Awful fatigue, shortness of breath, brain fog..anything helping you?
I have been a long hauler 2 years now. Fatigue, shortness of breath, brain fog and depression have changed my life. I have tried and done everything the doctors and others have told me in these 2 years. I set 1 or 2 goals for the day and do them in the morning stopping to rest when I need to. I fix dinner in the morning too. Afternoons are nap time 2 to 3 hours. I eat alot better and stay hydrated. It has really changed my life but I finally know what is wrong with me! Have you got any suggestions??
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@donnie46 Hello again...I am so sorry that you have other health issues that keep you close to home. I am very grateful to be able to spend 6 months in Florida. Our condo in Fort Myers was lost to Hurricane Ian and that was a mess getting it rebuilt..I think that stress has made my covid worse. Life in Florida is pretty much the same as Indy. Hopping after the stress of moving this spring that doing nothing but relaxing will help. Please take care of you and keep going!
@justfadeaway I am so sorry you are feeling that way but am glad you found this site. Maybe some of the information you find here will help you. You are not alone because there are so many of us who are here to help each other and maybe you.
@taunya6543
You are correct...all that our bodies endure affects our brain...aka STRESS! Losing your condo to a hurricane and then re-building drained you of whatever mental reserve you might have had. You deserve BIG POINTS for ensuring you would have a place in Florida so you could continue spending winters there while feeling better with daily sunshine. Bask in the southern warmth this winter as I remain in the north....my cup of tea and watching falling snow means that we balance each other. How great is that for two people who just recently connected?!?!
I am an 85 year old woman, living alone and have had Long Covid for 6 months now. My Dr. does believe it exists which has been helpful and he also has been some of his patients get better which offers a bit of hope. He ordered a brain MRI to rule out any other brain issues. The fatigue and brain fog and dizziness is constant nowadays and I am only able to do some cooking and other household chores with breaks in between. I usually have to take a long nap in the afternoons. I also have PEM and really can't walk far. I have found Toni Bernards book, "How to be Sick" very helpful to keep me from feeling depression and despair about this condition. I also find medical marajuana has decreased the brain fog symptoms . I try to research the studies going on now to understand better how LC affects the entire body. This site and peoples sharing and caring is also a relief as I don't think my friends and family understand how debilitating this is. I send compassion to everyone. Do all you can to take care of yourselves.
I just found this site. Like you, I am in my ‘70’s. I was so healthy and active until this nightmare hit. I am still striving for peace and acceptance of where I am in my life right now. I got COVID in December 2023 but I never recovered. The brain fog, fatigue, crashes, body aches, anxiety, sleep problems, and exhaustion are things I deal with almost daily. I have an excellent PCP. She referred me to a major local hospital that has a clinic for Long COVID. I was given Naltrexone that this particular clinic uses for its LC patients but I’m only able to take it in small doses. I am trying to learn more about this very complicated, debilitating, and life-changing illness. Thank you all for sharing honestly about your struggles.
@caldiana13 I feel your pain...did the Naltrexone help you at all? Side effects? Others have used this and I'm thinking about asking my doctor about it. Hang in there...might be light at the end of this very dark tunnel yet!
@donnie46 Don't forget those warm fluffy slippers and a cozy blanket and a good book with that tea!!
@taunya6543
All here are “at the ready” for when snow arrives. In return, I suspect that you have sunscreen and sun hat prepared for six months under the sun.
May you travel safely, enjoy time away and return as refreshed as possible. Shall be thinking of you from afar. As my tea brews, I’ll imagine ice cubes in you glass. It’s all about balance…and WE do it very well!
Donnie46
@donnie46 Thanks for your words. They may appear like just words forming a sentence, but the power of what you said is real.
I am wondering if the Naltrexone works or is helpful at all. Can people who have tried it report the effects?