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Awful fatigue, shortness of breath, brain fog..anything helping you?
I have been a long hauler 2 years now. Fatigue, shortness of breath, brain fog and depression have changed my life. I have tried and done everything the doctors and others have told me in these 2 years. I set 1 or 2 goals for the day and do them in the morning stopping to rest when I need to. I fix dinner in the morning too. Afternoons are nap time 2 to 3 hours. I eat alot better and stay hydrated. It has really changed my life but I finally know what is wrong with me! Have you got any suggestions??
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@taunya6543
Thanks for the uplift. What you said makes great sense. Bless you for sharing your wisdom. 😘
@taunya6543, thanks for the advice. It makes a great deal of sense. 🙂
Nothing much!
@suefish
I wish. This is getting way too old.
GAME CHANGER - Mestinon (pyridostigmine) is a prescription medication (primarily used to treat myasthenia gravis) and i've been on it for 6 months now. I have 60mg pills - started 1/4 of a pill twice a day for a week, then 1/2 a pill twice a day for a week and now i'm on 1 pill twice a day. My doctor from Columbia Pres in NYC prescribed this to me and would like me to stay on it for a bit longer. I couldn't do anything without a cfs crash before i started it, now i can clean my house, my brain fog is gone and both Sunday and Tuesday i walked over 8 miles. I was tired afterwards, but... would you be? I skipped a day of meds by accident (visiting a friend) and i was very very tired w/o doing much. I understand this doesn't help everyone, but it is LIFE CHANGING.
@suefish https://doctors.columbia.edu/us/ny/new-york/steven-palmer-pa-180-fort-washington-avenue He's been helping me for 2 years via telehealth. I saw a therapist too since i thought i was going crazy and imagining all of this. And if you didn't see my post from a few seconds ago, here it is: AME CHANGER - Mestinon (pyridostigmine) is a prescription medication (primarily used to treat myasthenia gravis) and i've been on it for 6 months now. I have 60mg pills - started 1/4 of a pill twice a day for a week, then 1/2 a pill twice a day for a week and now i'm on 1 pill twice a day. My doctor from Columbia Pres in NYC prescribed this to me and would like me to stay on it for a bit longer. I couldn't do anything without a cfs crash before i started it, now i can clean my house, my brain fog is gone and both Sunday and Tuesday i walked over 8 miles. I was tired afterwards, but... would you be? I skipped a day of meds by accident (visiting a friend) and i was very very tired w/o doing much. I understand this doesn't help everyone, but it is LIFE CHANGING.
@akabarracuda Major thanks! I will get busy as soon as possible to see a doc. Bless you.
@akabarracuda Thanks for the information! Will give it a try soon...
@akabarracuda Did you have shortness of breath too? That is a real problem for me along with fatigue and brain fog...
I have asthma and have a really hard time when the weather gets cold and dry, so I have NO idea if LC affected it. I did see 4 pulmonologists, but they never mentioned a connection. (I have nebulizers, an oral med and inhalers.) Saunas have helped me!