@smithki
No .. insurance will pay .. I had over 60k spent myself trying to fix myself threw treatments .. my insurance would not cover me any more when it went above 40k they pulled the plug .. I was a customer of there’s 30yrs .. I would never bother again ..
I’m so sorry you’re going through this. I thought for sure a pain pump would be the answer to my prayers for pain relief, but now I’m hearing so many stories of how they don’t work. I’m guessing once you switch to a pain pump they won’t give you oral pain meds anymore?? Sounds exactly my pm Dr! Horrible bedside manners, offers no ideas for other treatment options, he has no empathy and has even yelled at me when I confronted him on something he had said to me at the previous appt. He claims to be a CRPS specialist but he barely knows anything about it!!
All of these stories are pretty scary to me. I had terrible pain before I was diagnosed with cross and had a Medtronic scs put in last year. I have had 85 to 90% relief using it. I have to nurses from Medtronic who have adjusted it when needed. Sometimes I have some pain below the battery but it goes away. I still take Tramadol in the morning and sometimes sit with my legs up on pillows using a heating pad and that’s very helpful for my left knee pain. Some days I also take a cbd gummy around 4:00 and that makes me very loopy but takes the pain away. I’m 86 but still go to the gym 2-3 times a week and go out socially with friends. I just try not to sit for too long as that gets painful. So sorry to hear about the trouble and pain others are experiencing. Guess I have very good doctors who listen and having the nurses available is a godsend!
I’m so sorry you’re going through this. I thought for sure a pain pump would be the answer to my prayers for pain relief, but now I’m hearing so many stories of how they don’t work. I’m guessing once you switch to a pain pump they won’t give you oral pain meds anymore?? Sounds exactly my pm Dr! Horrible bedside manners, offers no ideas for other treatment options, he has no empathy and has even yelled at me when I confronted him on something he had said to me at the previous appt. He claims to be a CRPS specialist but he barely knows anything about it!!
@daxel79 Sounds pretty much like my pm doc. He hasn't yelled yet. LOL. Time to look into a change. I would, too, but there aren't any other PM docs in my area who manage pain pumps. When I was doing research prior to getting my pain pump, it showed a success rate of 94%. I'm beginning to wonder where they got their numbers.
All of these stories are pretty scary to me. I had terrible pain before I was diagnosed with cross and had a Medtronic scs put in last year. I have had 85 to 90% relief using it. I have to nurses from Medtronic who have adjusted it when needed. Sometimes I have some pain below the battery but it goes away. I still take Tramadol in the morning and sometimes sit with my legs up on pillows using a heating pad and that’s very helpful for my left knee pain. Some days I also take a cbd gummy around 4:00 and that makes me very loopy but takes the pain away. I’m 86 but still go to the gym 2-3 times a week and go out socially with friends. I just try not to sit for too long as that gets painful. So sorry to hear about the trouble and pain others are experiencing. Guess I have very good doctors who listen and having the nurses available is a godsend!
@gmaj85 I had the Medtronic SCS and it worked fairly well. After two and a half years it suddenly just stopped working. They could never figure out exactly what went wrong. I miss the relief it gave me.
@gmaj85 I had the Medtronic SCS and it worked fairly well. After two and a half years it suddenly just stopped working. They could never figure out exactly what went wrong. I miss the relief it gave me.
@heisenberg34 That’s terrible! And did your pan come back. My activation day was 10/4/24 so I’ll be aware as April of next year approaches. Thanks for the tip!
@heisenberg34 That’s terrible! And did your pan come back. My activation day was 10/4/24 so I’ll be aware as April of next year approaches. Thanks for the tip!
@gmaj85 It was amazing. My buddy and I went skiing in the morning for about two hours. Just gentle stuff. Two hours later all my pain came roaring back. All downhill since.
I have a Boston Scientific Neurological stimulator.
At first, I was hesitant, but I do believe it's helped, but, I have severe back pain so I do have to take pain medicine to help manage it. I can tell when my stimulator battery has died and needs to be recharged, my back pain doesn't ease up as much as it does when it's fully charged.
What kind of charger do you have?
@sbrown293
I'm glad you are having success with your Nevro. I had the surgery last December 2024. This is for my Complex Regional Pain Syndrome in my foot. Recently, I have had increased pain and sensitivity where the battery pack is. Has anyone experienced this? I shut down the SCS to have a break. I was getting overstimulated.
@rebeccaherdina
The area in my L lower back where my SCS implant is can get mildly sore depending on my positions. You can easily feel it under my skin. I was told this was not unheard in people who are thinner because we have little body fat for padding around it.
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@anthony29621
That’s good because it is looking like it is coming out, thanks Anthony
I’m so sorry you’re going through this. I thought for sure a pain pump would be the answer to my prayers for pain relief, but now I’m hearing so many stories of how they don’t work. I’m guessing once you switch to a pain pump they won’t give you oral pain meds anymore?? Sounds exactly my pm Dr! Horrible bedside manners, offers no ideas for other treatment options, he has no empathy and has even yelled at me when I confronted him on something he had said to me at the previous appt. He claims to be a CRPS specialist but he barely knows anything about it!!
All of these stories are pretty scary to me. I had terrible pain before I was diagnosed with cross and had a Medtronic scs put in last year. I have had 85 to 90% relief using it. I have to nurses from Medtronic who have adjusted it when needed. Sometimes I have some pain below the battery but it goes away. I still take Tramadol in the morning and sometimes sit with my legs up on pillows using a heating pad and that’s very helpful for my left knee pain. Some days I also take a cbd gummy around 4:00 and that makes me very loopy but takes the pain away. I’m 86 but still go to the gym 2-3 times a week and go out socially with friends. I just try not to sit for too long as that gets painful. So sorry to hear about the trouble and pain others are experiencing. Guess I have very good doctors who listen and having the nurses available is a godsend!
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1 ReactionSorry it says cross when it should show CRPS. That’s electronics today!!
@daxel79 Sounds pretty much like my pm doc. He hasn't yelled yet. LOL. Time to look into a change. I would, too, but there aren't any other PM docs in my area who manage pain pumps. When I was doing research prior to getting my pain pump, it showed a success rate of 94%. I'm beginning to wonder where they got their numbers.
@gmaj85 I had the Medtronic SCS and it worked fairly well. After two and a half years it suddenly just stopped working. They could never figure out exactly what went wrong. I miss the relief it gave me.
@heisenberg34 That’s terrible! And did your pan come back. My activation day was 10/4/24 so I’ll be aware as April of next year approaches. Thanks for the tip!
@gmaj85 It was amazing. My buddy and I went skiing in the morning for about two hours. Just gentle stuff. Two hours later all my pain came roaring back. All downhill since.
I have a Boston Scientific Neurological stimulator.
At first, I was hesitant, but I do believe it's helped, but, I have severe back pain so I do have to take pain medicine to help manage it. I can tell when my stimulator battery has died and needs to be recharged, my back pain doesn't ease up as much as it does when it's fully charged.
What kind of charger do you have?
@rebeccaherdina
The area in my L lower back where my SCS implant is can get mildly sore depending on my positions. You can easily feel it under my skin. I was told this was not unheard in people who are thinner because we have little body fat for padding around it.