Wildly fluctuating O2 levels

Posted by Phoenix @kudzu, Jul 16, 2022

I’m experiencing wildly fluctuating o2 levels on finger oximeter. This morning already I’ve been everywhere from 71 to 99, especially while standing still.
I went to the ER June 3 with this and they couldn’t find anything. My pft of June 3 indicated restrictive lung disease. May or may not be due to Amiodarone.
I’m going to Mayo July 27 to see a pulmonologist.
Very scary and depressing.
I know if I go back to the ER they probably won’t find anything, and I read in my medical records that my pcp has diagnosed hypochondriasis(not the case, this is really happening).
Anyone else have this?

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Profile picture for staystrong63 @staystrong63

@SusanEllen66 I have been having very erratic fluctuations in my sPO2 for almost a year. I have had it drop to 72 once and 79. Most of the time it fluctuates between 86 to 97. I’ve noticed it is affected by my position a lot. For example laying back on the couch, laying flat or even sometimes bending down or twisting to one side. I have had 6 emergency room visits, a 4 day hospital stay and seen numerous doctors. No one seems to be able to diagnose me. One doctor said maybe long haul Covid, one says I have atelectasis in my lungs that may contribute, at one point they said I had a possible lung clot, that now is not there…no definitive answers. I have sleep apnea and have been using oxygen therapy at night or when I lay down.
I am constantly fatigued and sometimes feel dizzy.
I am no further closer to a diagnosis than I was a year ago and still have the same symptoms, although I can function better now. Maybe since I’ve had the 02 supplementation…idk.

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@staystrong63 I have similar issues although I don’t go down that far. 85 is the low for me.

Use a finger pulse oximeter too. Write down your time of day, your activity, and oxygen percentage, but wait until it stops at a percentage. You can compare it with your watch.

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Profile picture for gigipigi @gigipigi

@dianemb get an O2 ring!

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@gigipigi yes, the watch is a good indicator for you to check on your self. I find it comforting. However it’s not perfect.
It helps me know if I feel a bit “off” whether or not I’m in an emergency situation or not.

It keeps a record of the readings for your reference.

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I have the same thing! I have 4 pulse oximeters and I have COPD. I worry too especially when I get sick then it drops low. I went to the ER and they thought I was having panic attacks; it's degrading. I asked for pulmonologist and they got mad! They wouldn't give me an appointment. Next time I'm sick I will demand an appointment.

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Profile picture for Phoenix @kudzu

PS; I did go to Mayo for a pulmonologist consult and was told if there were anything serious wrong with my lungs I wouldn’t be able to get my levels up to 99%.
I also did a VO2 max test at Mayo that turned out well.
So, I don’t have any answers about my levels; they just keep saying they can’t be accurate.
I was inactive on the website for 2 years and now I see a lot of people had the same experience. Don’t know.

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@kudzu "I did go to Mayo for a pulmonologist consult and was told if there were anything serious wrong with my lungs I wouldn’t be able to get my levels up to 99%."
Did you go to Mayo in Arizona? Did you see an MD or PA or NP?
That comment is medically inaccurate. I have very good oxygen saturation when sitting. but I need oxygen for exertion and sleeping. My diagnosis includes three reasons for my drops in oxygen - all serious and life threatening and all tested and documented in my medical reports.

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Profile picture for vic83 @vic83

@kudzu "I did go to Mayo for a pulmonologist consult and was told if there were anything serious wrong with my lungs I wouldn’t be able to get my levels up to 99%."
Did you go to Mayo in Arizona? Did you see an MD or PA or NP?
That comment is medically inaccurate. I have very good oxygen saturation when sitting. but I need oxygen for exertion and sleeping. My diagnosis includes three reasons for my drops in oxygen - all serious and life threatening and all tested and documented in my medical reports.

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@vic83
I went to Mayo in Rochester Mn, saw an MD, and that comment is simply reporting what the doctors told me. If it’s inaccurate, that’s on them.
My activity level and subsequent testing seem to bear them out, though.
Sorry to hear about your situation; maybe there are a number of reasons for fluctuating o2 levels?
Best wishes to you.

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I have the same issue but might have an answer. I think it could be down to blood supply / finger temperature. When my fingers are warm and have red tips I get a reading in the 97 -99 range but when my fingers are cold / pale it drops to 90 or less and the alarm goes off! Moral of the story, keep warm?

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I have Reynauds and yes staying warm will change the oxomiter readings. Recently I had them checked with a reader taped to my forehead and one on my finger. The finger readings were less than 90, but the forehead was in the 90s. I would recommend asking for anyone reading an oxomiter to consider you might have Reynauds. They also took my artiral blood, from my wrist so I would also have them consider another place if you have Reynauds as your blood stays in your core to keep your vital organs well . Read up on Reynauds.

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