Living with colorectal cancer - Meet others & come say hi

Welcome to the Colorectal Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with colorectal cancer or caring for someone with colorectal cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Colorectal Cancer Support Group.

Hi. My name is David and I have stage 4 colon cancer

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@dgaravaglia

Hi. My name is David and I have stage 4 colon cancer

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Hi Dave! Welcome to the group! I just joined not long ago.. and I found the people on here very kind and helpful. I wish you all the best. I'm Michelle Ceacum Cancer Stage 2 T3. No chemo needed just surgery... I was very lucky. Have a great day.

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Hi im james im 47 yr old. Had colon cancer like7yrs. And would not go get checked.tell 3 yrs ago.cause did not want no bag on me. Was losing blood in stoll for yrs.as soon as eat always had to go to restroom. Finally got to were i was down to 95 lbs. And my red blood cell count went so low. Couldnt stay awake and had to have blood transfussion .with in 6 months had all my large intistine taking out.and stuck with bag for rest of my life. I did heating ac refrigeration all my life.cant do now. Cause of dehydration.and bending now. Dont wait to get checked. Time can save you from all problems i have. .was told my surgery was only going to be about 4 yrs and would be walking same day. And be hooked back up in 6 months to yr. My surgery was 12 hrs.didnt wake up to next day. Didnt walk for 2 wks and in hospital almost 2 months.. People dont wait. Testing can save you so much.yes wearing bag suxs. Wearing them for rest of your life is even worse. Going through depression and so so much more. And getting used to myself took so much. I didnt want to be around myself much less than around other people. Sleeping by my self. And feeling useless . after last 2 yrs. Figuring how to live has been something. To say the least .

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Hi james sockwell 48 yrs old

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@sockwelljames- Welcome to Mayo Connect cancer recurrence group. I'm sorry that you are having such a tough time with your bowel resections. I can't imagine the degree of patience you have to have to learn to live with this type of cancer and its indignities. I'm glad that you are on your way to better times.
You might be interested in the Colorectal Group and the Depression Group
> https://connect.mayoclinic.org/group/colorectal-cancer/
> https://connect.mayoclinic.org/group/depression-anxiety/

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@sockwelljames

Hi im james im 47 yr old. Had colon cancer like7yrs. And would not go get checked.tell 3 yrs ago.cause did not want no bag on me. Was losing blood in stoll for yrs.as soon as eat always had to go to restroom. Finally got to were i was down to 95 lbs. And my red blood cell count went so low. Couldnt stay awake and had to have blood transfussion .with in 6 months had all my large intistine taking out.and stuck with bag for rest of my life. I did heating ac refrigeration all my life.cant do now. Cause of dehydration.and bending now. Dont wait to get checked. Time can save you from all problems i have. .was told my surgery was only going to be about 4 yrs and would be walking same day. And be hooked back up in 6 months to yr. My surgery was 12 hrs.didnt wake up to next day. Didnt walk for 2 wks and in hospital almost 2 months.. People dont wait. Testing can save you so much.yes wearing bag suxs. Wearing them for rest of your life is even worse. Going through depression and so so much more. And getting used to myself took so much. I didnt want to be around myself much less than around other people. Sleeping by my self. And feeling useless . after last 2 yrs. Figuring how to live has been something. To say the least .

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I hope you are finally finding some peace and joy back in your life? I had rectal Cancer and suffering with LARS. everyday. I understand what you are going through. I hope you have a good support system in your life. I just found a Facebook site that is full of live, support,and knowledge. Best if luck to you!!

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Hi James, be strong, be positive and be patience. Please follow up with Mayo community and support for necessary action. You can get help and support connecting Mayo community. Best of luck. Take care
Best, Soul

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@brettb83 @sockwelljames @shilo @michelle74 @dgaravaglia @merpreb
Having been diagnosed with 2 cancers myself within 2 weeks time span. I completely understand the toll it takes on us mentally.
It takes some time to get through the initial SHOCK . I know I went into shock. I couldn't believe what I was being told. Especially since I had zero symptoms. It took a while o go through the Shock stage.
Then I went through the How could this happen stage? I went searching for answers. Thinking about everything I did in life, and everything I put in my mouth. Trying to figure out, what the hell, could I have done to cause me to get 2 cancers. I became obsessed searching for answers. I think I wore myself out doing this? I still have no answers just possible causes.
Then I went to the acceptance stage.Now what would be my best course, to keep these cancers under my control? Do I change my eating habits? Do I work out more? What can I change in my lifestyle to keep me non systematic?
This is the hardest stage for me. Cause I think about how I was before cancer ? I only had 2 bad habits Coffee, and an on and off smoker. I was always watching what I ate before cancer. I worked out 4 days a week. Lifted weights. I was not a junk food eater.
Going through these stages drains you mentally.
It has been slow going getting back to normal, Talking to others like me on Mayo Connect has helped me a lot to calm down. I think also time has helped me to realize I'm going to be Ok.
I try and do things that make me happy. .
Worrying and Stressing over the fact that I have Cancer is draining..
You need get involved go out be around people. Try and take walks and enjoy the little things in life.
I know I find myself doing things I never dreamed of.
Mayo Clinic describes what it takes to cure people.
It is called FAITH, AND HOPE WHICH EQUALS HEALING..
Without Faith there is No Hope and without Hope there are NO Cures to heal.
We all need to Keep Faith which give us Hope, and Hope will Heal us .
This will give us the ability to be Cancer Warriors, of which we already are.. 🙂
God Bless you All...
Jackie

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@travelgirl

@brettb83 @sockwelljames @shilo @michelle74 @dgaravaglia @merpreb
Having been diagnosed with 2 cancers myself within 2 weeks time span. I completely understand the toll it takes on us mentally.
It takes some time to get through the initial SHOCK . I know I went into shock. I couldn't believe what I was being told. Especially since I had zero symptoms. It took a while o go through the Shock stage.
Then I went through the How could this happen stage? I went searching for answers. Thinking about everything I did in life, and everything I put in my mouth. Trying to figure out, what the hell, could I have done to cause me to get 2 cancers. I became obsessed searching for answers. I think I wore myself out doing this? I still have no answers just possible causes.
Then I went to the acceptance stage.Now what would be my best course, to keep these cancers under my control? Do I change my eating habits? Do I work out more? What can I change in my lifestyle to keep me non systematic?
This is the hardest stage for me. Cause I think about how I was before cancer ? I only had 2 bad habits Coffee, and an on and off smoker. I was always watching what I ate before cancer. I worked out 4 days a week. Lifted weights. I was not a junk food eater.
Going through these stages drains you mentally.
It has been slow going getting back to normal, Talking to others like me on Mayo Connect has helped me a lot to calm down. I think also time has helped me to realize I'm going to be Ok.
I try and do things that make me happy. .
Worrying and Stressing over the fact that I have Cancer is draining..
You need get involved go out be around people. Try and take walks and enjoy the little things in life.
I know I find myself doing things I never dreamed of.
Mayo Clinic describes what it takes to cure people.
It is called FAITH, AND HOPE WHICH EQUALS HEALING..
Without Faith there is No Hope and without Hope there are NO Cures to heal.
We all need to Keep Faith which give us Hope, and Hope will Heal us .
This will give us the ability to be Cancer Warriors, of which we already are.. 🙂
God Bless you All...
Jackie

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Hi. I just try to live a normal life while dealing with chemo. I hate it and sometimes which that my cancer would take me . but I also know or pray that a cure or an easier way to deal with my cancer is reachable sometime soon. I pray that everyone could be helped and cancer as we know it would go away.

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Hi. Wonder if anyone know where someone could find out if a clinical trial is working and chances that it get expanded to multiple sites. Or when the fda would approve the treatment for everyone

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