New diagnosis of ascending aortic aneurysm and I’m terrified

Posted by mjm3 @mjm3, Aug 16, 2024

I received the diagnosis of a 4.1 CM ascending aortic aneurysm as an incidental finding after an angiogram was ordered to make sure I had no blockages due to an unexpected spike and blood pressure at work. I normally have low blood pressure so I was surprised when it was 189/111 and they took me to the hospital. that seem to come from acute stress at work, but I had a complete cardiac workout after finding a very low amount of troponin in my bloodstream 0.03. Anyway, the aneurysm was a complete shock and now I’m terrified that it’s going to burst at any time despite my cardiologist rather nonchalant approach. I asked if there’s anything I should be doing or not doing and she said don’t lift anything over 40 pounds . But no other instructions other than they’ll keep an eye on things. How do you get past feeling like your life is almost over. I’m 67 years old and in good health otherwise. I eat healthy, not overweight and thought based on my family longevity that I would live into my late 80s early 90s. Now I’m afraid I won’t make it till the end of the year which is probably ridiculous but this aneurysm has me totally freaked out. How do you all cope? And how do you get the fear so you can just enjoy life?

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Profile picture for booklover71 @booklover71

@graceliz It has been a couple of years now and no change in growth from 4.3 since 2022. My last MRI showed no growth and my heart surveillance team gave me the great news of not needing a contrast MRI for another two more years. I feel great and continue to travel and enjoy excursions while on cruises. After the first blush of worrying like all get out I slowly begin to relax. I wear a health bracelet on my arm to alert others and first responders should an issue occur. I am in my mid 70's and I did enjoy 20 minutes on the treadmill every day until I had a knee issue but I will be returning soon. Occasionally a mind over matter push is needed to remind myself I have to get back on the treadmill and I have lots to look forward to. My cardio team has been fantastic. If you feel overwhelmed or anxious make an appointment to see a professional to discuss how you are feeling and assist you in ways to address your anxious feelings. I wish you well!

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@booklover71
Thank you! I wish you continued good health and blessings.

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Profile picture for hercules @hercules

@mikeneverwired hello, may I ask how you are doing now? And also how old you are? I am 53 F and was told my Ascending Aorta was dialated at 3.9 cm one year ago. Now one year later new scan says 4.2 cm. The latest scan also said that my previous measure was 4.0cm. I question where that number came from. I had a scan this January that said “no aneurysm” but did not provide a measurement. I noted that the scan I had last year and just this month were both low dose lung ct scans that are non gated. The scan I had in January was a gated ct scan without contrast. I’ve read that the gated scans vs non gated can show significant differences in measurements due to one being timed with ekg at same point in cardiac cycle and the non gated is not timed and is measured at any random point in the cycle between systole and diastole. This makes it frustrating when trying to determine if I’ve had true growth over this year or is this just considered image modality differences, artifact differences, or radiologist measurements differences. Glad to hear from others who have had the surgery and are doing well on the other side. Gives me hope. Wishing you good health!

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@hercules
To your questions, I was 65 when I had my ascending aortic aneurysm surgery. They found one at about 5.4cm a second aneurysm while fixing the first one. It all turned out fine for me. I had some post-op issues but they mostly disapated a few months post surgery. It has been 1.5 years now and I am back to doing all my pre-op activities... hiking 8-10 miles in the Rockies, biking 50+ miles weekly, walking regularly, etc.
If you have a 4.2cm aneurysm, I'd not worry too much... just keep an eye on it like you are doing to track it's growth rate. They probably won't operate until it has grown to >5cm so don't fret it. When I was your age, my aneurysm was probably at your current levels and I was blissfully ignorant and nothing untoward happend...

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I think everyone is different. I was told when I was 53 I had an ascending aortic aneurysm at 4.1 cm. Last year at 70 , it reached 5.3 cms and I had the full ascending aorta replacement and my BAV repaired. It was a big surgery and took a while to bounce back- but definitely worth doing. At 4.1 it’s pretty small and I was getting an echo every 6 months. When ( If) you have the surgery you need to go to a center that does these regularly , as there are a lot of things to consider with a full heart- lung machine surgery and the team that is in place to facilitate this type of surgery. Good luck- and you probably have many years of low growth time to see what happens.

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Cuando me diagnosticaron por hallazgo buscaban litiasosen los riñones, como comentan se me vino el mundo encima sali con 4.3 cm en el año de 2021, en julio me hice un TAC con contraste y subio a 4.7 cm, dice mi angiologo que aun continue en vigilancia, soy de mexico y cuando me lo detectaron no ECONTRE NADA DE INFORMACION EN ESPAÑOL, actualmente ya ya existe mas informacion, pero pienso que hay muy pocas recomendacion en relacion a lo que si pudes hacer, inclusive yo he ido con varios medicos y algunos nomas me asustaron exageradamente.

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I think every case is different but being concerned and cautious is normal and getting into a support group is helpful. Know what to do and do it and then try to let go of worry.

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Profile picture for drobledo @drobledo

Cuando me diagnosticaron por hallazgo buscaban litiasosen los riñones, como comentan se me vino el mundo encima sali con 4.3 cm en el año de 2021, en julio me hice un TAC con contraste y subio a 4.7 cm, dice mi angiologo que aun continue en vigilancia, soy de mexico y cuando me lo detectaron no ECONTRE NADA DE INFORMACION EN ESPAÑOL, actualmente ya ya existe mas informacion, pero pienso que hay muy pocas recomendacion en relacion a lo que si pudes hacer, inclusive yo he ido con varios medicos y algunos nomas me asustaron exageradamente.

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@drobledo no se si hay muchos que entiendan/hablen español en este foro. Por lo pronto, yo tuve un aneurisma aórtico ascendente de 5.2 cm, reparado en el 2020. Con 4.7 cm el suyo está llegando al tamaño crítico ~5.0 cm, el cirujano decidirá cuando es momento de repararla depeniendo de varios factores, el tamaño del aneurisma, el tamaño de su cuerpo, los riesgos de la operación, la historia familiar, etc.
Es muy importante que continue la vigilancia periódica con su especialista, un cardiólogo que se especialice en enfermedades de la aorta y empiece a buscar al mejor cirujano cardiotorácico que tenga disponible, alguien que tenga mucha experiencia en este tipo de operaciones. Lo mas crítico cuando se tiene un aneurisma es controlar la tensión, tensión alta es el peor enemigo de un aneurisma, debe asegurar que tiene la combinación de medicamentos que le ayude a controlarla. Mantenga su cuerpo sano, si fuma deje de fumar, manténgase activo pero sin hacer esfuerzo que lo lleve a aguantar la respiración (como levantar pesas muy pesadas, algunos abdominales, etc) , se sabe que durante esos momentos la tensión arterial sube significativamente. El objetivo es estar lo más fuerte y sano posible cuando y si en algún momento necesita la operación, que a la velocidad con la cual la suya ha crecido es probable.

Lo importante es que usted sabe que la tiene y puede monitorearla y planificar tratarla, muchas personas no tienen esa oportunidad.

Espero todo salga bien

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Your fear is understandable and uncomfortable , but I , like you , am more concerned than I have been about my heart surgery and side effects of that over the past ten years . The aneurism issue can be a slow grow , slow kill, at times not even painful event . You might die from something else , a bit like a long prostate issue .
Re the fear - it sounds scary - I said I wanted numbers . Percentages , likely progression etc .- the lady surgeon gave it to me - could be a few months , maybe as much as two years , possible paralysis , choking, smothering , loss of speech …… scared me senseless!!!
BUT the human body is like a fancy car - lots of bits and pieces . Wires. Microchips, sensors, valves, different pressure levels, liquids, filters . Stuff flowing , coming and going . Moving, twisting , waking . Sleeping , getting hit , cold , wet and dry . Amazing that any of us are even alive last 70! Make the most of every minute, hour and day . Be careful crossing roads , talking when eating , and watch for pieces of chicken bones in pies .
Lots of stuff just waiting to kill you ,
Stay away from desserts and sexual physical stuff , well at least desserts! Smile and take what comes - seems like you have no choice !!!! Be happy !!!

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Profile picture for moonboy @moonboy

Relax. You’re gonna be fine. You’re better than 99% of the aortic patients out there because now you know you have a problem and you’re going to address it. Keep getting your regular CT scans and listen to your doctors. If they tell you that you need to have surgery then have it. I survived a type one aortic dissection emergently in 2015 at age 50. And I’m here to tell you nine years later that I’m living my best life. I’m healthy and happy and you should be too. Just be thankful that you know about it so that you don’t suffer the fate that I did and have happened to you suddenly without warning. You’re gonna be just fine. No powerlifting, no planking, keep your blood pressure down, and keep your spirits up. Listen to what your doctor tell you and take your blood pressure meds. Peace.

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@moonboy
I am glad I decided to read comments, because like some others have stated no doctor told me not to lift anything more than 40lbs. I am overweight and I have high blood pressure, so I have been working with a trainer doing weights and circuit machines lifting over 40lbs. No one said anything to about the other things i.e. Marfan's syndrome or some identified genetic markers. The cardiologist didn't say anything close to comments I am reading and just made me feel like I was concerned for nothing. I was hospitalized for a few days 2 weeks ago because they thought I was having a stroke. My aortic aneurysm increased a little more than the average .01 in a year. It went from 4.1 in May of 2024 to 4.3 a year. I am wondering should I be concerned?

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I know exactly how you feel reading those comments and realizing how little guidance you were given. After my own Type A dissection and open-heart surgery with a Dacron graft in 2015, I learned that the absence of warnings doesn’t mean the risks aren’t real. Many cardiologists still underemphasize the mechanical stress that heavy lifting and straining can place on the aortic wall, especially in people with hypertension or borderline aortic dilation. The general goal is to minimize sudden spikes in blood pressure—the kind caused by lifting weights, bearing down, or holding your breath during exertion. Even though your aneurysm is currently 4.3 cm, that increase from 4.1 cm in a year is worth paying attention to. It’s not catastrophic, but it’s faster than the typical 0.1 cm per year average growth rate. That suggests your aorta might be under more hemodynamic stress than ideal.

Given your weight training and high blood pressure, it would be wise to revisit your exercise plan. Emphasize aerobic conditioning—walking, light cycling, or swimming—while avoiding any lifting or resistance that causes you to strain or hold your breath. Stay under that 40 lb limit until a specialist familiar with thoracic aortic disease (not just a general cardiologist) reviews your case. Also, make sure your blood pressure is tightly controlled, ideally under 120/80 mmHg with medication if needed. If you haven’t already, ask your doctor whether you should be evaluated for connective tissue disorders or genetic aortopathies like Marfan’s or Loeys-Dietz, especially if you’re younger or tall with long limbs, or have a family history of aneurysms or dissections. Those conditions can affect surgical thresholds and follow-up plans. You were right to be concerned—your instincts are spot-on. Keep monitoring your aorta with imaging at least once a year, possibly every six months given the recent change. You’re not overreacting; you’re being proactive. Peace.

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Profile picture for monica6287 @monica6287

@moonboy
I am glad I decided to read comments, because like some others have stated no doctor told me not to lift anything more than 40lbs. I am overweight and I have high blood pressure, so I have been working with a trainer doing weights and circuit machines lifting over 40lbs. No one said anything to about the other things i.e. Marfan's syndrome or some identified genetic markers. The cardiologist didn't say anything close to comments I am reading and just made me feel like I was concerned for nothing. I was hospitalized for a few days 2 weeks ago because they thought I was having a stroke. My aortic aneurysm increased a little more than the average .01 in a year. It went from 4.1 in May of 2024 to 4.3 a year. I am wondering should I be concerned?

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@monica6287 I just want you to know that my aneurysm also grew 2 mm in one year. It’s not abnormal, it is just at the high end of normal. I don’t believe my cardiologist was the least bit concerned. The growth did make him change his mind about changing my imaging to every other year.
I agree with Moonboy that there are risks. But, in the lower numbers risks are rare, so do not worry about things that could happen! Relax! Take care of yourself, but, enjoy your life!!!

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