Where to help

Posted by marketlink @marketlink, Aug 23 9:18pm

I just need to vent tonight. My hubby has MCI and is starting to really struggle with his electronics. We had switched banks a few months ago and I was keeping the old accounts open so I could refer back to the statements. Yesterday my hubby locked himself out of our online account for forgetting his password. He couldn’t give the right info to customer service over the help line and they denied him access. He got mad, drove to the branch and closed down all the accounts including our joint account. Today he’s locked himself out of our TV providers app, been unable to do an amazon return and now he can’t download new photos our daughter just sent us. If I offer to help I get yelled at. I know it’s the disease but it’s so very hard to watch and … so hard to get yelled at for trying to help. I’m trying to make our lives simpler but he’s ferociously independent. It just feels good to share with others who understand as I process the emotions. Thanks for listening. 💖

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Profile picture for marketlink @marketlink

My computer was recently compromised as well and it’s a nightmare. I can’t imagine going through this with my spouses accounts. He is trying to update his passwords right now. I know how frustrating this can be without the challenge of MCI. I’m trying to be supportive during the process. I so admire you for working through it all. Big hugs.

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Bigger hugs to you. We need all the support and kindness - and faith - right now to deal with whatever we have to deal with. It took me 6 months after he was hacked into to get things right, and I'm so afraid he's up there clicking on things again, he shouldn't be......

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Profile picture for kjc48 @kjc48

You've figured out how to keep active; I feel like it's just my husband and I but we had a crisis in our house from the AC, had to move out, had to move everythign out, and we're in a rental. All while I'm trying to deal with his first infusion tomorrow. His one son is in denial I think, all the kids live a distance. It's a second marriage so you have the ups and down of a joined family. Our grandkids are so far away. We were supposed to go to Canada to see the one grandson icehockey. He's a goalie, but I had to cancel because of the infusion and whatever side effects tomorrow. I was afraid to fly with all going on. So for now, we're not doing Canada. My husband started Cerefolin, a brain supplment. I'll have to look at CLint Steele. the eating clean food is key, I believe in that too. I notice my husband's appetite isn't the same; that worries me. Everything worries me right now, It's just the fear of the unknown I think and feeling like we're gambling against time. THanks for your post. Quite helpful.

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Oh hi there, 4 years ago we had a similar experience where we lost our home of 23 years to fire. This was devastating to us and I feel that this loss may have sped up his MCI. He has been neurologically tested by the psych neuro. Recommended he go on Aricepr but he won’t.

We have 2 kids nearby (also second marriage) however all the children notice the short term memory because they speak on the phone with him often.

I am his wife, and as you know, the person who lives with the person who has MCI, knows best and notices much more than those who don’t visit. 3 children live out of state, 1 is AZ, 2 is S Florida and 3 is Boston. We are a blended family. The best advice I can give you is to try to keep things at home as normal and consistent as possible - they need this. Try making or serving his favorite foods. And yours too 😂💖

As for you, write down some of your passions or favorite things you love to do and get started as soon as you can (for your own sanity). See if there is a Medicare therapist you can talk to twice a month as talk therapy. Go to Psychology Today.org Do your best to do some things together such as a walk, a scrabble game, a movie, even a game of cards. Take care of your health as you are the caregiver. Definitely get on social media to see Dr. Clint Steele - he gives dimentia and Alzheimer’s tips several times a day. I wish you good luck. Stay in this group. 😘

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Profile picture for rolett1 @rolett1

Oh hi there, 4 years ago we had a similar experience where we lost our home of 23 years to fire. This was devastating to us and I feel that this loss may have sped up his MCI. He has been neurologically tested by the psych neuro. Recommended he go on Aricepr but he won’t.

We have 2 kids nearby (also second marriage) however all the children notice the short term memory because they speak on the phone with him often.

I am his wife, and as you know, the person who lives with the person who has MCI, knows best and notices much more than those who don’t visit. 3 children live out of state, 1 is AZ, 2 is S Florida and 3 is Boston. We are a blended family. The best advice I can give you is to try to keep things at home as normal and consistent as possible - they need this. Try making or serving his favorite foods. And yours too 😂💖

As for you, write down some of your passions or favorite things you love to do and get started as soon as you can (for your own sanity). See if there is a Medicare therapist you can talk to twice a month as talk therapy. Go to Psychology Today.org Do your best to do some things together such as a walk, a scrabble game, a movie, even a game of cards. Take care of your health as you are the caregiver. Definitely get on social media to see Dr. Clint Steele - he gives dimentia and Alzheimer’s tips several times a day. I wish you good luck. Stay in this group. 😘

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I often ask myself why do bad things happen to good people but I realize they happen to all of us. Yes, devastating, I'm sure to have a fire, even more so if you're dealing at the same time with a medical condition. I appreciate your response, and I'm going to keep it, and do as you suggest and try to keep things "normal" and "consistent" hard to do when nothing is normal and consistent right now. Our whole life is in boxes in storage, but we have each other, and we're here for each other in whatever hand is dealt for us. Thank you for your valuable post.

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Profile picture for kjc48 @kjc48

I often ask myself why do bad things happen to good people but I realize they happen to all of us. Yes, devastating, I'm sure to have a fire, even more so if you're dealing at the same time with a medical condition. I appreciate your response, and I'm going to keep it, and do as you suggest and try to keep things "normal" and "consistent" hard to do when nothing is normal and consistent right now. Our whole life is in boxes in storage, but we have each other, and we're here for each other in whatever hand is dealt for us. Thank you for your valuable post.

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It is my pleasure. Reach out anytime. I will keep you in my prayers. This is tough. 🙏

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Profile picture for rolett1 @rolett1

It is my pleasure. Reach out anytime. I will keep you in my prayers. This is tough. 🙏

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You will be in my prayers too. It's a great and kind thing when people that have a common situation share all they know. It's just makes it easier for those of us that "don't know."
Thank you for sharing.

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Profile picture for kjc48 @kjc48

You will be in my prayers too. It's a great and kind thing when people that have a common situation share all they know. It's just makes it easier for those of us that "don't know."
Thank you for sharing.

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You are welcome. I have learned so much from this group. We don’t feel as if we are alone, or the only one’s going through this. It really helps give all of us some extra comfort. Have a relaxful evening. Thank you also for the prayers.🙏

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