Good luck with your stimulator! After having a failed back surgery and seeing a Mayo doctor I found out I have a screw loose from my lumbar fusion. I was recommended to get a stimulator instead of fixing the loose screw. So what stimulator has everyone tried and found successful for the lumbar . I also need neck surgery but was told by the doctor not to, does the lumbar stimulator also help with the neck.
I have an Abbott spinal cord stimulator called prodigy. I've had it now for approximately 3 years. It is placed in my lumbar and I am 100% relieve the pain. Not everyone gets 100% relief some get 50% of 60 some less. I pray that you'll get 100% like I have. As far as the neck goes from what I know there is a stimulator perhaps the same one that helps people that have neck pain. For me my pain management specialist has just given me injections or in a ablation. They seem to work. God bless you. Brother Chuckles80
I have an Abbott spinal cord stimulator called prodigy. I've had it now for approximately 3 years. It is placed in my lumbar and I am 100% relieve the pain. Not everyone gets 100% relief some get 50% of 60 some less. I pray that you'll get 100% like I have. As far as the neck goes from what I know there is a stimulator perhaps the same one that helps people that have neck pain. For me my pain management specialist has just given me injections or in a ablation. They seem to work. God bless you. Brother Chuckles80
@brotherchuckles80 Thanks for the info. ! I’m glad it helped you, if you don’t mind me asking what was your symptoms prior? How big is the controller , it’s bad enough having to wear sweatpants and carry my wallet and phone to be adding the hand held controller? I went ahead and called my surgeons office today I’m concerned with that loose screw what further damage could be done I don’t want to end up paralyzed or in diapers
Good morning,
I'm on my second stimulator since 9/2020. The first one was an Abot and I felt like a new man right after installation. Unfortunately one of the leads moved/migrated and starting hitting the wrong area and had to be removed. At the same time a staff infection developed and caused even more issues. My SCS was covered by workers comp and they decided to make me wait 6 months before allowing Drs to remove it. The infection grew worse and worse because meds weren't killing it. After removal and fighting what remained of the infection a year later I had my Nevro SCS installed. It has been doing well and Nevro enables you to put leads in 2 different locations and not need to be close to each other. This one has been in 2 yrs and now it needs to be removed and another installed due to lead migration again. This time both leads moved and moved really far from where they were out.
Drs not sure why they moved and how they moved so far and let me say I don't do anything that strenuous. We have a small 10 acre property that I make a small garden say 15x30 and mainly raised beds to eliminate bending. We have a couple cows but again not strenuous.
What I will tell you is the SCS has greatly helped my sciatica pain in both legs. It has helped make some of my back pain better but it didn't hide all of it. I'm on a daily dose of pain meds to help as well and have muscle relaxers of needed.
The Drs said I have 7 injured disks but they removed the 2 worst and fused my L3-L5 and did a lamenectomy back in 2015. I'm also listed as failed back surgery syndrome and had several complications after surgery even being paralyzed for 2 days.
My goal with the SCS was to lower the amount of pain and get back to an active well more active life style. Unfortunately in my case my life style hasn't improved much and the pain is back. Hopefully by replacing it again I will get more relief and have a better daily life but even with it being messed up I am still getting some relief.
I just don't understand why the leads keep moving on me. Is it doctor related or just do I need to do even less then I do now. Please don't take my comment as negative because as mentioned it has given me some relief and even some is better then I was prior to the SCS implant. Definitely recommend doing a trial for anyone who may need one and see how it works for you. I definitely recommend asking the Drs if you will feel the stimulation when it activated. Will you feel the vibration or not. Abot device you would feel it, Nevro is designed not to feel any vibration if you prefer not to feel it or they can set it up so you do feel it as well.
Good morning,
I'm on my second stimulator since 9/2020. The first one was an Abot and I felt like a new man right after installation. Unfortunately one of the leads moved/migrated and starting hitting the wrong area and had to be removed. At the same time a staff infection developed and caused even more issues. My SCS was covered by workers comp and they decided to make me wait 6 months before allowing Drs to remove it. The infection grew worse and worse because meds weren't killing it. After removal and fighting what remained of the infection a year later I had my Nevro SCS installed. It has been doing well and Nevro enables you to put leads in 2 different locations and not need to be close to each other. This one has been in 2 yrs and now it needs to be removed and another installed due to lead migration again. This time both leads moved and moved really far from where they were out.
Drs not sure why they moved and how they moved so far and let me say I don't do anything that strenuous. We have a small 10 acre property that I make a small garden say 15x30 and mainly raised beds to eliminate bending. We have a couple cows but again not strenuous.
What I will tell you is the SCS has greatly helped my sciatica pain in both legs. It has helped make some of my back pain better but it didn't hide all of it. I'm on a daily dose of pain meds to help as well and have muscle relaxers of needed.
The Drs said I have 7 injured disks but they removed the 2 worst and fused my L3-L5 and did a lamenectomy back in 2015. I'm also listed as failed back surgery syndrome and had several complications after surgery even being paralyzed for 2 days.
My goal with the SCS was to lower the amount of pain and get back to an active well more active life style. Unfortunately in my case my life style hasn't improved much and the pain is back. Hopefully by replacing it again I will get more relief and have a better daily life but even with it being messed up I am still getting some relief.
I just don't understand why the leads keep moving on me. Is it doctor related or just do I need to do even less then I do now. Please don't take my comment as negative because as mentioned it has given me some relief and even some is better then I was prior to the SCS implant. Definitely recommend doing a trial for anyone who may need one and see how it works for you. I definitely recommend asking the Drs if you will feel the stimulation when it activated. Will you feel the vibration or not. Abot device you would feel it, Nevro is designed not to feel any vibration if you prefer not to feel it or they can set it up so you do feel it as well.
@greg72 it does seem like there’s a lot of leads moving makes you wonder why they can’t put a little slack in them. I had the permanent stimulator put in the 14th I had them readjust it Tuesday then again today she said this is the last adjustment until Wednesday when I see the doctor . My leads moved and I’m not active I bent over to pick a magazine up after being miserable for a 1-1/2 it was so nice being 95% pain free I forgot about bending it was even helping my neck which it shouldn’t they said. I’m praying they can move the wires . I’m not sure how insurance works since I bent hopefully it covers it. I have the Boston-Scientific I don’t feel it which concerned me not knowing if it’s working other than the pains gone. Not knowing if it’s turned too high the first day they removed the trial both of my calves cramped for 2 weeks, and then when my wires came loose on the permanent one calve cramped badly. Have you noticed that with yours ?
@greg72 it does seem like there’s a lot of leads moving makes you wonder why they can’t put a little slack in them. I had the permanent stimulator put in the 14th I had them readjust it Tuesday then again today she said this is the last adjustment until Wednesday when I see the doctor . My leads moved and I’m not active I bent over to pick a magazine up after being miserable for a 1-1/2 it was so nice being 95% pain free I forgot about bending it was even helping my neck which it shouldn’t they said. I’m praying they can move the wires . I’m not sure how insurance works since I bent hopefully it covers it. I have the Boston-Scientific I don’t feel it which concerned me not knowing if it’s working other than the pains gone. Not knowing if it’s turned too high the first day they removed the trial both of my calves cramped for 2 weeks, and then when my wires came loose on the permanent one calve cramped badly. Have you noticed that with yours ?
Yes I've noticed when the leads moved it feels different. The first one SCS when the leads moved it felt like a 500 lb man was sitting in my chest and I couldn't breathe. It hit nerves that squeezed my chest and had to be shut off immediately. This time I kept feeling the vibration but no serious pain just annoying. Laying in bed and suddenly vibrating when I'm trying to sleep. I would feel it all different times so it wasn't just positional.
Now the Dr who installed my 2nd one will not fix the issues just remove it period. His partner said he would remove entire device and install a new one. It seems they don't just move the leads. Maybe for me it's because of where they were placed on in thoracic and one in lumbar. The entire purpose of the SCS is to get relief and let us get back to living a somewhat normal life. If we can't bend over, twist or literally have to watch every single move we make how is that a normal life. Even with my SCS I'm still in pain meds to have a more comfortable daily life, without them I would be in bed or on the couch every day. Hopefully your Dr can come up with a plan of attack to adjust your leads and not remove and replace.
Yes I've noticed when the leads moved it feels different. The first one SCS when the leads moved it felt like a 500 lb man was sitting in my chest and I couldn't breathe. It hit nerves that squeezed my chest and had to be shut off immediately. This time I kept feeling the vibration but no serious pain just annoying. Laying in bed and suddenly vibrating when I'm trying to sleep. I would feel it all different times so it wasn't just positional.
Now the Dr who installed my 2nd one will not fix the issues just remove it period. His partner said he would remove entire device and install a new one. It seems they don't just move the leads. Maybe for me it's because of where they were placed on in thoracic and one in lumbar. The entire purpose of the SCS is to get relief and let us get back to living a somewhat normal life. If we can't bend over, twist or literally have to watch every single move we make how is that a normal life. Even with my SCS I'm still in pain meds to have a more comfortable daily life, without them I would be in bed or on the couch every day. Hopefully your Dr can come up with a plan of attack to adjust your leads and not remove and replace.
@greg72 I hope I don’t go thru what you have . I hope they don’t remove it hopefully they can fix the leads. I just found out last night I have an extra translational S1 disc I guess it’s rare only 1-6% that have it. Biggest problem I have is people want to come up and Pat you on the back they don’t know how bad that hurts and 3 weeks after my surgery I was setting at a table and an old friend come up behind me and started twisting me 😡 then the next week the Incompetent NP Says it might be a set back but you can start bending, twisting and lifting up to 25 lbs 1-1/2 later I still can’t hardly carry a gallon of milk. So I went home that night after showering bent to dry my legs and felt a burning that has never improved. I went to the surgeon with a list of my new symptoms all he said is why you here, never got me out of the wheelchair to check me I could rub my tailbone and the pain went straight to my testicles I don’t think I’d be making that up. His final thing was go get a Stimulator !
You always hear more negative than positive. Because the people who have had positive results and I'm generalizing tend not to report it. I have had my Abbott Laboratories spinal cord stimulator now going on 3 years and I fortunately have received 100% positive results in pain relief in the lumbar area. So there is a positive out of many who do not report their positive results. God bless you and your decision making. And I always say do your research research research research then make an informative decision. Brother Chuckles 80
I had a medtronics scs implanted in 2018 after a successful trial. The permanent implant was not as effective as the trial, but it did help relieve my lower back pain. That was along with my prescribed meds. Always had a little pain, but it allowed me to become more active again. Then, in 2021, it just stopped working. A smooth-talking rep from NEVRO convinced me to have the Medtronics scs battery replaced with one of theirs, keeping the original paddle. They were not able to do the trial due to the positioning of the original paddle. The rep assured me that their unit would make everything good again.
So, I went ahead with the implant. It involved adding an adapter to the original lead going to the paddle in order to connect the new battery. The NEVRO unit has never worked. And, the adapter makes it impossible to have an MRI. So, my new pain med doc can't see what's going on in my back that's causing all the pain to return,
I am scheduled to have the SCS removed in April, If all goes well, I should be able to have an MRI. BTW, I also had a pain pump implanted last year. After many adjustments, it has provided minimal pain relief. My advice:
1. Make sure you do the trial (and, the permanent implant may not give you the same relief as the trial.
2. If you get the Medtronics unit, it has a setting that allows for an MRI. But, if for any reason you decide to switch to another unit, do not mix and match parts like I did. Have them remove all original components.
Good luck. Hope you can make an informed decision.
I had SIM card stimulator implanted in 22 it is migrated to my spine I haven't been able to charge it because it moved can you give me a suggestion or who I should go to I was trying to get into neurologist what they told me to go to Primary Care my primary care did not insert it help please
I had my medtronics scs removed about two months ago. It had worked well for about three years. Then it just stopped working. There was some thought that some of the electrodes on the paddle had shorted out. Mine was implanted at the T9 area. The removal went smoothly, Took about an hour. Healing went well. I am now looking to possibly trial another scs since most of my back pain has returned. Not sure how much more complicated your removal will be. Hopefully, not much. I wish you well.
I am so lost because I can't get anybody to remove it I can't charge it it hasn't been working for 9 months the device is just in my body now my left side is going numb metric said there's nothing they can do because the device migrated to my spine can somebody give me some kind of motivation I'm in California
I am so lost because I can't get anybody to remove it I can't charge it it hasn't been working for 9 months the device is just in my body now my left side is going numb metric said there's nothing they can do because the device migrated to my spine can somebody give me some kind of motivation I'm in California
Connect
Connect
Like
Helpful
Hug
I have an Abbott spinal cord stimulator called prodigy. I've had it now for approximately 3 years. It is placed in my lumbar and I am 100% relieve the pain. Not everyone gets 100% relief some get 50% of 60 some less. I pray that you'll get 100% like I have. As far as the neck goes from what I know there is a stimulator perhaps the same one that helps people that have neck pain. For me my pain management specialist has just given me injections or in a ablation. They seem to work. God bless you. Brother Chuckles80
-
Like -
Helpful -
Hug
1 Reaction@brotherchuckles80 Thanks for the info. ! I’m glad it helped you, if you don’t mind me asking what was your symptoms prior? How big is the controller , it’s bad enough having to wear sweatpants and carry my wallet and phone to be adding the hand held controller? I went ahead and called my surgeons office today I’m concerned with that loose screw what further damage could be done I don’t want to end up paralyzed or in diapers
Good morning,
I'm on my second stimulator since 9/2020. The first one was an Abot and I felt like a new man right after installation. Unfortunately one of the leads moved/migrated and starting hitting the wrong area and had to be removed. At the same time a staff infection developed and caused even more issues. My SCS was covered by workers comp and they decided to make me wait 6 months before allowing Drs to remove it. The infection grew worse and worse because meds weren't killing it. After removal and fighting what remained of the infection a year later I had my Nevro SCS installed. It has been doing well and Nevro enables you to put leads in 2 different locations and not need to be close to each other. This one has been in 2 yrs and now it needs to be removed and another installed due to lead migration again. This time both leads moved and moved really far from where they were out.
Drs not sure why they moved and how they moved so far and let me say I don't do anything that strenuous. We have a small 10 acre property that I make a small garden say 15x30 and mainly raised beds to eliminate bending. We have a couple cows but again not strenuous.
What I will tell you is the SCS has greatly helped my sciatica pain in both legs. It has helped make some of my back pain better but it didn't hide all of it. I'm on a daily dose of pain meds to help as well and have muscle relaxers of needed.
The Drs said I have 7 injured disks but they removed the 2 worst and fused my L3-L5 and did a lamenectomy back in 2015. I'm also listed as failed back surgery syndrome and had several complications after surgery even being paralyzed for 2 days.
My goal with the SCS was to lower the amount of pain and get back to an active well more active life style. Unfortunately in my case my life style hasn't improved much and the pain is back. Hopefully by replacing it again I will get more relief and have a better daily life but even with it being messed up I am still getting some relief.
I just don't understand why the leads keep moving on me. Is it doctor related or just do I need to do even less then I do now. Please don't take my comment as negative because as mentioned it has given me some relief and even some is better then I was prior to the SCS implant. Definitely recommend doing a trial for anyone who may need one and see how it works for you. I definitely recommend asking the Drs if you will feel the stimulation when it activated. Will you feel the vibration or not. Abot device you would feel it, Nevro is designed not to feel any vibration if you prefer not to feel it or they can set it up so you do feel it as well.
@greg72 it does seem like there’s a lot of leads moving makes you wonder why they can’t put a little slack in them. I had the permanent stimulator put in the 14th I had them readjust it Tuesday then again today she said this is the last adjustment until Wednesday when I see the doctor . My leads moved and I’m not active I bent over to pick a magazine up after being miserable for a 1-1/2 it was so nice being 95% pain free I forgot about bending it was even helping my neck which it shouldn’t they said. I’m praying they can move the wires . I’m not sure how insurance works since I bent hopefully it covers it. I have the Boston-Scientific I don’t feel it which concerned me not knowing if it’s working other than the pains gone. Not knowing if it’s turned too high the first day they removed the trial both of my calves cramped for 2 weeks, and then when my wires came loose on the permanent one calve cramped badly. Have you noticed that with yours ?
-
Like -
Helpful -
Hug
1 ReactionYes I've noticed when the leads moved it feels different. The first one SCS when the leads moved it felt like a 500 lb man was sitting in my chest and I couldn't breathe. It hit nerves that squeezed my chest and had to be shut off immediately. This time I kept feeling the vibration but no serious pain just annoying. Laying in bed and suddenly vibrating when I'm trying to sleep. I would feel it all different times so it wasn't just positional.
Now the Dr who installed my 2nd one will not fix the issues just remove it period. His partner said he would remove entire device and install a new one. It seems they don't just move the leads. Maybe for me it's because of where they were placed on in thoracic and one in lumbar. The entire purpose of the SCS is to get relief and let us get back to living a somewhat normal life. If we can't bend over, twist or literally have to watch every single move we make how is that a normal life. Even with my SCS I'm still in pain meds to have a more comfortable daily life, without them I would be in bed or on the couch every day. Hopefully your Dr can come up with a plan of attack to adjust your leads and not remove and replace.
@greg72 I hope I don’t go thru what you have . I hope they don’t remove it hopefully they can fix the leads. I just found out last night I have an extra translational S1 disc I guess it’s rare only 1-6% that have it. Biggest problem I have is people want to come up and Pat you on the back they don’t know how bad that hurts and 3 weeks after my surgery I was setting at a table and an old friend come up behind me and started twisting me 😡 then the next week the Incompetent NP Says it might be a set back but you can start bending, twisting and lifting up to 25 lbs 1-1/2 later I still can’t hardly carry a gallon of milk. So I went home that night after showering bent to dry my legs and felt a burning that has never improved. I went to the surgeon with a list of my new symptoms all he said is why you here, never got me out of the wheelchair to check me I could rub my tailbone and the pain went straight to my testicles I don’t think I’d be making that up. His final thing was go get a Stimulator !
has anyone tried a Nalu brand device?
I had SIM card stimulator implanted in 22 it is migrated to my spine I haven't been able to charge it because it moved can you give me a suggestion or who I should go to I was trying to get into neurologist what they told me to go to Primary Care my primary care did not insert it help please
I am so lost because I can't get anybody to remove it I can't charge it it hasn't been working for 9 months the device is just in my body now my left side is going numb metric said there's nothing they can do because the device migrated to my spine can somebody give me some kind of motivation I'm in California
You need to contact your neurosurgeon and explain your circumstances. There is no good reason why that hardware cannot be removed.