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Completed 5 years of anastrozole. Withdrawal symptoms? Side effects?

Posted by christinej @christinej, Jul 24, 2018

Monday, July 23rd, after consulting with Dr. Loprinzi, we decided to have me stop taking anastrozole. (Arimidex). It has been 5 years since I started the drug after breast cancer surgery and radiation. Has anyone stopped this drug and had any withdrawal symptoms? The nurse from Blue Group sent me an email today saying that there are no withdrawal symptoms after stopping this drug. Soooooooooooooo, is this all in my head? Definitely having some type of withdrawal.

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kensiejames | @kensiejames | Sep 23 5:03pm
In reply to @megunique "I appreciate your comments. I have felt fatigue on anastrazole and still 4 weeks after stopping..." + (show)
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I appreciate your comments. I have felt fatigue on anastrazole and still 4 weeks after stopping (finished 5 years). Each year fatigue got a little worse and I too just do what I need to do. I am still able to strength training 3x a week and push myself but rest when I feel.like doing nothing much. I have been assured that the fatigue will get much better but to set realistic expectations because it can take months for your body to readjust. Patience is hard but I trust my oncologist!

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For me it took about 6 months to feel like myself again. Those drugs really beat the sh⭐️t out of me . The fatigue was the least of my problems. My bones were in constant pain .

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biddle1267 | @biddle1267 | Sep 24 11:45am
In reply to @kensiejames "For me it took about 6 months to feel like myself again. Those drugs really beat..." + (show)
Profile picture for kensiejames @kensiejames

For me it took about 6 months to feel like myself again. Those drugs really beat the sh⭐️t out of me . The fatigue was the least of my problems. My bones were in constant pain .

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I took myself off the anastrozole 2 weeks ago and still have the severe stiffness in my fingers and shoulders. I see my oncologist in 3 weeks to discuss these problems.

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brightlight66 | @brightlight66 | Sep 24 12:51pm
In reply to @dmosssadler "I had 3 positive nodes, but I was thrown back when the doctor said the world..." + (show)
Profile picture for dmosssadler @dmosssadler

I had 3 positive nodes, but I was thrown back when the doctor said the world "qualify"...that didn't sit well with me. So I didn't want to take the Versenio..It just didn't sit well with me...I'm still on the fence...
I do want to thank you for sharing your experience with me.

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I had 3 positive lymph nodes too and prescribed Verzenio. Just wondering if you ever took it and what your experience was?

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eleanorrigby | @eleanorrigby | Sep 24 8:09pm

So did anyone else get off anastrozole, and how long were you on it before you stopped? And did you have surgery at some point along the way? Thank you!

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