Living with lung cancer - Introduce yourself & come say hi

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Hi @testlady,

You may notice that I moved your message to this discussion on living with lung cancer I did this because I thought it would be beneficial for you to connect with the members in this discussion, and I hope they will join in with more insight or information that might help.

@testlady, do you know what type of colitis you may have?

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@testlady

I am so despondent. My Opdivo infusions have been very successful; however, I have developed colitus and my infusions have been postponed until it is resolved. I have fear and anxiety because of the lack of treatment opportunities that directly affect my lung cancer. All the healthful eating I have done must cease because it affects colitus. The lectures about this is just a bump in the road are not helping. I don't know how to handle this setback.

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I feel for you! One thing you might try to keep in mind is that there is no one universal 'healthful eating' program. So now you are doing healthful eating for your colitus and it is still putting good nutritious food into your body to help you to be strong and healthy. I hope it will be under control soon so that you can begin your infusions again.

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Thanks to John for my invitation to join.
I was invited to join a Mayo program for smokers that had quit smoking (almost 6 years)
It was one of the chest x-rays that the cancer was found. Thank you Mayo Clinic!
They took a small pie wedge from my lower left lobe and I thing all is good.
I was only in the hospital for 1 1/2 days and went back to work after 3 days (Amazing)
Thanks again MAYO

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Welcome.That is how my first lung cancer was found. I had to have an Xray for an injury. Thank goodness. it was a very early, but virulent type of adenocarcinoma. Make sure you have follow-up CT scans at least once a year!

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@testlady

I am so despondent. My Opdivo infusions have been very successful; however, I have developed colitus and my infusions have been postponed until it is resolved. I have fear and anxiety because of the lack of treatment opportunities that directly affect my lung cancer. All the healthful eating I have done must cease because it affects colitus. The lectures about this is just a bump in the road are not helping. I don't know how to handle this setback.

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Thank you. Your such means a great deal.

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@kanaazpereira

Hi @testlady,

You may notice that I moved your message to this discussion on living with lung cancer I did this because I thought it would be beneficial for you to connect with the members in this discussion, and I hope they will join in with more insight or information that might help.

@testlady, do you know what type of colitis you may have?

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My blood work showed no infection. My stool cults showed no bacteria. I do not have Cdif. I have been told this is a result of the Opdivo. My PET scan report stated "wall thickening of the colon w submucosal edema and stranding in the adjacent fat suspicious for pancolitis."

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@colleenyoung

Hi @llwortman @burrkay @alicantina1 @merilee @alvinw @shortshot80 @mryzuch @amws @pearlgee @cheris @annette1 @cheris @windwalker @lesbatts @major @bestcare and @sistergoldenhair

I'd like to invite you to the new group dedicated to discussions about lung cancer. It's a space where we can ask questions, share tips and learn from each other. Whether you in treatment or caring for someone with lung cancer, or you're a lung cancer survivor, please join us.

Pull up a chair and tell us a bit about yourself.

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Hi I am Rita, my husband has been diagnosed with lung cancer, we don't know what stage yet. He has a very large mass on his right lung, looks like way over half of his lung.they have already done a biopsy. We are waiting for him to get approved by the VA before they can do the tests to stage it. He needs an MRI and a pet scan. Everything is tied up with the VA right now and the waiting is so hard. I am so scared. He has trouble breathing, coughing hard and coughing up blood. Pain in his chest, tired and weak. He just turned 63. I lost my first husband of 24 year's to a car accident, was alone for 12 years then met Blake my second chance at life. We were married 7/11/15

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My husband has been diagnosed with lung cancer. We are waiting for approval from the VA before they can even talk treatment. The waiting is so hard

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I'm so sorry that you have had to wait to start your journey. The VA works on a different level than any other health care provider. Perhaps counseling to help you through this waiting time. I have found waiting is the fertilizer for our fears. Anticipation is definitely not a friend. Keep us up dated!

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I have heard that sugar is very bad for cancer is that true?

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