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Wildly fluctuating O2 levels

Posted by Phoenix @kudzu, Jul 16, 2022

I’m experiencing wildly fluctuating o2 levels on finger oximeter. This morning already I’ve been everywhere from 71 to 99, especially while standing still.
I went to the ER June 3 with this and they couldn’t find anything. My pft of June 3 indicated restrictive lung disease. May or may not be due to Amiodarone.
I’m going to Mayo July 27 to see a pulmonologist.
Very scary and depressing.
I know if I go back to the ER they probably won’t find anything, and I read in my medical records that my pcp has diagnosed hypochondriasis(not the case, this is really happening).
Anyone else have this?

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gigipigi | @gigipigi | Sep 26 4:09pm
In reply to @dianemb "@SusanEllen66 I am having trouble with my Apple watch oxygen reader. Do you have any suggestions?..." + (show)
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@SusanEllen66
I am having trouble with my Apple watch oxygen reader. Do you have any suggestions?
Thank you

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@dianemb get an O2 ring!

Shared files

O2 readers (O2-readers.pdf)

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gigipigi | @gigipigi | Sep 26 4:12pm

I am determined to find out the reason for my intermittent hypoxia readings. Of late, I have discovered that not only parasites can contribute to hypoxia, but also your gut health and fecal flora!
• https://pmc.ncbi.nlm.nih.gov/articles/PMC8339470/

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SusanEllen66 | @SusanEllen66 | Sep 28 12:32pm
In reply to @staystrong63 "@SusanEllen66 I have been having very erratic fluctuations in my sPO2 for almost a year. I..." + (show)
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@SusanEllen66 I have been having very erratic fluctuations in my sPO2 for almost a year. I have had it drop to 72 once and 79. Most of the time it fluctuates between 86 to 97. I’ve noticed it is affected by my position a lot. For example laying back on the couch, laying flat or even sometimes bending down or twisting to one side. I have had 6 emergency room visits, a 4 day hospital stay and seen numerous doctors. No one seems to be able to diagnose me. One doctor said maybe long haul Covid, one says I have atelectasis in my lungs that may contribute, at one point they said I had a possible lung clot, that now is not there…no definitive answers. I have sleep apnea and have been using oxygen therapy at night or when I lay down.
I am constantly fatigued and sometimes feel dizzy.
I am no further closer to a diagnosis than I was a year ago and still have the same symptoms, although I can function better now. Maybe since I’ve had the 02 supplementation…idk.

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@staystrong63 I have similar issues although I don’t go down that far. 85 is the low for me.

Use a finger pulse oximeter too. Write down your time of day, your activity, and oxygen percentage, but wait until it stops at a percentage. You can compare it with your watch.

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SusanEllen66 | @SusanEllen66 | Sep 28 12:39pm
In reply to @gigipigi "@dianemb get an O2 ring!" + (show)
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@dianemb get an O2 ring!

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@gigipigi yes, the watch is a good indicator for you to check on your self. I find it comforting. However it’s not perfect.
It helps me know if I feel a bit “off” whether or not I’m in an emergency situation or not.

It keeps a record of the readings for your reference.

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