Awful fatigue, shortness of breath, brain fog..anything helping you?

Posted by taunya6543 @taunya6543, Sep 22 11:06pm

I have been a long hauler 2 years now. Fatigue, shortness of breath, brain fog and depression have changed my life. I have tried and done everything the doctors and others have told me in these 2 years. I set 1 or 2 goals for the day and do them in the morning stopping to rest when I need to. I fix dinner in the morning too. Afternoons are nap time 2 to 3 hours. I eat alot better and stay hydrated. It has really changed my life but I finally know what is wrong with me! Have you got any suggestions??

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Profile picture for donnie46 @donnie46

Hello again Tanya6543.
How ironic that we are both 79 and "twins" in age and in the land of medicine. I applaud your being able to travel to Florida for six months. That is beyond my ability since I have other serious medical issues that rule my life, but glad to know you are able to be "on the move."
I've also been "downsizing." That saps mental and physical energy, so let's take a big BOW for getting through it. You are *there* in Indiana while I am *here* in Massachusetts, and we could NEVER imagine that anything might bring us together. Now to focus on the "miles of smiles" that connect us as SURVIVORS! Strangers are friends we've not yet met. We connected on this marvelous site, so we are strangers no more. I wish you the BEST of everything because that is what we deserve...no question about it! Many thanks for replying and know that a seventy-nine year old Grandmother in Massachusetts smiles because you helped establish this new connection.

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@donnie46 Hello again...I am so sorry that you have other health issues that keep you close to home. I am very grateful to be able to spend 6 months in Florida. Our condo in Fort Myers was lost to Hurricane Ian and that was a mess getting it rebuilt..I think that stress has made my covid worse. Life in Florida is pretty much the same as Indy. Hopping after the stress of moving this spring that doing nothing but relaxing will help. Please take care of you and keep going!

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Profile picture for justfadeaway @justfadeaway

It's been over three years having these long covid feelings. In my country, there is no such diagnosis as long covid. I have been to several famous hospitals in Beijing and Shanghai, meeting many famous doctors. Yet, they all say that I was being paranoid and I should stop thinking about these things. Everthing seems normal after CT/Ultra inspection. Saddly nobody is studying long covid at all because it doesn't exsit officially.

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@justfadeaway I am so sorry you are feeling that way but am glad you found this site. Maybe some of the information you find here will help you. You are not alone because there are so many of us who are here to help each other and maybe you.

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Profile picture for taunya6543 @taunya6543

@donnie46 Hello again...I am so sorry that you have other health issues that keep you close to home. I am very grateful to be able to spend 6 months in Florida. Our condo in Fort Myers was lost to Hurricane Ian and that was a mess getting it rebuilt..I think that stress has made my covid worse. Life in Florida is pretty much the same as Indy. Hopping after the stress of moving this spring that doing nothing but relaxing will help. Please take care of you and keep going!

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@taunya6543

You are correct...all that our bodies endure affects our brain...aka STRESS! Losing your condo to a hurricane and then re-building drained you of whatever mental reserve you might have had. You deserve BIG POINTS for ensuring you would have a place in Florida so you could continue spending winters there while feeling better with daily sunshine. Bask in the southern warmth this winter as I remain in the north....my cup of tea and watching falling snow means that we balance each other. How great is that for two people who just recently connected?!?!

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I am an 85 year old woman, living alone and have had Long Covid for 6 months now. My Dr. does believe it exists which has been helpful and he also has been some of his patients get better which offers a bit of hope. He ordered a brain MRI to rule out any other brain issues. The fatigue and brain fog and dizziness is constant nowadays and I am only able to do some cooking and other household chores with breaks in between. I usually have to take a long nap in the afternoons. I also have PEM and really can't walk far. I have found Toni Bernards book, "How to be Sick" very helpful to keep me from feeling depression and despair about this condition. I also find medical marajuana has decreased the brain fog symptoms . I try to research the studies going on now to understand better how LC affects the entire body. This site and peoples sharing and caring is also a relief as I don't think my friends and family understand how debilitating this is. I send compassion to everyone. Do all you can to take care of yourselves.

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I just found this site. Like you, I am in my ‘70’s. I was so healthy and active until this nightmare hit. I am still striving for peace and acceptance of where I am in my life right now. I got COVID in December 2023 but I never recovered. The brain fog, fatigue, crashes, body aches, anxiety, sleep problems, and exhaustion are things I deal with almost daily. I have an excellent PCP. She referred me to a major local hospital that has a clinic for Long COVID. I was given Naltrexone that this particular clinic uses for its LC patients but I’m only able to take it in small doses. I am trying to learn more about this very complicated, debilitating, and life-changing illness. Thank you all for sharing honestly about your struggles.

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Profile picture for caldiana13 @caldiana13

I just found this site. Like you, I am in my ‘70’s. I was so healthy and active until this nightmare hit. I am still striving for peace and acceptance of where I am in my life right now. I got COVID in December 2023 but I never recovered. The brain fog, fatigue, crashes, body aches, anxiety, sleep problems, and exhaustion are things I deal with almost daily. I have an excellent PCP. She referred me to a major local hospital that has a clinic for Long COVID. I was given Naltrexone that this particular clinic uses for its LC patients but I’m only able to take it in small doses. I am trying to learn more about this very complicated, debilitating, and life-changing illness. Thank you all for sharing honestly about your struggles.

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@caldiana13 I feel your pain...did the Naltrexone help you at all? Side effects? Others have used this and I'm thinking about asking my doctor about it. Hang in there...might be light at the end of this very dark tunnel yet!

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Profile picture for donnie46 @donnie46

@taunya6543

You are correct...all that our bodies endure affects our brain...aka STRESS! Losing your condo to a hurricane and then re-building drained you of whatever mental reserve you might have had. You deserve BIG POINTS for ensuring you would have a place in Florida so you could continue spending winters there while feeling better with daily sunshine. Bask in the southern warmth this winter as I remain in the north....my cup of tea and watching falling snow means that we balance each other. How great is that for two people who just recently connected?!?!

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@donnie46 Don't forget those warm fluffy slippers and a cozy blanket and a good book with that tea!!

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Profile picture for taunya6543 @taunya6543

@donnie46 Don't forget those warm fluffy slippers and a cozy blanket and a good book with that tea!!

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@taunya6543
All here are “at the ready” for when snow arrives. In return, I suspect that you have sunscreen and sun hat prepared for six months under the sun.

May you travel safely, enjoy time away and return as refreshed as possible. Shall be thinking of you from afar. As my tea brews, I’ll imagine ice cubes in you glass. It’s all about balance…and WE do it very well!

Donnie46

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Profile picture for donnie46 @donnie46

Dear Taunya6543,
Welcome to the unsolved world of Long Covid. I have exactly the same symptoms....EVERYTHING you are experiencing duplicates my situation. Got Covid in 2020 at a very active age seventy. Have found no one who has better suggestions or information than this Mayo site. Although no cure has been found, the site provides information that local doctors often do not know, it provides support that non-LC survivors don't always give to us, and it has allowed me to be "ok" with whatever I can accomplish in a day...and sometimes that is very little. I continue to believe that the next day will spur more activity, BUT do NOT beat myself up if that does not occur. Even close family members try but are unable to fully understand our situation because we do not always completely understand it ourselves. I attempt to take the advice of my wonderful P.C....."be prepared to live with this for the rest of your life." Disheartening?...yes. Disappointing?...yes. Demoralizing?...yes. Unexplainable?...yes. BUT...her words become more important as time passes because no matter what another person experiences or believes , WE must believe that we are doing our best under horrendous circumstances, and what WE think is all that matters. Sounds harsh, but who else walks in our shoes? Before finding this site, I duplicated all you expressed. Now I know there are others like me, others who are surviving, others who would NEVER judge me, others who understand, others who are suffering similar (or worse) aspects of this terrible situation and others who are more debilitated than I...hard to believe, but true.
Do whatever you can accomplish, feel proud that you make that effort and be as patient with yourself as you are with others. You did not ask for this, you do not deserve negativity from others and please know you are NOT alone. I am your medical twin...aka one in spirit from afar. Most people on this site have some of my symptoms, some have additional symptoms, some are healing, some are not. YOU are the first person who literally duplicates my situation. I am sad for you yet heartened to know you exist and extremely grateful you wrote. You learned much sooner than I what was wrong plus you are much younger. There is more hope for your progress than for mine. I appreciate you from afar to a greater extent than you can imagine. If you are inclined to reveal....may I ask the state you call home? I am in Massachusetts. Whether near or far, NEVER forget that you are very special!!! Perhaps my approaching age eighty carries a bit of wisdom worth remembering. Only YOU can decide.

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@donnie46 Thanks for your words. They may appear like just words forming a sentence, but the power of what you said is real.

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I am wondering if the Naltrexone works or is helpful at all. Can people who have tried it report the effects?

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