Spinal cord stimulator support

Posted by robyng @robyng, Mar 27, 2024

I recently had a spinal cord stimulator implanted and would love to hear from others who have one and their experiences.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for brotherchuckles80 @brotherchuckles80

You always hear more negative than positive. Because the people who have had positive results and I'm generalizing tend not to report it. I have had my Abbott Laboratories spinal cord stimulator now going on 3 years and I fortunately have received 100% positive results in pain relief in the lumbar area. So there is a positive out of many who do not report their positive results. God bless you and your decision making. And I always say do your research research research research then make an informative decision. Brother Chuckles 80

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has anyone tried a Nalu brand device?

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Profile picture for heisenberg34 @heisenberg34

I had a medtronics scs implanted in 2018 after a successful trial. The permanent implant was not as effective as the trial, but it did help relieve my lower back pain. That was along with my prescribed meds. Always had a little pain, but it allowed me to become more active again. Then, in 2021, it just stopped working. A smooth-talking rep from NEVRO convinced me to have the Medtronics scs battery replaced with one of theirs, keeping the original paddle. They were not able to do the trial due to the positioning of the original paddle. The rep assured me that their unit would make everything good again.
So, I went ahead with the implant. It involved adding an adapter to the original lead going to the paddle in order to connect the new battery. The NEVRO unit has never worked. And, the adapter makes it impossible to have an MRI. So, my new pain med doc can't see what's going on in my back that's causing all the pain to return,

I am scheduled to have the SCS removed in April, If all goes well, I should be able to have an MRI. BTW, I also had a pain pump implanted last year. After many adjustments, it has provided minimal pain relief. My advice:
1. Make sure you do the trial (and, the permanent implant may not give you the same relief as the trial.
2. If you get the Medtronics unit, it has a setting that allows for an MRI. But, if for any reason you decide to switch to another unit, do not mix and match parts like I did. Have them remove all original components.

Good luck. Hope you can make an informed decision.

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I had SIM card stimulator implanted in 22 it is migrated to my spine I haven't been able to charge it because it moved can you give me a suggestion or who I should go to I was trying to get into neurologist what they told me to go to Primary Care my primary care did not insert it help please

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Profile picture for heisenberg34 @heisenberg34

I had my medtronics scs removed about two months ago. It had worked well for about three years. Then it just stopped working. There was some thought that some of the electrodes on the paddle had shorted out. Mine was implanted at the T9 area. The removal went smoothly, Took about an hour. Healing went well. I am now looking to possibly trial another scs since most of my back pain has returned. Not sure how much more complicated your removal will be. Hopefully, not much. I wish you well.

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I am so lost because I can't get anybody to remove it I can't charge it it hasn't been working for 9 months the device is just in my body now my left side is going numb metric said there's nothing they can do because the device migrated to my spine can somebody give me some kind of motivation I'm in California

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Profile picture for ladyleo55 @ladyleo55

I am so lost because I can't get anybody to remove it I can't charge it it hasn't been working for 9 months the device is just in my body now my left side is going numb metric said there's nothing they can do because the device migrated to my spine can somebody give me some kind of motivation I'm in California

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You need to contact your neurosurgeon and explain your circumstances. There is no good reason why that hardware cannot be removed.

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Profile picture for ladyleo55 @ladyleo55

I am so lost because I can't get anybody to remove it I can't charge it it hasn't been working for 9 months the device is just in my body now my left side is going numb metric said there's nothing they can do because the device migrated to my spine can somebody give me some kind of motivation I'm in California

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My orthopedic doctor removed mine 2 months ago. It was outpatient with minimal fuss. He’s the doctor who implanted it originally.

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I had my SCS implanted 4/23/24. Took almost a year before I felt it did anything. About two weeks ago I leaned over to pick up a box and zing my back was hurting again. I just have not seen that much improvement in my pain level.

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Profile picture for bakerswhiskitall @bakerswhiskitall

A spinal cord stimulator has been suggested for me. I too am interested in hearing experiences from people who have the implant.

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I have thalamic pain syndrome, and my neurosurgeon recommended the spinal cord stimulator. I have read about it, and talk to different people. My pain doctor said he did not recommend it. My physical therapist said he has patients that have had it and it only worked for a short time and they have it removed.He said he would not get one himself and did not recommend it.

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Profile picture for jcb721 @jcb721

I have thalamic pain syndrome, and my neurosurgeon recommended the spinal cord stimulator. I have read about it, and talk to different people. My pain doctor said he did not recommend it. My physical therapist said he has patients that have had it and it only worked for a short time and they have it removed.He said he would not get one himself and did not recommend it.

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Like so many treatments, spinal cord stimulation is a crap shoot. It can work well for many, but not work at all for many, even after a positive trial. I had one for about three years, and it did a good job of giving me decent pain relief. Then, it just stopped working for no apparent reason. I guess what I am trying to say is that if you elect to get this procedure done. Don't get your hopes up too high.

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I had my stimulator leads replaced with paddles on April 7 they removed the staples and turned the stimulator back on and I can’t feel it around my spine. It felt like a staple was pushing on a nerve in the incision between my shoulder blade after the staple was removed it kept hurting. There’s a pocket of fluid (I believe Seroma)by the incision it comes and goes but when it’s there my shoulder blade and spine are numb so they couldn’t get the stimulator to relieve my pain. Anyone ever have this happen? I called the surgeon Friday and they called and asked a question but never called back , they’re not the one hurting so who cares if we do .

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Profile picture for Sophie46 @sophie46

I have a Medtronic Spinal Cord Stimulator. Unfortunately they were only able to insert one wire down my spine instead of two. This is due to my spinal cord injury. For a year I was able to walk really well and my pain was much less. After the year, I was suddenly not able to walk easily and my pain increased. I tried different programs, but nothing helped. The doctor now refuses to remove the battery. I would not recommend a S.C.S.

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I also have a SCS. You may need to contact Medtronic to have them recalibrate you. You can also turn the battery off. Im sorry for your frustration. I can certainly understand your pain as I do not get the relief from my stimulator as well.

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