Brinsupri follow-up
It seems a bunch of us have started Brinsupri. Let's use this thread for discussion. If you are taking Brinsupri have you noticed anything different, including changes to bronchiectasis or side effects? How long have you been on it?
Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
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@blm1007blm1007
Thanks Barbara but I did know all this which is why I chose Medicare Part A and B with a Medigap plan G. But I never got a Part D since there were no drugs I was taking. In light of Brinsupri I should have signed up last year but neglected to do so. Our costs have remained fairly low with our supplemental plan compared to what some people mention. Anyway thanks for taking the time. I appreciate it.
I’m curious as to the number of people who have been prescribed the Brinsupri 10mg vs 25mg? My mom has been prescribed the 10mg but hasn’t seen a difference yet. She’s on day #5.
That's a good primer @blm1007blm1007 !
@irenea8 There's a resource in Iowa to help you decide and tease part various Medicare options. They offer 1-1 counseling for Medicare decisions. https://shiip.iowa.gov
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1 Reaction@kathyjjb Even with government plans there are huge differences in coverage and co-pays depending on which you choose and the premiums you are willing/able to pay. We had the same plan for many years, but once on Medicare it was lousy. We changed to a large national plan, and it covers care much better. We almost always get a "yes" right away on medical care. I'm not sure what Tier 5 is, our pharmacy only lists through Tier 4. But you can petition for coverage to specialty drugs and sometimes get them. My brother has been successful, my sister-in-law has not . We think it might be who the Pharmacy Benefit Manager is in their separate states.
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1 Reaction@sueinmn My ID doctor and NJH have appealed numerous decisions and Humana did not budge. I can certainly relate to your sister-in-law's experiences.
After some thought, I remember my insurance broker told me that I would need to disclose my current health issues to change from my Medicare Advantage to a Medigap Supplement form-so best to just stay on what I have.
@scoop
yes know about SHIP. Have to use the local SHIP contact for my county. Years ago when I first went on Medicare I visited their office but the lady was not very well informed. She commented that I knew more than she did! I hope it has improved locally.
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1 Reaction@dstella From what I see, the guidelines are that it for noncystic fibrosis patients who have had two exacerbations requiring antibiotics in past year. Is that your situation?
I would not qualify now because I haven't needed antibiotics in a year. I think I would have the previous year.
Do you have a standing order to send a sputum culture if you’re having increased sputum or fevers?
I agree with Scoop about contacting your doc's office since you're feeling sicker. I also agree that a doc well versed in bronchiectasis makes a big difference.
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1 Reaction@kathyjjb - my understanding is exactly what you stated regarding changing plans. I have a year and a half to go before I sign up but worked closely with my husband when he signed up last year. The advantage plans are what many of us see in the commercials. They offer low premiums and throw in or bundle some other benefits making it sound very appealing. The problem is if you later want to change for more options, there is an underwriting process so prior conditions will be reviewed making it much more costly if accepted. If you go straight into a supplemental plan, there is no review. The supplement plans do not include dental, vision and drugs so those are add ons. I believe the supplements are more of a PPO option while the Advantage is an HMO.
@kathyjjb But you can still apply and see if a Medigap Supplement will accept you. I know several people with heart, lung and nervous system issues who have successfully changed.
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1 Reaction@scoop Thank you for responding! It was his NP that was relaying his message to me. They won’t let me see the specialist listed on the NTM CENTERS because I see someone in that practice, who self admitted it’s not his forte. Very frustrating, especially when you’re not feeling well.
Be well,
Deidre