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Is anyone using LDN (low dose naltrexone) for fibro pain?

Posted by cjd72 @cjd72, Sep 6 11:55am

I don't want to go on all the hard core meds like Cymbalta, people seem to have such bad side effects. I read about LDN being a promising option with far fewer side effects. Anyone on it?

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

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kristine31 | @kristine31 | Sep 10 9:15pm
In reply to @9yearspast "I am on a high dose of Gabapentin 900 mg Three times daily. It has made..." + (show)
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I am on a high dose of Gabapentin 900 mg Three times daily. It has made a huge difference in my pain. Every step used to put a shock wave heel to hip. I has helped so much. It took a while to get up to that dose. It is an old drug and cheaper than some others. I would be careful myself with anything new. I let other people be the “Guinea pigs” of things used in a new way. I made a mistake during the pandemic and used emgality.

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I used to be on that much yes it did help. After developing ulcers my stomach Doctor took me of of that and ibuprofen and naproxen meds I am on Lyrica and Tramadol

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jog | @jog | Sep 11 1:59pm

I was once on 1200mg of gabapentin three times daily but it stopped working and my pain returned with a vengeance. My doctor weaned me off slowly and started me on lyrica and my pain has improved significantly. I also take 4.5mg of naltrexone daily and it seems to be helping me as well.

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leslie1968 | @leslie1968 | Sep 11 5:51pm
In reply to @9yearspast "I am on a high dose of Gabapentin 900 mg Three times daily. It has made..." + (show)
Profile picture for 9yearspast @9yearspast

I am on a high dose of Gabapentin 900 mg Three times daily. It has made a huge difference in my pain. Every step used to put a shock wave heel to hip. I has helped so much. It took a while to get up to that dose. It is an old drug and cheaper than some others. I would be careful myself with anything new. I let other people be the “Guinea pigs” of things used in a new way. I made a mistake during the pandemic and used emgality.

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I am on 900mg of Gabapentin at night. How long did it take you to get to 900mg 3X perday?

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hraka13 | @hraka13 | Sep 16 9:31pm
In reply to @kjofmd "This doesn’t make sense to me as naltrexone is not an opioid, but is used in..." + (show)
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This doesn’t make sense to me as naltrexone is not an opioid, but is used in large doses to treat addiction. However, at small doses, it treats inflammation, pain and other conditions with efficacy. For more info check out the Low-dose Naltrexone (LDN) Research Trust website or FB group.

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Odd, I can’t find the link I read before. You’re correct, it is not an opioid.

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anna16937 | @anna16937 | Nov 6 3:07pm
In reply to @hraka13 "Naltrexone seems to be “harder” than cymbalta. When I looked it up, it says it’s similar..." + (show)
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Naltrexone seems to be “harder” than cymbalta. When I looked it up, it says it’s similar to morphine. I’d seriously research any meds you’re thinking of taking, make sure they’re not habit forming.

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@hraka13 no offense but whatever you read is highly inaccurate. It's the opposite of morphine actually. It's an opioid antagonist so it quite literally blocks your opiate receptors. It's also used to treat opiate drug addicts. And alcoholics. It blocks receptors that give you the euphoric effects and can cause, essentially instant withdrawals. I would make sure you're reading fully accredited websites for your own personal use as well as before sharing very inaccurate information like you did. Make sure youre not just reading random articles you found on Google thats based on someone opinion rather than actual trials and research

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fibrowoman | @fibrowoman | Nov 7 8:29am
In reply to @anna16937 "@hraka13 no offense but whatever you read is highly inaccurate. It's the opposite of morphine actually...." + (show)
Profile picture for anna16937 @anna16937

@hraka13 no offense but whatever you read is highly inaccurate. It's the opposite of morphine actually. It's an opioid antagonist so it quite literally blocks your opiate receptors. It's also used to treat opiate drug addicts. And alcoholics. It blocks receptors that give you the euphoric effects and can cause, essentially instant withdrawals. I would make sure you're reading fully accredited websites for your own personal use as well as before sharing very inaccurate information like you did. Make sure youre not just reading random articles you found on Google thats based on someone opinion rather than actual trials and research

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recent findings indicate that low dose naltrexone helps Fibromyalgia

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andid | @andid | Nov 8 1:07pm
In reply to @fibrowoman "recent findings indicate that low dose naltrexone helps Fibromyalgia" + (show)
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recent findings indicate that low dose naltrexone helps Fibromyalgia

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@fibrowoman While that may be true for some, it is not true for all. I am just finishing a two-month long test at 9 mg and it has not helped me. You wont really know until you try it for yourself.

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fibrowoman | @fibrowoman | Nov 8 1:42pm
In reply to @andid "@fibrowoman While that may be true for some, it is not true for all. I am..." + (show)
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@fibrowoman While that may be true for some, it is not true for all. I am just finishing a two-month long test at 9 mg and it has not helped me. You wont really know until you try it for yourself.

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Thank you.

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Suz | @db72 | Nov 11 5:56pm

@cjd72 and @hraka13
,
LDN is not an opioid- it’s actually an opioid antagonist and was originally used in much stronger doses to fight drug and alcohol addictions. It was later discovered that using it very low doses had a positive immune modulating effect via the production of endorphins.

I’ve been on LDN. For 10 years for various kinds of pain including fibromyalgia, ME/CFS, osteoarthritis, and severe Polyneuropathy. It doesn’t work for everyone but when it does it’s a wonder drug. It’s been a game changer for me and I don’t have to take any pain meds other than an occasional Alieve.
I’ve gone off briefly twice and never had any problems.

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hraka13 | @hraka13 | Nov 14 1:50pm
In reply to @anna16937 "@hraka13 no offense but whatever you read is highly inaccurate. It's the opposite of morphine actually...." + (show)
Profile picture for anna16937 @anna16937

@hraka13 no offense but whatever you read is highly inaccurate. It's the opposite of morphine actually. It's an opioid antagonist so it quite literally blocks your opiate receptors. It's also used to treat opiate drug addicts. And alcoholics. It blocks receptors that give you the euphoric effects and can cause, essentially instant withdrawals. I would make sure you're reading fully accredited websites for your own personal use as well as before sharing very inaccurate information like you did. Make sure youre not just reading random articles you found on Google thats based on someone opinion rather than actual trials and research

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@anna16937, I corrected myself already.

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