What are you best tips for being more patient?
Hello. I just found this group an hour ago and have been reading through your posts, teary because of your kindness and the tips I have already learned. My husband is newly diagnosed. Patience doesn't come naturally to me. I need and want to step up and treat him now the way I know he would treat me if our situations were reversed. When I hold my frustration in, I feel it eating me up inside. Example - asking me to show him how to do the same task on the computer more than twenty times in one day. Your tips for how to be more patient will be put to good use - thank you so much.
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My husband was diagnosed in 2012, and I've been his sole caregiver for a long time.
I'm far from perfect, but I always try to keep my patience in check. After all, he can't help it.
I miss being able to just sit and talk. So when he keeps asking the same question over and over, I think of it as his way of trying to engage in a conversation, and I try to answer as if it's my first time. I'm not always successful, like all of you, I'm tired!!!
@trishaanderson thank you - you've had many years of practice and sacrifice. I'm going to remember your advice to remember that repeated questions are my spouse's attempt to stay engaged. Best wishes to you.
@1995victoria thank you! Except for a one evening class in the Alexander Technique, I haven't devoted any time to learning about or practicing breathing. I appreciate your good advice!
@cakbob This is a second reply to let you know how much your support has meant to me. I am a better person today than I was yesterday, thanks to the advice I received from you and others who responded. What felt impossible now feels doable. Although I have a long journey ahead, it looks brighter and happier now. What a difference you have made for me. Thank you!
@shmerdloff This is a second reply to let you know how much your support has meant to me. I am a better person today than I was yesterday, thanks to the advice I received from you and others who responded. What felt impossible now feels doable. Although I have a long journey ahead, it looks brighter and happier now. What a difference you have made for me. Thank you!
@becsbuddy oh gosh, now I am crying. An unexpected gift from the group is that I don't feel the need to vent to our children - who live far away. I don't want them to feel guilty or to be overly worried about us. I can't get over how much I gained from the advice I received. Thank you again - words are inadequate.
@cxcordon thank you very much for taking time to share what has worked for you. Your mantra "it could be worse" made me smile because it reminded me of a religious sister who, if you were having a difficult time, would say "there's a spot for you in heaven now." Thank you for your good wishes, I am wishing you as many smooth days as possible.
@celia16 "Bad is good when things get worse." I'm grateful that my husband can still handle his personal care and that he knows who I am. Before I found this amazing group, I doubted I could have the patience required. What a difference now. Could you please share more about medications that can help? My husband has refused to see a geriatrician or psychiatrist. Knowing that he might qualify for a medication that can help him could change his mind. Thank you for having such a positive attitude and sharing it here!
@wtr2026
Thank you for saying so. Feel free to stay in touch on the private chat for speedbumps along the way.
@IndianaScott Scott, thanks for your comments because they brought me back to reality. my wife’s been telling me “she hates me “ and “wants me out of the house” all afternoon. i just left to grab a cup of coffee and read your comments. THANK YOU for bringing me back to reality. i know she can’t be left alone and cannot take care of herself but thankfully i have a son that steps in to help me with her. sometimes i feel so alone and lost 😞