Anyone been prescribed Ohtuvayre (new med)? Your experience?

Great you can have it at no charge. I agree that it’s considered an add-on to triple-therapy, which you have with Trelegy. Fingers crossed you benefit as others have!

I tried it for 2 weeks started noticing my O2 numbers were crazy. I’m on oxygen 24/7 at 2 liters, now need to bump it up to the highest available. Simply walking a very short distance brings my heart rate up. I stopped using it over a month ago and the numbers are still not back where they use to be.

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I am on Ohtuyare and so far I can breathe deeper. I was very happy the first couple weeks. I even called lung doctor to tell him how great it was working. Then I had family come to get me to travel by car to a family gathering and I have to stay several days. My breathing has been terrible. So right now I am confused how much it is helping. I just know I do not want to Leave home over night again. It’s like packing a hospital. Maybe when I get back home I will do better. Does traveling make any of you worse?

Took my first treatment today???

Used it for a week was not impressed with it at all! So disappointing after all the hype! I am no longer using it! But some are based on the stock!

@kndaustin71 it worked maybe 4 months now back to being out of breath

@kndaustina week is hardly enough time. The manufacturer suggests 5-6 weeks minimum.
I am on it and noticed the difference after weeks.

@mrmover I noticed a big change maybe in a week I was so happy but now 4 months later i started getting out of breath again told my pulmonary doctor he wants me to still continue and in December I get a catscan and see him in January, then see what happens. I feel it’s crazy continuing buying the medicine if I’m winded but I’ll give it a little longer then I’ll tell the doctor why buy and continue if I’m like this

@guslogan, how are you doing on Ohtuvayre so far?

Just started this (10/08/2025) medicine (Ohtuvayre), no results of any kind as of yet, I am praying that this will work....soon !! I'm to the point where I can barely do anything, I just would like to be able to function somewhat normally, I know I'll never be able to breathe like when I was 24-25 yrs. old again, but just to be able to run the vacuum, or make my bed, without almost collapsing would surely be a blessing !!
I will say prayers for everyone who suffers with this miserable affliction 🙏