Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Hi ellyfeb:
Have Raynaud’s and medication did not help me, I walk which helps the circulation for my legs and feet, plus I always wear cotton socks to bed, even in summer to keep feet warm. Compression ankle socks worked better for me than the compression knee highs when my circulation was bad. Use cotton gloves for hands and when winter comes, two pairs of gloves which help keep my hands warm enough to keep the white, blue, and purple at bay. For the eyes, I use dry eye therapy drops, saline water for nose drops, and biotene for dry mouth, with drinking lots of water. Have not found a decent RA dr, but have a great primary dr. You can write anytime and I will do my best to help you, hang in there, know you are not alone.

Thank you so much for responding. I will try the ankle socks as the knee highs are just uncomfortable and cause other issues. I am going in to see my pcp due to the extreme change from one purple toe to 6. I am hoping for some answers. It just seems so mysterious. Thank you again.

I have Lupus and Rheumatoid Arthritis and my Doctor think I probably have a couple of other Autoimmune disrders. I was just actually diagnosed a few months ago, but I have had symptoms for a few years now. Very hard on me physically and mentally. Any tips for me would be much appreciated

First diagnosed in 2014 while the journey has been challenging I’ve found great support from this site and the Mayo Clinic. Best regards.

@thomps26 Welcome to Mayo Clinic Connect!
Are you currently getting treatment for the lupus or RA? I’m asking a few other members if they would talk to you about your diseases. @sarastewart. @andid @suetex @phxbarb

Dang, thats a long time. What are some things you do that help you? Do your meds help?

Hi, thank you! That would be nice

Dear thomps26:
Yes…autoimmune diseases are “masked deceivers” and can be difficult to diagnose and be complicated, that is why it helps when you have good drs. Understand your stress, as it may be trial & error at first finding the right medication but not to lose heart, as better days are coming. If you are happy with your dr, concentrate on now and move forward by voicing your concerns that are present and read any information the dr may give you as far as your diagnosis for you to better understand, or visit your local library for books on diagnosis as they can assist you to understand better. For me, I found that foods cause inflammatory responses with my diseases so I avoid those foods which greatly helps me. Use your dr to advocate for you. Hope this helps, know you are not alone and use this chat to help you alone this journey.

I will be glad to give tips, such as they are, even 'though I don't have Lupus or RA. (Not yet, anyway.) I guess Sjogren's counts as it can do just about anything...
First and foremost, be kind to yourself. Need a nap? Take one. The dishes will wait. Read about your condition as much as you can. Don't be afraid to ask questions. Always learn about your drugs before you take them. Drs. and pharmacists are human and mostly overworked. And (hard to do if you are like me) ask for help when you need it.

@suetex Perfect! Just what I wanted