Anyone had a problem with neuropathy after receiving the vaccine?
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
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Welcome @rosemariezda, There have been a few comments about Mamma Bears cream in another discussion. Here's a link to the different comments using the search function of Connect - https://connect.mayoclinic.org/search/comments/?search=Mamma%20Bears%20cream.
Do you mind sharing more about your neuropathy diagnosis and any treatments you have tried?
Your story sounds very similar to mine. Three years ago, coincidentally or not following the first Covid injection symptoms started. In my feet, and now three years later going up my legs. Discomfort never goes away. Gets worse in the afternoon. Have you had an MRI? After two EMG tests they ruled out neuropathy and call this idiopathic what a silly word. I live near Boston so have no info on the South. The one treatment that alleviates my pain are my special socks with get inserts that I keep in the freezer. They are very soft material and the cold feels good. I got them on Amazon. I'm also new to Connect but I'm finding comfort in sharing new information. Good luck to you.
AFTER A LOT OF BLOOD WORK AND A DOCTOR CLOSLY LISTENING TO MY PROBLEMS, I HAVE LUPUS WHICH DAMAGED MY NERVES.
I'm sorry . That can be a scarey diagnosis. I'm hoping with good medical advisors you'll find your way 🙏
Is your TN causing numbness too, pain or both? Are you treating it?
I am almost that is how mine started summer2021. The booster. Not an anti vac person, but am/was in healthcare, and have seen Gillian Bare post vaccines, but wasn't aware of CIDP or Polyneuropathy. My Neuro is not convinced. Still numb from head to toe. No treatment has reversed it. How about you? How long , who's treating/Specialty?
Thank you for empiwering me. YES IT IS REAL!
Yes I Had a severe reaction. 2023 to pfiser vaccine. I had 2 moderna. Then the pharmacist said they were out and they could substitute Pfizer.
I ended up with seizure like symptoms. Now I have whole body Small muscle neuropathy. Loss of taste, smell, 100% symptoms of carpul tunnel bothwrists. Confusion. Body tingles all over. Pin pricks. No feeling knees down numb.
My Pt discovered if I use "weighted blanket" I can feel my feet. Feel the floor, temperature etc. Short time relief. Putting a Weighted blanket at my knees helps turn off legs for short times to sleep.
I found a tines unit distracts the nerve signals. I got a tines unit. It stops the symptoms for short periods of time.
Now I get pricks like a bee sting. Sends wiggles upwards.
My small muscle neuropathy still here. Drs say "teach her to ignore it",
You can't ignore something that wakes you up. It feels like my bed is vibrating can't control urination.
No doctors know what to do!
Pfyizer shot. Permanent symptoms. They are keeping it quiet.
@joanthompson
I use a "tines unit". The signal distracts the small muscle tingling and pins and needles.
I have learned some kine of weight above my knees stops the tingling and shaking of my lower extremities.
I actually put my feet under my husbands legs it stops the vibration feeling. Helps me fall to sleep. I wake up during night beed feels like a massager bed. It is my neuropathy wiggling my body.
No taste, smell. No sensative to temperature change of surfaces. Some hearing issue comes and goes. Terrible squeel "in head" Not ears.
The "tines unit" helps a lot. Gives me a rest.
I don't use pills.
Doctors "don'know what to do" "teach her to ignore it". So..I have to self heal and find answers.
Hiding Pfizer shot reaction from public.
@helennicola
Yiu might yry a "weighted blanket" above your knee. It seems to distract the signals going back to the brain.
Also putting a "tines unit" above the area (ex
if in foot put up on leg between foot and knee) seems to distract the nerve signals and stop it for short term.
Might help.
@dorethalorraine
Siunds like your socks might be distracting the signals to your brain.
I learned by self testing with my finger nails. I could find yhe jumping nerve up above my kness. If I pressed I could decrease the symptom.
Then my PT said try weight. "Weighted blanket". I felt my feet first time in a year. And then I discovered pressure points on my head makes your brain thunk of that instead of your neuropathy in your legs.
Now I use Tines unit above the spot bithering me. And blanket at night from my knees down. (Or I tuck my feet under my husbands legs) 🙂 both help.
Sadly it isn't going away. Getting and keeping symptoms from the Pfiser shot.
No Dr knows what to do. Government is keeping it quiet.