susan30 | Feb 27, 2019

How long have you been taking Fosamax & have you had a Dexascan after taking it to show if it helped build bone density?

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lippemouse | @lippemouse | Feb 27, 2019

I have been taking it less than a year. I have been told that I should/can take it for three years. I had not heard of Forteo or Prolia.

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1 reply
susan30 | @susan30 | Feb 28, 2019
In reply to @lippemouse "I have been taking it less than a year. I have been told that I should/can..." + (show)
@lippemouse

I have been taking it less than a year. I have been told that I should/can take it for three years. I had not heard of Forteo or Prolia.

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What was your T-score on your Dexascan?
I asked that because I'm wondering if a person doesnt have a high T-score maybe thats why a Dr would put a patient on Fosamax.

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susan30 | @susan30 | Feb 28, 2019
In reply to @mabel343 "A T-score of -2.5 or lower qualifies as osteoporosis. A T-score of -1.0 to -2.5 signifies..." + (show)
@mabel343

A T-score of -2.5 or lower qualifies as osteoporosis. A T-score of -1.0 to -2.5 signifies osteopenia, meaning below-normal bone density without full osteoporosis, so looks like you are right on the line. In addition to Calcium and D, I take Magnesium, Vitamin K2-4 and Boron. all important for calcium absorption. I couldn't find K2-4 on the shelf at the drugstore, but it was available on Amazon. Did you join "Osteoporosis: Myths & Facts" on Facebook? Just relax for now and absorb as much information as you can. It can be confusing, but in time you will be able to make some sense of it all.. There are also good sources of exercises for osteoporosis on YouTube, particularly a couple of physical therapists who not only know what they are doing, but they are also funny.

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I haven't heard of vitamin K2-4.
I take one K2 vitamin daily (100 mcg) but I dont know what k2-4 is.

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bonnieh218 | @bonnieh218 | Feb 28, 2019
In reply to @lippemouse "I am taking Fosimax. Is anyone taking this?" + (show)
@lippemouse

I am taking Fosimax. Is anyone taking this?

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@lippemouse I was taking Fosamax but my GI doc took me off after I developed reflux disease.
I don’t know that this actually caused the reflux disease but GI said Fosamax can irritate the esophagus. Did you weigh side effects with your doctor?

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