Completed 5 years of anastrozole. Withdrawal symptoms? Side effects?

Posted by christinej @christinej, Jul 24, 2018

Monday, July 23rd, after consulting with Dr. Loprinzi, we decided to have me stop taking anastrozole. (Arimidex). It has been 5 years since I started the drug after breast cancer surgery and radiation. Has anyone stopped this drug and had any withdrawal symptoms? The nurse from Blue Group sent me an email today saying that there are no withdrawal symptoms after stopping this drug. Soooooooooooooo, is this all in my head? Definitely having some type of withdrawal.

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Profile picture for megunique @megunique

I appreciate your comments. I have felt fatigue on anastrazole and still 4 weeks after stopping (finished 5 years). Each year fatigue got a little worse and I too just do what I need to do. I am still able to strength training 3x a week and push myself but rest when I feel.like doing nothing much. I have been assured that the fatigue will get much better but to set realistic expectations because it can take months for your body to readjust. Patience is hard but I trust my oncologist!

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For me it took about 6 months to feel like myself again. Those drugs really beat the sh⭐️t out of me . The fatigue was the least of my problems. My bones were in constant pain .

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Profile picture for kensiejames @kensiejames

For me it took about 6 months to feel like myself again. Those drugs really beat the sh⭐️t out of me . The fatigue was the least of my problems. My bones were in constant pain .

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I took myself off the anastrozole 2 weeks ago and still have the severe stiffness in my fingers and shoulders. I see my oncologist in 3 weeks to discuss these problems.

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Profile picture for dmosssadler @dmosssadler

I had 3 positive nodes, but I was thrown back when the doctor said the world "qualify"...that didn't sit well with me. So I didn't want to take the Versenio..It just didn't sit well with me...I'm still on the fence...
I do want to thank you for sharing your experience with me.

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I had 3 positive lymph nodes too and prescribed Verzenio. Just wondering if you ever took it and what your experience was?

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So did anyone else get off anastrozole, and how long were you on it before you stopped? And did you have surgery at some point along the way? Thank you!

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I have been reading up on all the comments. Most are about the effects when they are on it but only a few regarding when they go off. I am grateful and blessed to say I did not have much problems when I was put on it back in 2020. In the midst now that I read reviews, I think my plantar facitis started then. I just stopped in mid March this year after 5 years on Anastrozole. I noticed my right leg gets a bit tired after a bout of walking....but most of all I notice (rather my friends did) that I have lost weight. This is a major worry for me as I equate weight loss to cancer. But I just had my annual check up. My mamongram came back clear. My blood test cancer marker came back good. Cholestrol is good. Sugar level is good, no diabetes but slightly anemic. I am a small eater all my life but why am I losing weight? Oh I did not gain weight when I was Anastrozole. Anyone has this weight loss problem????Appreciate an input.

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