What are you best tips for being more patient?
Hello. I just found this group an hour ago and have been reading through your posts, teary because of your kindness and the tips I have already learned. My husband is newly diagnosed. Patience doesn't come naturally to me. I need and want to step up and treat him now the way I know he would treat me if our situations were reversed. When I hold my frustration in, I feel it eating me up inside. Example - asking me to show him how to do the same task on the computer more than twenty times in one day. Your tips for how to be more patient will be put to good use - thank you so much.
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My husband hasn’t started to ask the same question over and over, yet. It will probably come.
When my Mom would sometimes she was like someone else’s person and would ask me if she had just asked the question a few minutes ago. I would laugh and say yes, but I didn’t change the answer! it just brought smiles to all our faces.
I was much more patient with her and my Daddy (he was just very elderly & frail) and I’ve often asked myself why I can’t be more patient with my husband. I try to tell myself when I get frustrated that his brain is broken. If his leg was broken I wouldn’t expect him to be able to walk on it, and the broken brain is pretty much the same.
Peace,
Cheryl
@shmerdloff
I found your advice to be an extremely powerful reminder: Love is all there is. Being a loving caregiving, however, is daunting.
Face it: For many of us, life no longer seems like living, and it is difficult to be joyful, have fun or be funny when we know the inevitable. I miss our former selves and our prior life but my role now is to make my husband as comfortable as possible. That, however, hasn't deterred me from being Cruella de Vil.
Last night, I decided to picture myself as an usher at a wedding ceremony--ushering her Prince down the aisle to eternal rest and union with God.
I also found this reading helpful:
@nmrcdigman
Thanks for sharing. I, too, have been impatient with my husband because I am a sleep-deprived zombie and he pushes my buttons all day (and night) long--that is, I allow him to get to me even though he doesn't know what he's doing or saying a lot of the times.
I have been more patient, however, ever since reading the poignant post by bill2001 @bill2001 (See "The Long Quiet" posted September 1, 6:46pm). Repeated questions and repetitive behavior are preferable to me than long silences or being bed-ridden, which is what we could face with our respective spouses down the road, assuming we survive our caregiver journey.
@wtr2026, sure, I’ll share what I know, but I think there may be some other threads that will help too. My understanding so far….the treatments that are available for cognitive decline and dementia depends on the cause of the condition. I believe the meds have been approved for Alzheimer’s. Please chime in if that is not accurate. So, if my loved one was experiencing issues, it would be imperative to know why.
When my cousin first got severe symptoms, I jumped in as her health care POA. I got her in with her PCP and then a neurologist to find out what was causing the problem. She was only 63 years old, but had severe vascular dementia. I wanted to rule out a brain tumor, vitamin deficiency, fluid in the brain, etc. For me, that’s why determining the cause was important. Sadly, at the time her doctors said the meds for symptoms were designed for Alzheimer’s and not vascular dementia. She didn’t take them and progressed rapidly. She lived for 6 years. Two of those on hospice.
My father was diagnosed with Alzheimer’s. He went on Aricept and Memantine fairly early. They were very helpful for him and we believe it helped him maintain much more function for a much longer time otherwise. With his doctor’s recommendation, (there aren’t studies that support the continued use if meds after severe stage is reached). I started lessening these meds once, but resumed after he seemed to do much worse. I resumed the meds and he went back to the same level. I let his doctor know.
So, I strongly encourage those meds.
But, my main excitement about meds are those that have recently been approved. I think that are intravenous meds and are quite expensive. I’ve read several posts around here about people getting those treatments! I hope and pray they work well. It’s worth a try, imo. Previously, there weren’t many options for people facing dementia. Now, there are and a possibility to delay progression. I’m hoping it turns out well!
This link describes the treatments, including the new iv infusion treatments.
https://www.mayoclinic.org/diseases-conditions/alzheimers-disease/in-depth/alzheimers-treatments/art-20047780
@georgescraftjr thank you for recommending "The Long Quiet" post. I will read it after I finish this note - I appreciate your wisdom and will watch out for sleep deprivation. Let's take care of ourselves too so we do survive the caregiver journey. It's not easy, but with the support of this group, we can do it. Thank you again!
@nmrcdigman thank you for supporting me. I am going to keep the broken leg analogy at the front of my brain. "I didn't change the answer" - what a perfect response! Thank you again - two days in this group and I feel like a different person. Grateful to you.
@tunared I wish I could give you some hope, because the road feels long and endless right now. That's beyond my power. My wish for you is that you have more good days than bad ones. You and your wife raised a wonderful son. You must feel proud of that. And that tells me you can do this too.
@georgescraftjr
"I miss our former selves and our prior life..." That's as good as it gets. The end is in the beginning. Only the unborn are the undying.
Isn't it better, as the end approaches, to be glad of what we had, and did, and loved, than to be bitter that it was all pain and a waste of time?
Don't cry because it's over. Be happy that it happened. Dr. Seuss.
@celia16 this is so tremendously helpful - I didn't know any of this. My husband had an MRI of his brain that showed loss of brain mass volume throughout the brain. I need to learn more and you've given me a good start. Thank you so much!
@wtr2026
Be sure to read all @bill2001's posts; he doesn't post very often, but when he does, they are powerful. I print all his posts, and when I'm at the end of my rope, I pull them out and reread them. The Calvary Is Not Coming, Frozen in Time, The Mirage of Caregiver Support. I print out posts that help or support me, and then I keep them handy in my desk drawer for reference when I'm feeling down or alone.