Pari eRapid/eFlow first impressions

Posted by bronchiectasaurus @bronchiectasaurus, Aug 14 8:41am

Wow. Salty!

I washed and sterilized all the parts last night per instructions, and just had my first session. It is indeed rapid! A big hit of salt (7% solution, 4ml vial) with every breath.

It's not breath-actuated, unlike the AeroEclipseXL I'm accustomed to, so salt mist blew everywhere when I exhaled. I soon manually de-activated it while exhaling, using the power button, and re-activated on inhale. I was near my computer and didn't want salt to get all over my electronics. (Next time I'll try it in my kitchen or living room.) Even with the starts and stops, the session was very fast, under 10 minutes. I will time my next one.

My young cat jumped on me while I was nebbing, disconnecting the cord from the cup. Nothing leaked and I reattached it easily. Clearly I need to find a new location to use this system. It's faster so I don't need to be seated or distract myself with online scrabble, as I do with my usual system.

The concentrated salt made me cough at first, but I got the hang of it by the end. It brought up a lot more mucus than usual! All clear, all good. My usual neb sessions have brought up hardly anything lately, so I found this refreshing.

Afterwards I rinsed the parts and soaked in soapy water per instructions. Question: If I boil after every use, do I have to soak in soapy water first? I skip that step with my AeroEclipse/Aerobika setup and just rinse and boil.
(For anyone curious, this is how I have been nebbing/cleaning for the past several months: https://youtu.be/gRUAIu1nO1w?si=fRSz6DvohTN4SXKw )

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Profile picture for bronchiectasaurus @bronchiectasaurus

DAY 2:
I used the following technique this morning:
deep INHALE with the eRapid fully on;
hit power button once to stop flow and HOLD the breath as long as I can;
remove the device from my mouth and EXHALE into the air.
Repeat until no more solution is aerosolized.
I took a few breaks for coughing, spitting, and drinking water; the whole session was just under 12 minutes.

I must have gotten almost all the 7% saline solution into my lungs, because my nearby air purifier was only activated twice.

I do not know if this technique is advisable, as I am on my own here. I haven't heard of any negative consequences of "too much" saline, other than it makes some people cough. It makes me cough on the first breath or two, but I get used to it very quickly. I figure I'm getting the saline all the way into my alveoli via the deep breaths and holds, but wouldn't mind an expert to weigh in. Maybe the next time there's an online seminar I will ask!

After this session I used the "Easycare" aerosol head cleaner with distilled water. I initially put too much water in, but was able to suck some out with a used saline vial I'd rinsed with distilled water so it wouldn't contaminate with salt. Once the water level was down below the mark, it worked just fine.

Because I no longer use my Aerobika whole nebbing, I keep it on my desk and exhale through it from time to time after nebbing with the eRapid.

All this feels pretty great. I just hope I'm not doing anything bad by inhaling so much saline this quickly.

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You were able to give up the aerobika
Does the Pari replace it
Thanks jill
/
/?

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Profile picture for jillcrawford @jillcrawford

You were able to give up the aerobika
Does the Pari replace it
Thanks jill
/
/?

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I understand that pari rapid soften and thin mucus, and aerobika/ or vest shake it and still you have to do the “remove” with a huff cough. I say what Marjorie cullinan presented in the last webinar Airway clear and more.

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Did you have to submit a prescription to Nebology to buy eRapid and was it for eRapid specifically or just a prescription for the nebulizer ?

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Profile picture for anastasiak @anastasiak

Did you have to submit a prescription to Nebology to buy eRapid and was it for eRapid specifically or just a prescription for the nebulizer ?

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@anastasiak specifically for the E rapid or E flow. I printed a page from the website and brought it into my doctor.

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I notice that the Pari eFlow setup looks exactly like the one I used to nebulizer Arikayce. Has anyone tried to use their Arikayce nebulizer with 7% saline?

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Profile picture for coffcoff @coffcoff

I notice that the Pari eFlow setup looks exactly like the one I used to nebulizer Arikayce. Has anyone tried to use their Arikayce nebulizer with 7% saline?

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@coffcoff Yes, I use my same Pari that I use for Arikayce to neb saline. It's an awesome nebulizer and super fast-I absolutely love it!

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Profile picture for terrimn @terrimn

@coffcoff Yes, I use my same Pari that I use for Arikayce to neb saline. It's an awesome nebulizer and super fast-I absolutely love it!

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@terrimn
You are supposed to buy the cups that go with the eFlow specifically for saline. The cups used for Arikayce should just be used for that.

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Profile picture for lilianna @lilianna

I have been using pari e-eflow for the last week
*quiet
*super fast
I check with a syringe and yes there is always 1 ml of medication left so practically if my vile is 3 ml I get two ml of the medication inhaled.

Negative- I cough really bad while nebulizing 7% sodium chloride. Probably my technique is wrong but I don’t know what could improve it. I Nebulize levalbuterol first, then sodium chloride and have the cough. I tried sue’s method and cover the mouthpiece partially with my tonque- even worse. So if you have a piece of advice please share.
I also tried it yesterday with cromolyn sodium which normally takes me 20 minutes. I will see how long the nebulizing part lasts. I called the manufacturer- they don’t have an answer because they tested it only for pulmozyme and they don’t have answers even for levalbuterol or NaCl. They did not test these either. Anyway it’s definitely time saver- with aerobika and huff coughs after, I am done within an hour or less.

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@lilianna Hi - thanks for your post about the e-flow. I've used it a couple of times and I've had some hoarseness which I'm not sure if it's associated with the e-flow or another factor. Have you had any hoarseness after using the e-flow?

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Profile picture for irenea8 @irenea8

@terrimn
You are supposed to buy the cups that go with the eFlow specifically for saline. The cups used for Arikayce should just be used for that.

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@irenea8 Do you know if the eFlow cups that are specifically for saline are different? When I spoke to Pari they said that the eFlow cups (not the Arikayce) aren't intended for saline, but other meds, so I'm confused.

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Profile picture for minute22 @minute22

@irenea8 Do you know if the eFlow cups that are specifically for saline are different? When I spoke to Pari they said that the eFlow cups (not the Arikayce) aren't intended for saline, but other meds, so I'm confused.

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