Anyone taking Lenvima (lenvatinib)?

@meghansa65 My husband has Hurthle Cell thyroid cancer that has metastasized to the lungs, the areas of the internal carotid artery and brain stem, as well as rib bones. It was discovered in 2005, and since then, he has had multiple surgeries and rounds of radiation in these areas. Last year, the mass by the carotid was beginning to squeeze it, but they figured another round of radiation in that area would disintegrate essential structures, so he started Lenvatinib. He/we were prepared for the worst symptoms, but he's been able to tolerate taking it, never skipping a day, for 15 months so far. Nausea has been a constant side effect since he started. Other side effects have come and gone fairly quickly. He always says, "It's better than the alternative".
I hope you have a bearable experience taking the drug as he has. Wishing you well.

@meghansa65 My husband has Hurthle Cell thyroid cancer that has metastasized to the lungs, the areas of the internal carotid artery and brain stem, as well as rib bones. It was discovered in 2005, and since then, he has had multiple surgeries and rounds of radiation in these areas. Last year, the mass by the carotid was beginning to squeeze it, but they figured another round of radiation in that area would disintegrate essential structures, so he started Lenvatinib. He/we were prepared for the worst symptoms, but he's been able to tolerate taking it, never skipping a day, for 15 months so far. Nausea has been a constant side effect since he started. Other side effects have come and gone fairly quickly. He always says, "It's better than the alternative".
I hope you have a bearable experience taking the drug as he has. Wishing you well.

Hei thank you for your reply. I am just wondering he has have thyroid cancer since 2005? Was he doing fine aside from surgeries in all those years from 2005 to 2025? I am sorry for my poor english, I am from Norway. I got thyroid cancer with lung metastasis march 2025. I hope I will live for the next 5 years. You mentioned that your husband has that cancer in 25 years give me som hope. Thank you once again for sharing.

@meghansa65 Yes, 20 years. All of the disease is the thyroid cancer. For the most part, he's been able to live a fairly normal/active life. Other than during surgery recoveries or the first couple of weeks of Lenvatinib treatment, he has been able to continue working (farming). Don't get me wrong, it's been a struggle for him at times, but he's been able to keep on most days, just maybe a bit slower.
At the time of diagnosis, he was sure his time was limited. I kept telling him, especially after the discovery of a tumor in his head, that until they tell him to "get his things in order", we have to keep pushing forward with hope. Easy for me to say, not being the patient, but I couldn't let him spiral. In more recent years, if there's a new finding or growth of existing tumors, he's ready to face it head-on.
Here is a link to a post I made back in 2022. It summarizes what he'd been through up to that point. https://connect.mayoclinic.org/comment/786926/
My husband's care team for the Lenvatinib treatment has been tremendously helpful.
I hope you have the same support, whether it be from family or medical professionals.

@bfrank thank you very much for your time. Just reading that he has this cancerand survived for 20 years encouraged me to be more positive. I pray to Gud that he will give me more time to be around with my daughter and my grandchildren. By the way, does your husband having a hard time sleeping? I have that problem. Once again, i really appreciate your reply and praying for both of you ,too, and all others who have the same diagnose.

@meghansa65 my husband falls asleep very quickly, but never sleeps for very long

@bfrank hei, how is your husband doing? I hope he is ok. I will have my CT scans on october 9, and as i mentioned earlier I am scared. By the way, when did your husband start taking Lenvatinib?

Hi, am not sure at the moment. My indo is going to check my markets at the end of September. But the gold is to shrink the tumor and my markers to be at normal levels. But l will discuss on my next visit, that is definitely a good question. I did not ask l was so sad that the cancer spread to my lungs and now chemotherapy my mind just went. I will keep you updated.