Long Covid Fatigue - Exhausting Physically and Mentally

Posted by julesmango @julesmango, Feb 19, 2022

It’s been 14mo. Dealing with Fatigue and migraines. Daily naps help but looking for an explanation on what is going on in my body. Up til now all the Dr. Said it was too early to tell. Today I read The NY Times article’ How Long Covid Exhausts the Body’ by Josh Keller (https://www.nytimes.com/interactive/2022/02/19/science/long-covid-causes.html) and for the first time got some explanations on what maybe causing this. Although it is only the beginning of understanding what this virus is capable of, at least it is a start. Very insightful!! Worth reading.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Profile picture for roxannelee @roxannelee

Me too.

I've experienced long-COVID since June 2020. Pharmacies didn't release COVID vaccines until eight months later.

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@roxannelee
I'm curious what symptoms have been primary for you; if they wax and wane; if you've experienced full recovery of any of them... It seems we probably were infected by the same COVID strain. I've often wanted to compare notes...

General list of my most persistent symptoms since onset 9/2020:
SOB, chest pain/pressure, brain fog!, dizziness/imbalance, fatigue (many times crushing), heart rate spikes/dips, mild nausea with full-body flushes, depression, anxiety.
[-Chest Pressure: Since onset have graduated down from adult to baby elephant sitting on my chest.
-SOB: Feels like breathing through cheesecloth.
-With the adding of Metoprolol to my Rx's, my heart rate has calmed down. No more spikes to 200bpm! Range now is between 65-120.]
My Official Diagnoses:
POTS (Heart rate spikes when changing position from waiting/lying to standing), Postural Orthostatic Hypotension (drop of blood pressure when changing position to standing), PEM, depression/anxiety. Everything else? Test results show I'm healthy as a horse.

Regardless of where we are in this process, blessings to all!

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Will the long Covid ever go away?

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Profile picture for suefish @suefish

Will the long Covid ever go away?

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I have heard of some people getting better. I have hope, but I also get hopeless sometimes. just trying to do what I can today. It is difficult but knowing that you folks are here (I read these every morning) is helpful, even though I do not know you, I know you.

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Profile picture for jrg200911 @jrg200911

@roxannelee
I'm curious what symptoms have been primary for you; if they wax and wane; if you've experienced full recovery of any of them... It seems we probably were infected by the same COVID strain. I've often wanted to compare notes...

General list of my most persistent symptoms since onset 9/2020:
SOB, chest pain/pressure, brain fog!, dizziness/imbalance, fatigue (many times crushing), heart rate spikes/dips, mild nausea with full-body flushes, depression, anxiety.
[-Chest Pressure: Since onset have graduated down from adult to baby elephant sitting on my chest.
-SOB: Feels like breathing through cheesecloth.
-With the adding of Metoprolol to my Rx's, my heart rate has calmed down. No more spikes to 200bpm! Range now is between 65-120.]
My Official Diagnoses:
POTS (Heart rate spikes when changing position from waiting/lying to standing), Postural Orthostatic Hypotension (drop of blood pressure when changing position to standing), PEM, depression/anxiety. Everything else? Test results show I'm healthy as a horse.

Regardless of where we are in this process, blessings to all!

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My long covid started with the onset of my covid, January 2022. That year, I had pneumonia 4 times, the flu twice(despite flu shots), immune system was shot. Oxygen levels were extremely low. Fatigue, especially as the day went on ,was exhausting and couldn't exercise more than 10 minutes. I was living outside Denver and had to move to lower altitude.
I need my oxygen now only when sick(and when I visit my grandchildren in Denver. ) I have asthma now and ongoing lung infections. Had lung surgery last year for lung cancer. I hardly ever talk about my long covid now. Do everything in the morning when I am stronger, including chair yoga and have rebuilt muscles as I became weak . Resting in the afternoon is important. Evenings are hard.
I have wonderful Drs at Mayo and a helpful and understanding husband which are lifesavers. Feels good to talk about it. Thanks for listening.

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I mistyped a ton but I feel your frustration.

Suef

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Hi I’ve had long Covid for over 2 years, not easy.ive tried nicotine patches 7 mg for 7 days which has helped some but not me . Then tried 40 treatments of hyperbaric oxygen which has helped many but a slight improvement for me. My next try will be low dose neltrexone
Which I’ve heard has been helpful .
My main problem area fatigue, balance and brain fog which has gone away. Hoping the best for you

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Profile picture for clh2022 @clh2022

Diagnosed with covid longhaul almost 9 months now. Fatigue and horrible headaches. Nothing is helping. Any suggestions?

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Hi, I’ve had long Covid for over 2 years not easy. I’ve tried nicotine patches helped some but not me then hyperbaric oxygen 40 treatments helped
Some, next I’m going to try low dose naltrexone which I hear
Can help long Covid, I feel for you and any that are dealing with long Covid my God bless you and that you will recover I pray

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Profile picture for suefish @suefish

Will the long Covid ever go away?

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I pray a lot for that!

suef

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Profile picture for suefish @suefish

I pray a lot for that!

suef

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Days like this I think will never change.

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