Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for rosemariezda @rosemariezda

Do anyone know about Mamma Bears cream for neuropathy.

Jump to this post

Welcome @rosemariezda, There have been a few comments about Mamma Bears cream in another discussion. Here's a link to the different comments using the search function of Connect - https://connect.mayoclinic.org/search/comments/?search=Mamma%20Bears%20cream.

Do you mind sharing more about your neuropathy diagnosis and any treatments you have tried?

REPLY
Profile picture for betl @betl

This is the first time I’ve posted and have read comments from many with PN. I’ve been diagnosed with idiopathic peripheral neuropathy. The diagnosis was based on results of EMG. I’ve had epidural steroid injections twice to no avail. It started with tingling of feet and has moved to lower legs effecting muscles. I am in pain most of the time and find that I can no longer exercise or take long walks as before. I tried Gabapentin but did not like the side effects so use Aleve sparingly. I have always been quite active and am trying to determine the cause of the neuropathy. My primary care doctor is of the opinion (after review of a complete blood panel and urinalysis and his own testing) that the cause of my leg problems may not be neuropathy connected. He is sending me to see an orthopedic. I have a future appointment with a neurologist also. As for Covid, I had it early in 2021 and had Mono-Clonal antibody treatment. The neurology surfaced in early 2022 and has been present throughout 2022 during which time my condition has worsened. Has anyone been to the Mayo Clinic in Rochester? I am in NC but was a patient at Mayo Clinic in Jacksonville for several years. If no resolution to the cause and/or treatment is determined, I am wondering which Mayo Clinic location would be a better choice. I have read that the Mayo in Rochester specializes in Neurology, although the Jacksonville location would be closer. Any ideas on treatment options that alleviate symptoms would be helpful.

Jump to this post

Your story sounds very similar to mine. Three years ago, coincidentally or not following the first Covid injection symptoms started. In my feet, and now three years later going up my legs. Discomfort never goes away. Gets worse in the afternoon. Have you had an MRI? After two EMG tests they ruled out neuropathy and call this idiopathic what a silly word. I live near Boston so have no info on the South. The one treatment that alleviates my pain are my special socks with get inserts that I keep in the freezer. They are very soft material and the cold feels good. I got them on Amazon. I'm also new to Connect but I'm finding comfort in sharing new information. Good luck to you.

REPLY
Profile picture for dorethalorraine @dorethalorraine

Your story sounds very similar to mine. Three years ago, coincidentally or not following the first Covid injection symptoms started. In my feet, and now three years later going up my legs. Discomfort never goes away. Gets worse in the afternoon. Have you had an MRI? After two EMG tests they ruled out neuropathy and call this idiopathic what a silly word. I live near Boston so have no info on the South. The one treatment that alleviates my pain are my special socks with get inserts that I keep in the freezer. They are very soft material and the cold feels good. I got them on Amazon. I'm also new to Connect but I'm finding comfort in sharing new information. Good luck to you.

Jump to this post

AFTER A LOT OF BLOOD WORK AND A DOCTOR CLOSLY LISTENING TO MY PROBLEMS, I HAVE LUPUS WHICH DAMAGED MY NERVES.

REPLY
Profile picture for hello2 @hello2

AFTER A LOT OF BLOOD WORK AND A DOCTOR CLOSLY LISTENING TO MY PROBLEMS, I HAVE LUPUS WHICH DAMAGED MY NERVES.

Jump to this post

I'm sorry . That can be a scarey diagnosis. I'm hoping with good medical advisors you'll find your way 🙏

REPLY
Profile picture for speercntry @speercntry

I don’t know about the flu vaccine but I believe that the maderna vaccine brought on my trigeminal neuralgia.

Jump to this post

Is your TN causing numbness too, pain or both? Are you treating it?

REPLY
Profile picture for hello2 @hello2

HAS ANYONE EXPERIENCED NEUROPATHY AND NERVE PAIN FROM HEAD TO TOE FROM THE VACCINE AND/OR COVID?

Jump to this post

I am almost that is how mine started summer2021. The booster. Not an anti vac person, but am/was in healthcare, and have seen Gillian Bare post vaccines, but wasn't aware of CIDP or Polyneuropathy. My Neuro is not convinced. Still numb from head to toe. No treatment has reversed it. How about you? How long , who's treating/Specialty?

REPLY

Thank you for empiwering me. YES IT IS REAL!

Yes I Had a severe reaction. 2023 to pfiser vaccine. I had 2 moderna. Then the pharmacist said they were out and they could substitute Pfizer.

I ended up with seizure like symptoms. Now I have whole body Small muscle neuropathy. Loss of taste, smell, 100% symptoms of carpul tunnel bothwrists. Confusion. Body tingles all over. Pin pricks. No feeling knees down numb.

My Pt discovered if I use "weighted blanket" I can feel my feet. Feel the floor, temperature etc. Short time relief. Putting a Weighted blanket at my knees helps turn off legs for short times to sleep.

I found a tines unit distracts the nerve signals. I got a tines unit. It stops the symptoms for short periods of time.

Now I get pricks like a bee sting. Sends wiggles upwards.

My small muscle neuropathy still here. Drs say "teach her to ignore it",
You can't ignore something that wakes you up. It feels like my bed is vibrating can't control urination.

No doctors know what to do!

Pfyizer shot. Permanent symptoms. They are keeping it quiet.

REPLY
Profile picture for joanthompson @joanthompson

Is your TN causing numbness too, pain or both? Are you treating it?

Jump to this post

@joanthompson

I use a "tines unit". The signal distracts the small muscle tingling and pins and needles.

I have learned some kine of weight above my knees stops the tingling and shaking of my lower extremities.

I actually put my feet under my husbands legs it stops the vibration feeling. Helps me fall to sleep. I wake up during night beed feels like a massager bed. It is my neuropathy wiggling my body.

No taste, smell. No sensative to temperature change of surfaces. Some hearing issue comes and goes. Terrible squeel "in head" Not ears.

The "tines unit" helps a lot. Gives me a rest.
I don't use pills.

Doctors "don'know what to do" "teach her to ignore it". So..I have to self heal and find answers.

Hiding Pfizer shot reaction from public.

REPLY
Profile picture for helennicola @helennicola

Hi Kathleen, I have SFN and had my 2nd Pfizer vaccine on 2/10. With the first I experienced a flare a wk. after which lasted a week, I also had a sore arm; this time no sore arm but a persistent new symptom plus a few transient ones appeared right after. Not sure if it is a result of or co-incidental this time, the new symptom is a very annoying continuous buzzing/tingling sensation on my right foot/toes , no numbness or pain but prevents sleep; hopefully temporary. I also dreaded the 2nd vac. but never considered not getting it. I Wish you well whatever you decide. Helen

Jump to this post

@helennicola

Yiu might yry a "weighted blanket" above your knee. It seems to distract the signals going back to the brain.

Also putting a "tines unit" above the area (ex
if in foot put up on leg between foot and knee) seems to distract the nerve signals and stop it for short term.

Might help.

REPLY
Profile picture for dorethalorraine @dorethalorraine

Your story sounds very similar to mine. Three years ago, coincidentally or not following the first Covid injection symptoms started. In my feet, and now three years later going up my legs. Discomfort never goes away. Gets worse in the afternoon. Have you had an MRI? After two EMG tests they ruled out neuropathy and call this idiopathic what a silly word. I live near Boston so have no info on the South. The one treatment that alleviates my pain are my special socks with get inserts that I keep in the freezer. They are very soft material and the cold feels good. I got them on Amazon. I'm also new to Connect but I'm finding comfort in sharing new information. Good luck to you.

Jump to this post

@dorethalorraine
Siunds like your socks might be distracting the signals to your brain.

I learned by self testing with my finger nails. I could find yhe jumping nerve up above my kness. If I pressed I could decrease the symptom.

Then my PT said try weight. "Weighted blanket". I felt my feet first time in a year. And then I discovered pressure points on my head makes your brain thunk of that instead of your neuropathy in your legs.

Now I use Tines unit above the spot bithering me. And blanket at night from my knees down. (Or I tuck my feet under my husbands legs) 🙂 both help.

Sadly it isn't going away. Getting and keeping symptoms from the Pfiser shot.

No Dr knows what to do. Government is keeping it quiet.

REPLY
Please sign in or register to post a reply.