Living with lung cancer - Introduce yourself & come say hi

@margot- I thought that all chemo caused hair loss so my friend came to my house to give me a buzz cut. But just before she plugged in the "buzzer" she asked me if I was sure that I would lose my hair. She had me call the infusion nurse and I learned that the chemo that I would get would not necessarily cause hair loss. Margot- I was seconds away from losing my very long, thick hair! I only experienced hair thinning, not that anyone would have noticed because of all my hair.
Before each chemo session I put make-up on and dressed nicely, even if I had jeans on! It was a small thing, I know, but it made me feel human for a bit!

Margot-I really wish that you would move closer to Stanford. I know, I know you don't want to. If you aren't happy with your "team" then your attitude will be negative and this will effect your treatments and possibly your outcome. Attitude really does make a difference. It seems as if your need for better medical attention might outweigh that of your husband's right now. He could always get another dr, if for only for the time that you need to be there. You could stay at a Ronald McDonald house or even rent a small apt. Please think about this.

@gazza- Good morning and welcome to Mayo Connect. I'm glad that you found us. What a great story you have! Other than CBD oil are you taking? Do you use inhalers? What kind of inoperable lung cancer do you have? Life is a mystery, isn't it. Somethings, that are "not suppose to" happen do just that. But there is very little known about the effects of CBD oil and it's benefits for a lot of things. I'm not suggesting that CBD oil did not have an effect on your cancer. Anything can happen and it's certainly is wonderful that your cancer is literally only hanging on by a thread.
You are a very brave man to have turned away suggested treatments, but as you say, and I do agree, the quality of life certainly is of upmost importance.
"There have been recent news stories about the potential promise of CBD and/or THC oil and fighting lung cancer, such as these news stories:
https://abcnews.go.com/Health/Healthday/story?id=4506595&page=1
https://metro.co.uk/2018/03/25/could-cannabis-help-cure-lung-cancer-this-man-thinks-so-and-hes-already-spent-1-5m-on-research-7266643/
However, you'll note that both articles are quick to point out that any potential positive effects have only been studied in petri dishes or on mice in a laboratory (in vitro). This is not the same as testing and discovering positive effects in humans. So far CBD/THC is still less effective than current drugs and dosages have not been tested or proven." CY

Here is more information about studies done so far in vitro from the National Cancer Institute: https://www.cancer.gov/about-cancer/treatment/cam/hp/cannabis-pdq#section/_7 (medical professional version)
https://www.cancer.gov/about-cancer/treatment/cam/patient/cannabis-pdq#section/_3 (patient version. See answers to questions 6 and 7)
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6043845/
https://www.mayoclinic.org/healthy-lifestyle/consumer-health/expert-answers/is-cbd-safe-and-effective/faq-20446700

Hi everyone. My name is Liz. I have nsclc. It’s coming up to 3 years. My oncologist originally told me I had 6 months to live. Haha!’ I am in between trials. Waiting for Mayo to review my medical history and hopefully find me a trial. Look forward to chatting

I should have said that I have non small cell lung cancer.I do not use inhalers. The only other thing I used initially was not from concentrate tomato juice as I had read on an American site that it might help to stop cancer becoming metastatic.I do not class myself as brave only realistic. The brave people are those firemen who went into the Twin Towers.
The other reason I turned down traditional treatment was that it is not good for elderly people because chemo kills good and bad cells and when you are old you do not replace the good cells quickly and thus the bad ones can spread much more easily round the body.
A lady I know who also lives in Staffordshire was diagnosed in summer 2018 with Grade 3 aggressive breast cancer 33 mm and lymph nodes in her neck and armpit 25 mm. She used a similar CBD oil and in spring 2018 the cancer was 7 mm and the nodes 4 mm. She recently said the cancer had started growing again but after more oil it was going down again.
I do not think that CBD oil is necessarily a cure but if a person has inoperable/terminal cancer then the oil can prolong the time you may be alive.

Merry, that would cost a fortune here and I am not physically up to it. I think I need to call so done this morning or go to ER. My whole chest is hurting. No temp. Need to get dressed. And, more hair falling out.

Hi Margot, I had the same trouble as you with a doctor and there was no way he would listen to me. As I was checking out, I told them I would not be back and found someone to replace him. It is so difficult when you are going to the best and he doesn't HEAR you. Bring a close friend, relative with you to your appointment, so when you speak to the doctor that person can affirm what you are saying with a nod or verbal reply. If not that, when the doctor comes in, look at him square in the face and tell him I want you to listen to me in a firm voice. Maybe these suggestions may work. If not, remind yourself that you are doing the best you can and you chose the best. And this should being out a "best"outcome. Blessings.

Hi @lisdorn...can you tell us the doctor's name in Maryland? My wife's oncologist left Mayo and went there. We would like to stay in touch with him.