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Burning Mouth Syndrome. I have it very severe.

Posted by mygrigio @mygrigio, Aug 5, 2011

I am a 76 year old women and have had this condition for almost a year. it is getting worse everyday. been to many doctors and not one of them has heard otf it, I am getting desperate

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pennye | @pennye | Sep 16 8:51am

I’m on my 3rd year of BMS and have contacted many sources that are oblivious or not interested. There’s no cure, treating the symptoms. I do all the research and review the study recommendations then discuss with my Health Care Provider. It’s trial and error.

Go to Amazon and check the book just released Burning Mouth Syndrome Survival Guide. It’s helpful.

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pennye | @pennye | Sep 16 8:58am
In reply to @wolfygirl "Mine started out of nowhere back in Dec. on vacation. My mouth was like fire breathing..." + (show)
Profile picture for wolfygirl @wolfygirl

Mine started out of nowhere back in Dec. on vacation. My mouth was like fire breathing dragon. I could only feel heat it at the back of my throat which led to my mouth being on fire. Then up into my sinus'. Had an upper GI done they found nothing, they took biopsies, all good there. I noticed the symptoms weren't as bad, but could get worse. They tried giving me Mirtzapine, which makes you sleepy, and yeah that was done pretty quick since I couldn't take that with my sleep meds or by itself. Now the only spot that seems to bother me is the middle of my tongue and roof of my mouth. Stomach isn't burning anymore. I haven't changed my diet. I did try to cut out some foods but that didn't work. Took omeprazole for a bit which helped but never really went away. I have an ENT Appt tomorrow. Hoping this lull in the action keeps going away.

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Ck out Burning Mouth Syndrome Survival Guide. Just released on Amazon. It will give you Athelstan. Drs, dentists, pain management won’t talk or return your call. Research and discuss with your physician about the pain and recommendations to treat the symptoms. There is no cure, i ‘m entering my 4th year.

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wolfygirl | @wolfygirl | Sep 16 6:16pm
In reply to @pennye "Ck out Burning Mouth Syndrome Survival Guide. Just released on Amazon. It will give you Athelstan...." + (show)
Profile picture for pennye @pennye

Ck out Burning Mouth Syndrome Survival Guide. Just released on Amazon. It will give you Athelstan. Drs, dentists, pain management won’t talk or return your call. Research and discuss with your physician about the pain and recommendations to treat the symptoms. There is no cure, i ‘m entering my 4th year.

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I did go look at the book, planning on getting it. Right now I'm on 10mg of amitriptyline and 600 mg alpha lipoic acid (OTC). No stomach burning and the mouth is not as bad as it was. I ended up with an upper GI with biopsy of my throat and stomach but nothing there.

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dustycat52 | @dustycat52 | Sep 17 1:06pm

Thanks for the recommendation for the book. I’ve had BMS nearly twenty years now, I hope I can learn something from the book.

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kolshansky | @kolshansky | Sep 18 11:52am

I assume most people are aware but many mouth washes can be extremely irritating to the mouth especially products like Listerine.

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