Prolia treatment for osteoporosis: What is your experience?

You definitely need a second opinion. If a endocrinologist is not easily available, I would make an appointment with another type of medical doctor and get their opinion. It sounds like you have lost confidence in your endocrinologist and it is important that one can trust and talk to whoever is managing your healthcare. I have had osteoporosis for many years and I see a doctor of internal medicine. I took oral medicine for over five years with little improvement in my numbers, and some disturbing side-effects. It has now been over five years since I made decision to stop taking osteoporosis drugs and I might add, I refuse tests to even check my numbers as I have no intention at this time of taking them again! I've felt much better the last five years since going off the meds. I eat a diet for good bone health, exercise, and watchful that I don't do activities that might compromise my bones. My bone health may or may not have improved, but I absolutely will not go back on meds again until there are "proven" better drugs on the market. I don't know how much pain or disability you have due to your osteoporosis, but if it isn't a huge problem, maybe stepping back from the osteoporosis meds for awhile and concentrating only on the treatment for your cancer would be something you could consider. Wishing you the very best, and also my prayers.

There has got to be a better endocrinologist for you! I live in CT and just found out that Yale has a bone center so I’m setting up a consult. Maybe look at the good hospitals in your area and get a referral. You shouldn’t be reduced to tears. You should be hopeful after a visit. Best of luck

You definitely need a second opinion. If a endocrinologist is not easily available, I would make an appointment with another type of medical doctor and get their opinion. It sounds like you have lost confidence in your endocrinologist and it is important that one can trust and talk to whoever is managing your healthcare. I have had osteoporosis for many years and I see a doctor of internal medicine. I took oral medicine for over five years with little improvement in my numbers, and some disturbing side-effects. It has now been over five years since I made decision to stop taking osteoporosis drugs and I might add, I refuse tests to even check my numbers as I have no intention at this time of taking them again! I've felt much better the last five years since going off the meds. I eat a diet for good bone health, exercise, and watchful that I don't do activities that might compromise my bones. My bone health may or may not have improved, but I absolutely will not go back on meds again until there are "proven" better drugs on the market. I don't know how much pain or disability you have due to your osteoporosis, but if it isn't a huge problem, maybe stepping back from the osteoporosis meds for awhile and concentrating only on the treatment for your cancer would be something you could consider. Wishing you the very best, and also my prayers.

Thank you!! I agree and am finally feeling more confident to stand up for myself. My Dr, is I believe just way overworked, and can't handle the case load. Its unfortunate.

I agree that you should stand up for yourself. I see a rheumatologist for my osteoporosis treatment. Maybe you can continue to look for potential doctors while completing your cancer treatment.

I, too, was concerned about the many side effects. I have been on Prolia for 2 years (ie. 4 injections) and have had no side effects. My latest bone density test showed an increase in density, which is the best part!

I have received 1 Prolia infusion and very much regret it. I started having pain in my hips and groin within one month and the pain then progressed to my shoulders and neck. Have had skin issues and mouth ulcers. My osteoporosis is a result of taking Anastrazol after my mastectomy. My current Oncologist has not been helpful as far as what I can do about my pain.