Stopping anastrozole after 5 years. Withdrawal symptoms?

Posted by christinej @christinej, Jul 24, 2018

Monday, July 23rd, after consulting with Dr. Loprinzi, we decided to have me stop taking anastrozole. (Arimidex). It has been 5 years since I started the drug after breast cancer surgery and radiation. Has anyone stopped this drug and had any withdrawal symptoms? The nurse from Blue Group sent me an email today saying that there are no withdrawal symptoms after stopping this drug. Soooooooooooooo, is this all in my head? Definitely having some type of withdrawal.

Welcome to Connect, @christinej
I'm tagging a few other members who have mentioned taking anastrozole for some time such as @wandering @susanao1 @itskeenerific @judymroz @cindylb @chamisaand @berit. I'm not sure if all have finished AI treatment.

Christine, what symptoms are you experiencing?

Liked by vikkr

@colleenyoung

Welcome to Connect, @christinej
I'm tagging a few other members who have mentioned taking anastrozole for some time such as @wandering @susanao1 @itskeenerific @judymroz @cindylb @chamisaand @berit. I'm not sure if all have finished AI treatment.

Christine, what symptoms are you experiencing?

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I too just finished taking Anastrazole after years and having incredible fatigue. Is it related to stopping?

Liked by vikkr

@peaches2

I too just finished taking Anastrazole after years and having incredible fatigue. Is it related to stopping?

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I too stopped taking Arimidex after five years now have enlarged fatty liver, osteopenia, debilitating fatigue, progressing weakness muscle weakness weight loss poor appetite hearing loss neck and back arthalgias, abnormal high white blood count high monocytes high MCHC and high hgb, UTI's, bladder incontinence, bone spurs, herniations etc. anyone else have "withdrawal symptoms"?

@vikkr

I too stopped taking Arimidex after five years now have enlarged fatty liver, osteopenia, debilitating fatigue, progressing weakness muscle weakness weight loss poor appetite hearing loss neck and back arthalgias, abnormal high white blood count high monocytes high MCHC and high hgb, UTI's, bladder incontinence, bone spurs, herniations etc. anyone else have "withdrawal symptoms"?

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vikkr Just wondering…did all of those symptoms occur a short time after stopping the Arimidex? Were any of them prior to/when you were still taking the drug? I was unable to take any of the AI's due to side effects but I'm just curious about your situation…..??

@peaches2

I too just finished taking Anastrazole after years and having incredible fatigue. Is it related to stopping?

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It’s related to the drug and it may take time to get energy back but it will come back . I push myself to do what ever I have to get done . I have been off it 2 months

@peaches2

I too just finished taking Anastrazole after years and having incredible fatigue. Is it related to stopping?

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I just finished taking Anastrazole after having been on it 10 years. I too am experiencing extreme fatigue. How long does it take to to work through the withdrawal process?

I have been on Anastrozole for almost 2 months, take it at night. I am just now experiencing some dizziness, nausea, loss of appetite. Has anyone experienced any of these symptoms after 2 months of taking?

@smspaz59

I have been on Anastrozole for almost 2 months, take it at night. I am just now experiencing some dizziness, nausea, loss of appetite. Has anyone experienced any of these symptoms after 2 months of taking?

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@smspaz59 I have been taking Anastrozol for 3months now. I have experienced all of them but they were very mild and quickly faded away. I had fatigue but that seems to have faded away too. Now I'm experiencing some weight gain. I hope that eases as the weather improves and I can get outside more. Now I walk 30 minutes a day to YouTube walking videos. It really helps combat the fatigue and soreness.

@baker1 I’m sorry you’re side effects at all but all things considered, I’m happy they’re they’re mild 😊Keep On Keepin’ On . . .

Thank you for the positive words. I'll be starting those pills in a week and have read such horror stories about it, I was worrying myself sick.

My symptoms seem to have gone away as time has gone on. I've been on them going on 4 years. Glad I've stuck with them . You can do this!

@smspaz59

I have been on Anastrozole for almost 2 months, take it at night. I am just now experiencing some dizziness, nausea, loss of appetite. Has anyone experienced any of these symptoms after 2 months of taking?

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Welcome to Connect, @ycnan and @smspaz59. I thought this discussion about anastrozole might interest you as well: https://connect.mayoclinic.org/discussion/arimidex/

@javajude Thanks for the encouraging words 🙂 Good to know there’s a light at the end. I will get to the finish line hoping effects will lessen over time. Thanks again.

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@smspaz59

I have been on Anastrozole for almost 2 months, take it at night. I am just now experiencing some dizziness, nausea, loss of appetite. Has anyone experienced any of these symptoms after 2 months of taking?

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I've been on it for about 5 months now. I had a little dizziness when I first started–and crying jags! But it seems to have settled down now and if there are any side effects they're minimal enough to be confused with something else. Hang in there!

I have had the Breast index done and it appears anastrozole will be very beneficial for me since I have a high risk of recurrence 😌 Do y’all think I should take it in the mornings or at night? Am kind of nervous about starting thus😝

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