Anyone been prescribed Ohtuvayre (new med)? Your experience?

@kndaustina week is hardly enough time. The manufacturer suggests 5-6 weeks minimum.
I am on it and noticed the difference after weeks.

@mrmover I noticed a big change maybe in a week I was so happy but now 4 months later i started getting out of breath again told my pulmonary doctor he wants me to still continue and in December I get a catscan and see him in January, then see what happens. I feel it’s crazy continuing buying the medicine if I’m winded but I’ll give it a little longer then I’ll tell the doctor why buy and continue if I’m like this

Anyone on ohtuvayre longer then 4 months? I been on it and in the beginning it was fantastic it was a big game changer for me but now 4 months later I’m back to being shortness of breath, not sure maybe my body got used to to it, not sure if maybe ill change to something else

@guslogan, how are you doing on Ohtuvayre so far?

Just started this (10/08/2025) medicine (Ohtuvayre), no results of any kind as of yet, I am praying that this will work....soon !! I'm to the point where I can barely do anything, I just would like to be able to function somewhat normally, I know I'll never be able to breathe like when I was 24-25 yrs. old again, but just to be able to run the vacuum, or make my bed, without almost collapsing would surely be a blessing !!
I will say prayers for everyone who suffers with this miserable affliction 🙏

I was taking it twice daily but cut down to once. I started having panic attacks with blurred vision. I will be discussing with pulmonary doctor soon. Alot of issues are dealing with gas regulating of my blood stream.

@hazely i was just like you , me it was a struggle just getting to my coffee pot finally my doctor put me on ohtuvayre and maybe a week maybe a little longer I felt a big difference I was so happy i could do things again but 3 months on things started changing again maybe my body got use to it, now I wait to get a catscan and see maybe change medication again

@suzyq61, O dear, that is so disheartening, thanks for posting, so I don't get my hopes up to much !! I was on trelegy before this, for quite awhile and it worked so good....til it didn't 😥 now I've been on 3 different meds trying to find something that works, I'm losing hope at this point, maybe I'm to far gone, I just don't know anymore 😥 I pray 🙏 for nothing but the best for you 🤗

@hazely just give it time like i mentioned it helped in the beginning for me but everyone is different our bodies react differently to medications, this one may be the one for you. I was on trelegy too but i felt no difference so im on breztri. I started doing upper pulmonary exercises its half hour a day and that seems to be giving me some relief, we gotta just keep trying every thing we can, i hope the medication helps you

Thank You ❤