1. < Osteoporosis & Bone Health

Prolia treatment for osteoporosis: What is your experience?

Posted by Veruska @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

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bonnieh218 | @bonnieh218 | Dec 20, 2018
In reply to @ladonnae "I recently found out that I have Osteopenia, -2.2, and my doctor had recommended Prolia. My..." + (show)
@ladonnae

I recently found out that I have Osteopenia, -2.2, and my doctor had recommended Prolia. My insurance would not pay for it so she then prescribed Boniva, orally. I took one dose and the next day had the worst back pain I have ever had. I will not take it again and after reading about Prolia I don't want to take it either. I am 61 and outside of living in Nebraska where we have ice quite often, I am going to take my chances and try eating more calcium rich foods and doing some weight excercises. I used to think that if a med could fix things I should go for it but I have experienced side effects more often lately and I am done with them!.

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@ladonnae has anyone ever mentioned Reclast to you? It’s a one time a year infusion for osteoporosis. I’ve had this infusion done for six years. Now I’ve been on a “vacation” from the Reclast for two years; so, I’ve not had the infusion or anything else for two years. It remains in your system for that time span. I’m fortunate in that I have no side effects. I’ve had no further bone loss and some small bone growth.
I’m 66 and live in MN with lots of snow and ice. This last year I’ve fallen twice where I was sure I’d broken my foot bones because of lots of pain. No breaks or even small cracks at all.
Maybe something worth checking into for yourself.

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dracena | @dracena | Dec 20, 2018

I had one shot of Prolia and do not recommend it. I could not get up off the sofa and had a hard time walking. I could only walk for a short distance and had to stop and sit down. My body ached for weeks after that shot and I think it is a dangerous drug.

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1 reply
dracena | @dracena | Dec 20, 2018
In reply to @ladonnae "I recently found out that I have Osteopenia, -2.2, and my doctor had recommended Prolia. My..." + (show)
@ladonnae

I recently found out that I have Osteopenia, -2.2, and my doctor had recommended Prolia. My insurance would not pay for it so she then prescribed Boniva, orally. I took one dose and the next day had the worst back pain I have ever had. I will not take it again and after reading about Prolia I don't want to take it either. I am 61 and outside of living in Nebraska where we have ice quite often, I am going to take my chances and try eating more calcium rich foods and doing some weight excercises. I used to think that if a med could fix things I should go for it but I have experienced side effects more often lately and I am done with them!.

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You are smart to avoid Prolia and focus on weights and walking.

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Linda | @llwortman | Dec 20, 2018

Bravo to you for being brave and sharing your feeling about Prolia being a dangerous drug! Together "We" can hopefully save others from the pain!

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Linda | @llwortman | Dec 20, 2018
In reply to @cherriann "Absolutely agree with you on all accounts! Great points in weighing the benefits of taking these..." + (show)
@cherriann

Absolutely agree with you on all accounts! Great points in weighing the benefits of taking these drugs or not taking them. Vitally important to consider that the side effects can be long-time or "life-long" even if you stop taking them!

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Great insights. Can you share "life long" information even if you stop taking them? I have asked doctors, "If there is an antidote?" They say, "No!"

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1 reply
Linda | @llwortman | Dec 20, 2018
In reply to @crenhov "Two months before I turned 50 I tripped and fell and broke my left wrist. Becuse..." + (show)
@crenhov

Two months before I turned 50 I tripped and fell and broke my left wrist. Becuse I had read an article in NPR, I inisisted on a Bone Density Scan. I live in Switzerland and my doctor here was not in agreement but I insisted. I was diagnosed with Osteoporosis and took Bonviva injections for two years. It got worse and I switched to Prolia. I just had my DEXA scan last week after two years on Prolia and there is improvement in my bone density... still Osteoporosis though. I am 54 now and in trying to get to the root cause have discovered Normocalcemic Hyperparathyroidism. In September I had to have my thyroid removed and one parathyroid. Now my parathyroid hormone is through the roof again am scheduled for a scan at the beginning of January hoping to find the troublesome parathyroid and have it removed. Hyperparathyroidism contributes to Osteoporosis. This was a long winded reply to say... so far, Prolia has worked for me and I have no side effects that I know of. At my age and the level of my Osteoporosis, I am trusting my specialist. It does worry me though that I can never go off of this sort of medication.

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Do you know what the side effects are 18 months after you stop taking this medication? Have you read the latest European report?

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dracena | @dracena | Dec 21, 2018
In reply to @llwortman "Great insights. Can you share "life long" information even if you stop taking them? I have..." + (show)
@llwortman

Great insights. Can you share "life long" information even if you stop taking them? I have asked doctors, "If there is an antidote?" They say, "No!"

Jump to this post

It has been about 4 years since I took the one Prolia shot and I still cannot walk as far as I used to and sometimes have to stop and rest.

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dracena | @dracena | Dec 21, 2018

I have not read the latest European report.

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lesleighjarrett | @lesleighjarrett | Dec 21, 2018

Can anyone post this report or direct people to a site?

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shazam1011 | @shazam1011 | Dec 22, 2018

I had 3 Prolia injections, one each year for three years. I had muscle aches and pains and with each injection I had an infection within that 6 month period that required antibiotic treatment. The doctor wants me to take these injections every six months now since the drug company has found out that 9 women experienced multiple spinal fractures when they stopped the Prolia. I am afraid to take any more of this medication because it seems to affect my immune system and now I am worried that I will have spinal fractures if I don't take it.

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