Told I Have Asthma, But Signs Point to COPD?

Posted by gumlay56 @gumlay56, 2 days ago

Hi everyone,
I’m 25 and have struggled with breathing problems most of my life — chest tightness, mucus, acid reflux since childhood, fatigue, and shortness of breath even with light activity. I finally saw a pulmonologist and had PFTs done, but I never got a full explanation of my results. When I asked about COPD, my doctor basically laughed it off, saying I was “too young,” and told me it’s probably asthma or GERD.

I recently looked at my test results myself, and some of the numbers seem to show hyperinflation or air trapping. My breathing issues aren’t just “episodes” — they’re constant. I get winded climbing stairs, walking up small hills, or even standing still. I’ve never smoked, but I grew up in a house full of heavy smokers (both parents, multiple packs a day).

My report even said I should follow up with an X-ray, but my doctor didn’t mention it. Should I get a second opinion? Has anyone else been told asthma when it turned out to be something else?

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frouke | @frouke | 2 days ago

gumlay56, hi, I would say that a second opinion would be helpful at this point, I believe that we have instincts for a good reason, when in doubt check it out. I have had asthma for many years and also COPD, I remember when it started there was some time during testing that they weren’t sure yet but they have specific tests today that are very accurate to help with this, I hope that you get the answers you need to know to help you get the right treatment.

mmoose72 | @mmoose72 | 19 hours ago

Ive also never smoked but over the years have had bouts of bronchitis in the winter. Since Covid my SOB was one of the worst and most scary symptoms, sometimes id be so out of breath just sitting on the couch. My pulmonologist sent me for a pulmonary function test after my first covid infection (4/2020) and even though I was extremely out of breath with mu HR reaching over 140's during the seated testing the test didn't show any issues with my lungs. Then after covid 3/2023, even though my SOB didn't seem as bad as before my PFT showed Asthma. I tried so many different combination inhalers, nothing helped. Then when I went to The Mayo Clinic last year they recommended a steroid only inhaler, it has helped me so much. I still get out of breath climbing stairs or when I overexert myself but it doesn't seem as bad.
To answer your question, yes go get a second opinion, a fresh set of eyes are always better than nothing.
Good luck xx

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