What are you best tips for being more patient?

Posted by wtr2026 @wtr2026, Sep 25 10:37am

Hello. I just found this group an hour ago and have been reading through your posts, teary because of your kindness and the tips I have already learned. My husband is newly diagnosed. Patience doesn't come naturally to me. I need and want to step up and treat him now the way I know he would treat me if our situations were reversed. When I hold my frustration in, I feel it eating me up inside. Example - asking me to show him how to do the same task on the computer more than twenty times in one day. Your tips for how to be more patient will be put to good use - thank you so much.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

Profile picture for celia16 @celia16

Repeatings are particularly frustrating. I recall when my cousin began doing that A LOT! I initially reminded her she already asked the question, then one day I asked her if she realized she already asked it….she said no. So, I decided to always answer like it was the first time. And never tell her I’d answered it before. One thing I did was devise a game I played in my head. I counted how many tines I had to answer the same question. Lol. I kept a running total to see when I’d break the record. It helped a little. Especially when in the ER for long waits. While in those cubicles she would often be scared and anxious. She hated hospitals . She was so relieved I was there with her. So, she’d say, I love you so much! And, I say, I love you too! Pause….repeat about a minute later. Lol. This would go on for hours even when I tried to change the subject. I bet those other nearby patients found it odd and confusing. That is where I first stated the counting game. I did it in my head not aloud. Eventually, her repeatings stopped. Her speech eventually declined.

My father continued with repeatings and never lost all his speech. My mom struggled with it and no matter how often I reminded her, she felt the need to tell Daddy she had told him something several times before. I think some people are not well equipped to tolerate dementia behaviors. No one’s fault. I think it’s important to be realistic about it. Know your limitations and get help. Taking breaks, continuing to have your own activities and interests is vital. Imo, respite time is the most important thing for caregivers. I think being patient can lead to a lot of anxiety and caregiver fatigue. Read about that. It’s brutal. Even though I thought I was prepared…..it was a shock.

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@celia16 thank you for sharing your story - you have a lot of experience between caring for your dad and your cousin. I want to be the person who is equipped to tolerate dementia behaviors and your experiences and advice are helping me to take the first steps. Thank you so much.

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@wtr2026 Welcome to Mayo Clinic Connect ! This is a great group of people who will definitely have tips for you. You’ve already met @IndianaScott ! And if you have anything to offer in the other discussion groups, please do so.

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@becsbuddy thank you for your kind welcome. As I've been reading the helpful advice I've received, I thought: "How will I ever be able to return their generosity? I'll never be able to give advice about these issues." Perhaps with time and experience I will though. Thank you for volunteering to moderate here.

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Profile picture for gently @gently

wtr2026, this may not help you at all,
but I pretend that it is the very first time they are asking.
Never expect that he'll remember.
Bless your struggle.

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@gently I'm going to try this today. It may just work! Thank you very much for sharing your wisdom. And for your blessing. I appreciate you.

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Profile picture for shmerdloff @shmerdloff

Two things I can think of:
If you do not internalize the negative energy which manifests itself inside you as frustration and anger, then you do not need patience because there is nothing you are "bottling up."
It's like Tai Chi (a valuable daily practice). You don't plant yourself in front of the energy and do battle with it. You see it coming and dance to the side or up to get out of its way, just going on with your caretaking duties and letting the negative energy fly by with neither resistance or collection, both of which will exhaust you.
In short, you can't change the circumstances or the effort required of you. You can change how you think/feel about it and how you react.
The other is the power of love. My wife and I have devoted our lives to each other for more than 50 years. There is nothing either of us wouldn't do for the other gladly in gratitude for our lives together.
If that's not love, what is?

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@shmerdloff thank you for taking time to support me in this struggle. I'm visualizing your advice to let negative energy fly by with neither resistance or collection. Right now, I feel as if it would be a long road to reach that place, and the first steps may be the hardest. I may not be able today, yet I am certainly willing. Congratulations on your 50+ years together - that's marvelous. Thank you again!

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My mantra: "He can't help it." MCI is very disorienting for the caregiver. Most of the things he can't remember are minor and it can seem unbelievable that he cannot remember simple things like the location of the dishwasher pods - under the kitchen sink - the coffee pods - above the coffee maker. I have to repeat my mantra many times a day and give myself credit when I refrain from expressing my own humanness. Right now, another mantra is "it could be worse." Sending best wishes to all of you and your loved ones.

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I seriously doubt I have 'patience.' After explaining how to make a phone call with an iPhone for the 20th time in a day, I say, "We've tried to do this a lot today, how about we try it again tomorrow?" And she'll say, "Okay, that's a good idea. Will you help me tomorrow to learn how to do it?"

When I feel frustrated I go back to the mantra and ask mysef, "Are you okay right now?" and I say, "Yes I am." Sometimes it takes me five times asking until I get back to being current and out of being frustrated.

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Profile picture for judimahoney @judimahoney

Hello: Boy, the repetitions are my undoing. I reminded myself how patient I was with our children when they were little, that didn't help me to be more patient. I did the tally method to keep track of the number of repetitions, no help. Reminding my husband of the repetitions doesn't help.
I started writing down answers to the questions he keeps asking, and when he repeats I show him the note; helps a little sometimes
So... I just went out and bought a punching bag and boxing gloves. I don't want to develop an ulcer, so I need a release.
We were doing Tai Chi for nearly a year, now he doesn't want to anymore (maybe I'll continue on my own).
Good luck to you! 🫂

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@judimahoney getting the punching bag was hilarious to me. I’m working on my patience with my husband but sometimes I just want to SCREAM!

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Profile picture for wtr2026 @wtr2026

@shmerdloff thank you for taking time to support me in this struggle. I'm visualizing your advice to let negative energy fly by with neither resistance or collection. Right now, I feel as if it would be a long road to reach that place, and the first steps may be the hardest. I may not be able today, yet I am certainly willing. Congratulations on your 50+ years together - that's marvelous. Thank you again!

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@wtr2026
It is a long road. This challenge of caregiving can be a whetstone for you to sharpen a new skill for yourself-objectivity or non-attachment.
There are two arrows. One is a dx of dementia. The second arrow is the OMG why is this happening and what am I going to do. I am frightened, and this is awful. The catch is to not use the second arrow.
That being said, we are human and have human responses, but as much as one can not do arrow #2, there is a space for relief from the upsetting responses.
Also, set some quiet time aside for yourself and listen to a good meditation download.

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Thanks for asking this question! I've also recently begun this journey with my husband and can become easily frustrated.

I try to stop, take a breath, and then respond as I know it's the MCI. I've also begun to ensure I take deep breaths periodically. It activates the parasympathetic nervous system which helps to calm you down. I also envision the fresh air going in with lots of patience and light and the bad dark frustrated air leaving.

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Profile picture for cakbob @cakbob

Thanks for asking this question! I've also recently begun this journey with my husband and can become easily frustrated.

I try to stop, take a breath, and then respond as I know it's the MCI. I've also begun to ensure I take deep breaths periodically. It activates the parasympathetic nervous system which helps to calm you down. I also envision the fresh air going in with lots of patience and light and the bad dark frustrated air leaving.

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@cakbob breathing is good. Helps regulate things.
Also, shallow breathing cuts down on oxygen and increases CO 2. This deprivation triggers the brain into anxiety/panic.
B R E A T H E 🌬

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