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Long COVID exists for 5+ years: Share what has or not worked for you

Posted by chuckstran @chuckstran, Oct 6, 2025

It is out of my skepticism and disillusioment that I have pro-actively sought the truth, and found much of it elsewhere than in conventional medicine's approach to dealing with my own long COVID.

That's what led me to this board, where I have learned much and have contributed what I can.

The medical community has been dealing with long COVID for five long years.

Isn't that long enough for treating brain fog and post-exertion fatigue with amped-up doses of creatine and L-glutamie to become widespread?

Isn't that long enough for using NAC, guiafeninsen, and/or mullien to combat the respiratory effects of long COVID to become widespread?

Are we left to trust our altruistic philathropic benefactors, such as Bill Gates, to back away from his moneychanging tables at Moderna and let us in on what is readily at hand that works? Or do big pharma, in league with power politics, have too big a grip on our healthcare?

My personal care physician is a good man, a good doc, and is doing the best he can. But even he and those like him have a big patch of tall weeds to find their way through, in searching for the truth which they in turn attempt to deliver to us. And he and others like him, along with some of us, have reason for our skepticism.

But in our skepticism we must press on, encourage one another, share what works and what doesn't, verify what is successful - and then trust.

Be strong, and of good courage. God has not forgotten us. Trust Him, hope in Him, and press on.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

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moecavicchi | @moecavicchi | Oct 16, 2025
In reply to @greenshade "@chuckstran Thank you. Very well thought out and presented. After five years of COVID and just..." + (show)
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@chuckstran Thank you. Very well thought out and presented. After five years of COVID and just as many of LC, the scientists and experts are still not certain what LC is. The symptoms, yes. But not the etiology. The prevailing theory is that after infection, some patients retain "reservoirs" of the virus that continue to manifest symptoms months, years, or ??? longer. But that is only one theory, as yet unproven. So I suppose it should be no surprise that the health care industry does not have a consensus on how to treat LC. I live in CA and have Kaiser Permanente Insurance. KP treats LC symptomatically. So, in my case, I have gone to different physicians for mood disorder, hearing loss, vertigo, sleep disorder, fatigue, and muscle and joint pain. That would be fine except for one overreaching problem. No one is coordinating. No one oversees all those involved. They all have access to the notes of the others, but there seems to be no "connecting the dots." I feel as if I am being treated as six different patients. Given that there are already millions of Americans with LC, you would think that there would be an effort for all the healthcare providers to unite and find a consensus on treatment. Frankly, what has helped me the most I have discovered through my own research. One useful resource comes from the Yale Medical School. They are conducting various studies on COVID and LC and learning much along the way. A Japanese American, Dr. Iwasaki, heads the studies, but there are many highly qualified people working on different aspects of them. They are one of the few credible sources that have acknowledged that the mRNA vaccines/boosters can result, in a subset of patients, in a setback of symptoms of LC. They are not anti-vaxers, but they do acknowledge the issue and substantiate it with data.

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