← Return to Heart transplant: recovering but steroids are affecting behavior

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@mlee1969

Unfortuantly we are all different, in the begining it can be very difficult. Hard to say. I know all medicines go down as you put to gather days out from surgery date. I do have to say that I wasn't the funiest person to be around back then. I had my transplant on April of 2015. I'm alright. Also still married so at times its baby steps. Stay busy, trust in doctors, do something you enjoy. The doctors know. Wish you the best Gary

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Replies to "Unfortuantly we are all different, in the begining it can be very difficult. Hard to say...."

I would be happy to share with everyone. I started out with what my doctor and i thought was my asthma and we kept trying different medicines that weren't working so she sent me to see a pulmonologist on the 23rd of december of 2005 and i mentioned to him that i had had a heart mumur when i was little so he decided to do and EKG on me he came back in and told me I was not going home that i had had a major heart attack and I was going to the hospital thats when the cardiologist first saw me and on christmas eve of 2005 they did an emergency angiogram on me but i knew on tbe 23rd of december that i needed tne transplant because they did an x-ray and an MRI and a CT scan and they all should that I should not have survived the heart attack as i had the rarest form of congestive heart failure or cardiomyopathy there is i had cardimyopathy with ridgity and there was no coming back from that. I was 40 years old when diagnosed with CHF and it was determined that a cold caused it and mind you it was the very fist real cold i had ever had not caused by allergies they determined that i had caught the cold when i did a 13 mile walk with my daughter and her gym class and when we thought it went away after a couple days it had actually moved into my heart and waited to attack my heart so even though I don't need to wear a mask anymore I still do ad I take public transportation ( the city bus) and so take all precautions and my doctors agree with me that it is safer for me to wear one

For me it was a long journey as my doctors and I were not sure that i would ever get a heart and as i couldn't go on the transplant list until both my kids were taken care of i had to wait until my daughter was old enough to move into an adult family home where they would take care of her. I wasn't worried about whether I would get a heart my concerns were about my son and daugjter and my mom and who would take care of them when I was gone if I didn't get the transplant or even when I did get it just staying alive for them was my main concern while waiting for transplant

@glinda, Thank you for sharing your story. I feel like I need to say more, however, the only word that comes to my mind is, "Inspiring!"

Did you know that we have a discussion that was started a few months ago, in October, that is titled, "Transplant Stories that Inspire: What's Yours?" I invite you to click on this link and read what others have already shared. Please, consider adding your own.
https://connect.mayoclinic.org/discussion/patient-stories/
Rosemary