What are you best tips for being more patient?

Posted by wtr2026 @wtr2026, Sep 25 10:37am

Hello. I just found this group an hour ago and have been reading through your posts, teary because of your kindness and the tips I have already learned. My husband is newly diagnosed. Patience doesn't come naturally to me. I need and want to step up and treat him now the way I know he would treat me if our situations were reversed. When I hold my frustration in, I feel it eating me up inside. Example - asking me to show him how to do the same task on the computer more than twenty times in one day. Your tips for how to be more patient will be put to good use - thank you so much.

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My husband was diagnosed in 2012, and I've been his sole caregiver for a long time.
I'm far from perfect, but I always try to keep my patience in check. After all, he can't help it.
I miss being able to just sit and talk. So when he keeps asking the same question over and over, I think of it as his way of trying to engage in a conversation, and I try to answer as if it's my first time. I'm not always successful, like all of you, I'm tired!!!

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Profile picture for trishaanderson @trishaanderson

My husband was diagnosed in 2012, and I've been his sole caregiver for a long time.
I'm far from perfect, but I always try to keep my patience in check. After all, he can't help it.
I miss being able to just sit and talk. So when he keeps asking the same question over and over, I think of it as his way of trying to engage in a conversation, and I try to answer as if it's my first time. I'm not always successful, like all of you, I'm tired!!!

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@trishaanderson thank you - you've had many years of practice and sacrifice. I'm going to remember your advice to remember that repeated questions are my spouse's attempt to stay engaged. Best wishes to you.

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Profile picture for 1995victoria @1995victoria

Many many years ago I was a smoker, and when nervous I used to inhale deeply. I stopped smoking, but kept doing the inhaling, deep breathing. So when told the same thing for the 10th-20th-100th time, I just do my deep breathing. It was also my secret when doing a presentation or giving a speech, I would have cue card that said BREATHE. I think when anxious, nervous, frustrated, etc. I would hold my breath, then I learned to BREATHE, I found it really helps. When my cousin would call 12 times in a half hour to ask what day it was, I realized she couldn't help it, so I would just BREATHE, and I must confess after many many phone calls, I would stop answering an let my answering machine take the call, I did feel guilty, but in some ways it was self preservation.

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@1995victoria thank you! Except for a one evening class in the Alexander Technique, I haven't devoted any time to learning about or practicing breathing. I appreciate your good advice!

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Profile picture for cakbob @cakbob

Thanks for asking this question! I've also recently begun this journey with my husband and can become easily frustrated.

I try to stop, take a breath, and then respond as I know it's the MCI. I've also begun to ensure I take deep breaths periodically. It activates the parasympathetic nervous system which helps to calm you down. I also envision the fresh air going in with lots of patience and light and the bad dark frustrated air leaving.

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@cakbob This is a second reply to let you know how much your support has meant to me. I am a better person today than I was yesterday, thanks to the advice I received from you and others who responded. What felt impossible now feels doable. Although I have a long journey ahead, it looks brighter and happier now. What a difference you have made for me. Thank you!

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Profile picture for shmerdloff @shmerdloff

Two things I can think of:
If you do not internalize the negative energy which manifests itself inside you as frustration and anger, then you do not need patience because there is nothing you are "bottling up."
It's like Tai Chi (a valuable daily practice). You don't plant yourself in front of the energy and do battle with it. You see it coming and dance to the side or up to get out of its way, just going on with your caretaking duties and letting the negative energy fly by with neither resistance or collection, both of which will exhaust you.
In short, you can't change the circumstances or the effort required of you. You can change how you think/feel about it and how you react.
The other is the power of love. My wife and I have devoted our lives to each other for more than 50 years. There is nothing either of us wouldn't do for the other gladly in gratitude for our lives together.
If that's not love, what is?

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@shmerdloff This is a second reply to let you know how much your support has meant to me. I am a better person today than I was yesterday, thanks to the advice I received from you and others who responded. What felt impossible now feels doable. Although I have a long journey ahead, it looks brighter and happier now. What a difference you have made for me. Thank you!

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@wtr2026 You ask how you’ll ever be able to return members’ generosity—you have already done so by being kind and thankful in your answers and attitude. We so appreciate that on MCC because everyone deserves to be treated with respect and kindness! Thank you!!

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@becsbuddy oh gosh, now I am crying. An unexpected gift from the group is that I don't feel the need to vent to our children - who live far away. I don't want them to feel guilty or to be overly worried about us. I can't get over how much I gained from the advice I received. Thank you again - words are inadequate.

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Profile picture for Cxctucson @cxcordon

My mantra: "He can't help it." MCI is very disorienting for the caregiver. Most of the things he can't remember are minor and it can seem unbelievable that he cannot remember simple things like the location of the dishwasher pods - under the kitchen sink - the coffee pods - above the coffee maker. I have to repeat my mantra many times a day and give myself credit when I refrain from expressing my own humanness. Right now, another mantra is "it could be worse." Sending best wishes to all of you and your loved ones.

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@cxcordon thank you very much for taking time to share what has worked for you. Your mantra "it could be worse" made me smile because it reminded me of a religious sister who, if you were having a difficult time, would say "there's a spot for you in heaven now." Thank you for your good wishes, I am wishing you as many smooth days as possible.

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Profile picture for celia16 @celia16

@ocdogmom, very true! It’s amazing how the average person knows very little about dementia. I certainly didn’t. Initially, I thought I could make things better, help her understand, get things set up so it was easier……sadly, those things aren’t options. It’s bad and it gets worse. The only real help was keeping her calm and getting outside help to help lighten the load. Well, at least back in 2014. Now, there are actually treatments that can make a big difference. It’s very exciting! I’m hoping the new meds offer a lot of help. This gives us hope for the future!

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@celia16 "Bad is good when things get worse." I'm grateful that my husband can still handle his personal care and that he knows who I am. Before I found this amazing group, I doubted I could have the patience required. What a difference now. Could you please share more about medications that can help? My husband has refused to see a geriatrician or psychiatrist. Knowing that he might qualify for a medication that can help him could change his mind. Thank you for having such a positive attitude and sharing it here!

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Profile picture for wtr2026 @wtr2026

@shmerdloff This is a second reply to let you know how much your support has meant to me. I am a better person today than I was yesterday, thanks to the advice I received from you and others who responded. What felt impossible now feels doable. Although I have a long journey ahead, it looks brighter and happier now. What a difference you have made for me. Thank you!

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@wtr2026
Thank you for saying so. Feel free to stay in touch on the private chat for speedbumps along the way.

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Profile picture for Scott, Volunteer Mentor @IndianaScott

Hello, @wtr2026 I’m glad you found this group! I’m Scott and I was my wife’s caregiver for her 14+ year journey. Patience is tough to come by, for sure.

I have no magic solution but for me it was remembering my mantra of “she’s facing death everyday. I’m not, so I bet I can help her at least through today.” I also reminded myself that her unusual personality was not “her” but her disease. Reminding myself she had no control helped me be far more patient than I was in my past, too.

Just my thoughts.

Strength, Courage, & Peace

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@IndianaScott Scott, thanks for your comments because they brought me back to reality. my wife’s been telling me “she hates me “ and “wants me out of the house” all afternoon. i just left to grab a cup of coffee and read your comments. THANK YOU for bringing me back to reality. i know she can’t be left alone and cannot take care of herself but thankfully i have a son that steps in to help me with her. sometimes i feel so alone and lost 😞

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