Spinal Fusion issues

Posted by mylesheath17 @mylesheath17, Oct 18, 2023

All, I am currently 27 years old and have undergone multiple lumber surgeries and have had constant issues. In June 2020 I had a micro discectomy at my L5/S1. Approximately 6 months following I re-herniated the same disc and underwent an L5/S1 fusion in July 2021. I have dealt with constant chronic lumbar pain even after being prescribed pain killers and nerve blockers. In September 2023 I severely re-herniated the disc that was left in my L5/S1 that has severely compromised my right leg. Without getting an updated MRI my doctor inserted the minuteman device at my L4/L5 thinking this would relive pressure on my right sciatic nerve. This of course did not cure the right sciatic issue due to the disc at L5/S1 actually being herniated. My doc, not the one that did the first two procedures, says that the disc at the L5/S1 should have been completely removed prior to fusing it. Is this true? I am seeking guidance on this issue while I am waiting to be referred to the Savannah Spine Institute in Georgia, where I will likely undergo a surgery to possibly remove the remainder of the disc or just the herniated portion. My life has been completely overtaken and overwhelmed by my spine issues. I am a husband and father who currently goes from the bed to the recliner in hopes of one day being able to play with my daughter, and be the husband my wife once had. Any and all guidance is greatly appreciated.

-Myles

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Profile picture for sherrym25 @sherrym25

@jenniferhunter
Hey Jennifer, I just wanted to share with you what my physical therapist has done the last two appointments. She is doing skin rolling all across my lower back. It hurts, but I walk away and am amazed with how well I feel! I actually called her and left a message when I got home letting her know how well it worked.
I reported to her a few weeks ago how I’m taking gabapentin because I have nerve pain across my back that makes me nauseous.
She immediately did skin rolling on me and the pain is going away on my back. She said she is loosening and breaking free the connective tissue just under my skin and returning it to how it was prior to surgery. I looked it up and it is described as a form of myofascial release.
I am starting to feel normal!
Best, Sherry😊

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@sherrym25

My therapist is working on my glutes and abdominals. It is intense too but it feels great post session !!!! I will ask about skin rolling, but I think I know what she is doing. Thanks.

I use this ball inbetween and this beautiful stretch that stretches the facia all along the back. I hesitate to post it cause it may not be right for everyone depending on their particular situation. However, feel free to contact me individually if you like. Also you can google essentrics.com for great facial work you can do on your own. I receive no commission ;). For $15 a month you can access 100's of videos. There are specific aging back-words and etc. Highly recommend because it is dynamic movement that can strengthen as you Lengthen, which helps you keep the flexibility after the stretch is complete. Dynamic stretching or movement is often used in rehab. Of course as always check with your medical professionals first before trying any new movement, etc.

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Profile picture for borders74 @borders74

@jenniferhunter I looked up the link you sent me and there is a clinic at Barnes Jewish in St Louis, seen my primary yesterday and we talked for over an hour about this and he was honest about hereing about it but don't know about it, he wants me to find and research one I feel good about and he will send a request and look into tos himself, I looked up and tried a couple at home test just to maybe see a few things, I did the roose test and only could last 1 minute and 28 seconds and my shoulders left more than right started hurting and weak my fingers started feeling numb and fingers tingling, after a few minutes of being done my hands were cold feeling and touched my wife's leg and asked if they were cold and she moved them and said very cold, not know if that means anything or not

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@borders74 If you are looking for a specialist to diagnose TOS, look at a medical center that lists it as a condition they treat. Often it would be a neurologist or a thoracic vascular surgeon. Don’t hesitate to call and talk with a therapist you are considering and ask about their experience treating TOS. It is a lot of hands on stretching of neck and shoulder and chest muscles.

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Profile picture for borders74 @borders74

@livininthestix after talking with someone on here and doing a lot of research I'm going to talk to my doctor about TOS, everything I have read about it is exactly what I'm experiencing even with the ringing of my ears so I will be talking with him

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@borders74 glad you have an avenue to pursue!! I was suppose to have a thoracic decompression and first rib removed for TOS but I got sick before the surgery and Mayo said to hold off. Went back to the vascular surgeon and he was no longer at that hospital. Saw a new vascular surgeon and he said that TOS didn't exist in some Dr's opinions. It confused me. So now I don't know what to do as far as that goes. Glad I didn't have the surgery though. Hope all goes well and you start feeling better soon!!! I am not a negative guy, I have just had some crazy experiences.

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Profile picture for sassytwo @sassytwo

@sherrym25

My therapist is working on my glutes and abdominals. It is intense too but it feels great post session !!!! I will ask about skin rolling, but I think I know what she is doing. Thanks.

I use this ball inbetween and this beautiful stretch that stretches the facia all along the back. I hesitate to post it cause it may not be right for everyone depending on their particular situation. However, feel free to contact me individually if you like. Also you can google essentrics.com for great facial work you can do on your own. I receive no commission ;). For $15 a month you can access 100's of videos. There are specific aging back-words and etc. Highly recommend because it is dynamic movement that can strengthen as you Lengthen, which helps you keep the flexibility after the stretch is complete. Dynamic stretching or movement is often used in rehab. Of course as always check with your medical professionals first before trying any new movement, etc.

Jump to this post

@sassytwo
Hey Tamra, thanks for the information! I will ask my therapist about it. She doesn’t have me stretching yet. It’s all deep muscle massage and now the skin rolling.
I will also check out the essentrics website. Thank you for sharing!

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Profile picture for livininthestix @livininthestix

@borders74 glad you have an avenue to pursue!! I was suppose to have a thoracic decompression and first rib removed for TOS but I got sick before the surgery and Mayo said to hold off. Went back to the vascular surgeon and he was no longer at that hospital. Saw a new vascular surgeon and he said that TOS didn't exist in some Dr's opinions. It confused me. So now I don't know what to do as far as that goes. Glad I didn't have the surgery though. Hope all goes well and you start feeling better soon!!! I am not a negative guy, I have just had some crazy experiences.

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@livininthestix You’re right. TOS is controversial just because a lot of doctors don’t understand it and there are different places that the compression occurs and it’s not the same for everyone. The surgery for it doesn’t have the same success as other surgery and the scar tissue caused by the surgery can make TOS worse. I was advised it would take about 3 years of PT to get better. Posture really matters and putting this in simple terms, you try to loosen chest muscles on the front of the body and strengthen back muscles for good posture. You have to try to loosen all the tight fascia and I did a lot of myofascial release and I still do my home stretches. If you have not tried that and wish to explore it, there is a provider search at mfrtherapists.com. We also have a myofascial release discussion with a lot of good information.

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Profile picture for sherrym25 @sherrym25

@sassytwo
Hey Tamra, thanks for the information! I will ask my therapist about it. She doesn’t have me stretching yet. It’s all deep muscle massage and now the skin rolling.
I will also check out the essentrics website. Thank you for sharing!

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@sherrym25 mine does the deep muscle on my gluts and trochanter area ouch but so beneficial

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I'd recommend a referral to Mayo Clinic Jacksonville, FL neurosurgeons. They fix other surgeon's mistakes.

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Profile picture for Jennifer, Volunteer Mentor @jenniferhunter

@livininthestix You’re right. TOS is controversial just because a lot of doctors don’t understand it and there are different places that the compression occurs and it’s not the same for everyone. The surgery for it doesn’t have the same success as other surgery and the scar tissue caused by the surgery can make TOS worse. I was advised it would take about 3 years of PT to get better. Posture really matters and putting this in simple terms, you try to loosen chest muscles on the front of the body and strengthen back muscles for good posture. You have to try to loosen all the tight fascia and I did a lot of myofascial release and I still do my home stretches. If you have not tried that and wish to explore it, there is a provider search at mfrtherapists.com. We also have a myofascial release discussion with a lot of good information.

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@jenniferhunter Thanks for the reply. The surgeon said the surgery was very painful and it would only fix one side and not the other. I am constantly trying to stick my chest out and stretch but I find myself looking at the ground and slouched all the time. I have been to 3 different physical therapist and they only did a few appointments and sent me back saying I needed to see a surgeon. Tried a chiropractor and he called a Neurologist while I was on the table and said I had red flag symptoms. Still can't seem to figure out what is going on. Looks like my facet joints are bad under the fusion now. Its nice to be able to talk with others on here for all the craziness we have all and are still going through. So thank you!!!

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Profile picture for livininthestix @livininthestix

@jenniferhunter Thanks for the reply. The surgeon said the surgery was very painful and it would only fix one side and not the other. I am constantly trying to stick my chest out and stretch but I find myself looking at the ground and slouched all the time. I have been to 3 different physical therapist and they only did a few appointments and sent me back saying I needed to see a surgeon. Tried a chiropractor and he called a Neurologist while I was on the table and said I had red flag symptoms. Still can't seem to figure out what is going on. Looks like my facet joints are bad under the fusion now. Its nice to be able to talk with others on here for all the craziness we have all and are still going through. So thank you!!!

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@livininthestix I have had C5 and C6 fused and have TOS. I am also a horse owner and riding just at a walk does wonders for my back and builds strength from the bottom up. I sit up straight with good posture. At first that is tiring, but as I gain strength, it no longer fatigues as much. There are therapeutic riding centers if you wanted to try something like that and we have a discussion on here about horses and therapeutic riding that you can search for. I know this helps my spine and TOS. I do have to be careful in lifting to saddle my horse as it can aggravate the TOS, but I also do myofascial stretches at home using some therapy tools.

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Hi. I’m 49 years old and quite athletic. 30 years ago I had a spinal fusion from T3-L2. I experience occasional back pain but it’s mostly minor. If I’ve been very active for long periods of time, my back gets stiff and I have difficulty fully standing up for a little bit.

I just received an MRI showing severe facet arthritis, a few disc protrusions, bone marrow edema at the rod ending, and a couple spots of nerve abutment between L3 and S1. Some segments are better than others. There is also some vertebrae slip (less than 5 mm) between L4 and L5.

Radiologically, I look a mess, but I have strong core muscles and don’t feel much pain… yet. Am I just bound for surgical intervention no matter what?

I wish the surgeon who did my fusion better explained the risks of degeneration at the time. I did it for scoliosis and I mag not have corrected it had I known. I am scared about the future especially the idea of potentially being in chronic pain or immobilized in some way.

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