Long COVID: What bloodwork and vitamin/supplement recommendations?

Thank you for the information...always learning..

@uget1shot ,

I read your post and tried to search for the NAD+ you mentioned. Could you please share where you get it from? Is it pill form?

Thank you for your help!

Andie

Hi @andie1228

It’s a liquid, like a serum you squirt under your tongue.

I bought mine from Fullscript. It looks like this (see image)

@uget1shot , Thank you Very Much!

I take zinc and b12 daily. Hasnt improved my symptoms yet. I hydrate properly and eat lots of fresh fruit and veggies. I drink lots of coffee to help me move and try to feel normal. My nausea is bad and no appetite. From my 3.5 yr nightmare, i have discovered drs are CLUELESS. Science is much closer to figuring this out...we all need to stay hopeful.

Not all dr's are clueless...https://youtu.be/ZcQolR3rWRA

Hope for your quick recovery....God Bless.

@h2998sc i agree not all drs are clueless. I usually try not to make blanket statements like that. So thank u. I have a great team in the healthcare system i am in now, but it was a whole lotta gaslighting up until this point.

My doctor just told me that I have Long Covid by my symptoms. I never had a blood test, but if I decide to have one, what should I ask for? A blood test for Long Covid or is it called something else? I don’t mean to sound stupid, but I’ve had Long Covid for almost 3 years now and nobody has ever said to have my blood tested for it. I have no taste or smell either. Is there a specific name for this test?

@lkirnbauer Doctors begin with your symptoms at the start of this journey and that leads to test options. Based on blood results the path can likely move into more blood draws and even to other tests, including imaging, which was the case for me. I've tried to capture some of the tests that people have posted in the 19 different groups in the Long Covid posts here on Mayo Clinic that eventually lead to reasons for the the lingering symptoms. It is a 'vast' landscape of tests. I spent 2 years in the mysterious unknown until the test for my 'T-Cells' was ordered. Below are some of the other reported tests from members in the Covid Long groups that lead to some answers and in some cases, real solutions. I've tried to capture some of the tests that people have posted in the 19 different groups in the Long Covid posts here on Mayo Clinic and it is a 'vast' landscape of experiences for patients. Please note, every body is unique and if you feel it's time to find a more 'investigative' doctor to help you on this journey, then do so.

These is a summary of tests I've captured from the Mayo Clinic posters for experiences they are having with testing for Long Covid:

1. SARS-CoV-2 Antibody Profile Test: CoV-2 Antibody Profile. Looking for Spike AB Dilution (normal range < 0.8 U/ml). (Note: some patients called this test D Timer. Test looks for micro-clotting and provides a 'numeric value' for bloods spike protein counts. Also, LabCorp can do this test.) This was often reported in the Mayo Clinic groups as a count from 17,000 to 25,000). The pathology of the spike protein is that it attaches to ACE 2 receptors and nicotinic receptors decreasing the ability to be released and metabolized. This causes overall inflammation throughout. Clotting cascade occurs leading to micro-clotting and hypoxic tissue causing cellular dysregulation. Anti-body response increases spike antibodies that also cause inflammation. Goal of therapy is to help release spike protein from cells, decrease overall inflammation and address micro-clotting with a layered treatment approach.
1a This may be same test as Item 1. above but it appeared to have a different name: Mast Cell Activation tests response to the spike protein, indicates the mast cells need to be under control before going after the spike proteins and micro clotting.
2. PAI-1 gene polymorphism which is a genotype test to see if body is having a hard time breaking down 'clots' in the blood vessels.
3. ANA Antibodies are proteins that your immune system makes to fight foreign substances, like viruses and bacteria. But an antinuclear antibody attacks your healthy cells instead. It's called "antinuclear" because it targets the nucleus of the cells, which is in charge of sending signals that are needed for important cell functions.
4. Amyloid Fibrin blood clot testing: to determine id blood clots are in the vessels as they constrict oxygen levels.
5. Levels for vitamins: D2, B's such as B12, B6, folates
6. Immunity blood work up and study for Tcells and T cytotoxic cells, ratios and absolutes including CD 3, CD 8, CD 4, CD 16, CD56
7. Comprehensive blood tests (CBC panels)

@pattig09 Thank you so very much for your detailed response. I have been to Northwestern Hospital’s Long Covid Clinic and not one single person there took any tests like this. The only thing they did do was give me a cognitive test and said that it wasn’t my brain…? I will be asking my doctor’s office to run these on me. Again, thanks for the thorough response! Blessings to you.