Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

I have had all the vaccine updates, all from Moderna, and have not noticed any side effects until this year, when 24 hours later I had a distinct progression of numbness in my feet which I still have a month later. This is how my neuropathy, diagnosed way before COVID, has always progressed, sudden progression. I don’t know if this is a coincidence or not and I will still continue to get vaccinated as I imagine having Covid itself will also worsen my neuropathy even more.

REPLY
Profile picture for serenafix @serenafix

I have had all the vaccine updates, all from Moderna, and have not noticed any side effects until this year, when 24 hours later I had a distinct progression of numbness in my feet which I still have a month later. This is how my neuropathy, diagnosed way before COVID, has always progressed, sudden progression. I don’t know if this is a coincidence or not and I will still continue to get vaccinated as I imagine having Covid itself will also worsen my neuropathy even more.

Jump to this post

@serenafix
Yes, After the 3rd Covid shot, I have had extreme numbness
and stiffness in my feet and lower legs, mostly in the evening for approx. 4 years now. I have gone through every conceivable treatment, taken large doses of gabapentin for years and nothing has changed. I have always believed that the booster shot (3rd shot) was the cause of all this grief. Has anyone found any treatment or relief yet?

REPLY
Profile picture for ograf49 @ograf49

@serenafix
Yes, After the 3rd Covid shot, I have had extreme numbness
and stiffness in my feet and lower legs, mostly in the evening for approx. 4 years now. I have gone through every conceivable treatment, taken large doses of gabapentin for years and nothing has changed. I have always believed that the booster shot (3rd shot) was the cause of all this grief. Has anyone found any treatment or relief yet?

Jump to this post

@ograf49 yes, I got PN after my 2nd Phizer Covid shot. Lots of folks have…..

REPLY
Profile picture for sue4 @sue4

@ograf49 yes, I got PN after my 2nd Phizer Covid shot. Lots of folks have…..

Jump to this post

YES!
One hour and forty-five minutes After the 2nd COVID VACCINE March 28 2021, I was unable to walk for 3 months. At first the doctors said it wasn't the vaccine, but after one year when the
next booster was being touted, my Primary Care Physician told me to Never take covid vaccine
with RNA again. My third Vaccine (for travel) was J&J. That was in 2022. I've not taken a vaccine since. My allergy doctor told me to try to get Nova-Vax which is a COVID Vaccine without
RNA, rather a protein compound similar to the flu shot we take every year.
Nove Vax is given around the world and all over the Caribbean. When I visited Sint Maarten
they were giving it for free on the French side of the Island. Do you think they would give it
to an American? NO It is only given to citizens in every country. I'm still searching for it.
The big gun Pfizer in the US has dominated the COVID Vaccine market, unfortunately.

REPLY

I have Ideopathic Neuropathy and have dealt with it for 20 years. I have had all variations of the Covid vaccination. It has had no effect on my neuropathy. I am 85 years old and getting COVID at my age would be deadly. So I err in favor of prevention.

REPLY

@cue In 2021 January I had two Moderna Covid shots three weeks apart. I worked in a hospital. So I decided to retire the very first week in March. Two days after I retired I woke up and had full onset of pinprick's head to toes and in my eyes. Going off 24/7. I had to wait three months to see a neurologist after 20 tubes of blood nothing found. Biopsy said small nerve fiber non length dependent. February 17 I had head pressure and blurry vision. I went to ER and got tested they found nothing. 2 nights in the hospital on a stroke protocol and nothing. I had subtle feelings come before my eyes one at a time then surrounding my eyes. I saw Doctors including my neuro Doctor and nothing. I got fed up and advocated for myself. I checked Houston for Doctors. I found a Neuro Opthalmologist. I saw a neurologist in the am and the Neuro-Opthalmologist in the afternoon. My diagnosis is Occipital Neuralgia and I have dry eyes. It is related to the small nerve fiber. I highly advice anyone with eye problems and if head pressure to go to a Neuro-Opthalmologist. Or even if you have eye problems and other things. @rnlorena

REPLY
Profile picture for lvgal @lvgal

I have Ideopathic Neuropathy and have dealt with it for 20 years. I have had all variations of the Covid vaccination. It has had no effect on my neuropathy. I am 85 years old and getting COVID at my age would be deadly. So I err in favor of prevention.

Jump to this post

@lvgal
I became paralyzed in both legs 120 minutes after my second Pfizer Vaccine for COVID
March 28, 2021
I am an 83 year old Female I had no adverse effects after the first Pfizer Vaccine.
At first the doctors denied the vaccine was the problem, but four and one half years later, as I continue weekly with physical therapy and home exercises twice daily, the doctors have now suggested I never take any substance with RNA in it again..
My allergist says Nova Vaccine is safe, made with same protein as our annual flus shots.
But the big pharmaceuticals have squelched the Nova Vax distribution in the U.S.
This vaccine is used throughout the Caribbean and many European countries, unfortunately Americans cannot get the vaccine in other countries. After I was able to take very slow steps, and desperately hoped to travel again, which is something important to me, I was able to get a J & J Vaccine, The Last ONE!
I have not been vaccinated for COVID since 2022,,

REPLY
Please sign in or register to post a reply.